I
slept
okay last night and didn't hear the New Year bells which I'm happy
about so I didn't cry. I've cried enough tears for too many years
now.
When
I switched my phone on there was a text message saying “Happy New
Year Mam, may this year mean all your dreams come true" from T
and another text saying "Happy New Year Anne to you and the boys
and I hope it's a good one" I hadn't a clue who that was from
because I don't know the number, it's not on my phone.
Eldest
came down whilst I was sitting at kitchen table sorting out documents
for all my utilities. I said “good morning and Happy New Year son”
and got a grunt in reply. I told him “I need this year and all the
years of my future life to be different with no abuse and no crap”
He ignored me, went to the toilet then back up the stairs again.
I
sorted all the letters I need to send off re change of address.
4th
January
Had
to go and meet the Housing Officer today at the old address so she
could check the house. She said “you have been one of the best and
most honest tenants we ever had” I laughed at that and reminded her
“we had 20 Garda at the door” but I thanked her and gave her a
hug.
The
Open University tutor said she would give me a one week extension for
my now over due essay, god I expected more time than that but I will
just do my best to get it done.
6th
January
Eldest
wants "new trousers, socks and pants but not shit cheapo ones"
Had
three missed calls from the ex's phone, no voice mail was left. It's
probably because we're back in court this month. Not a snowball in
hells chance am I calling him back.
7th
January
My
friend rang me, she has moved jobs but said “you can't get rid of
me that easily" and she will still ring me every Friday because
she wants to. I don't know what I would do without her, we had a long
chat.
9th
January
I
managed to get my Open University Essay done and sent in to my tutor
by email, I know I will not get a good mark for it because my usual
effort has not been put into this one but I'm proud of myself getting
it done as life has been hectic with moving etc so as long as I get a
pass for it I will be happy.
11th
January
Youngest
is in a massive strop over his Home Economics teacher insisting he re
sits an exam with the rest of the class despite the fact he got an A
for it. I wrote a letter to the school telling them there's no point
in youngest being punished for the rest of the class failing the exam
and that he can't not get any higher than an A. Christ almighty the
boy went on and on about it for hours and hours with non stop ranting
and raving, so much so, he gave me a headache. I told him his mouth
needs cleaning out because he was calling everyone in the school
"retards and cunts" the abuse then started coming my way
because I was telling him off for his foul mouth, I walked away. FFS
he's told me about it and I have dealt with it so why can he not just
shut up and be grateful.
I
have no maintenance. When the fuck is this ever going to end, not
even him sitting in the courts holding cell to be transported to
Mount joy jail has changed anything.
18th
January
School
meeting with youngests two teachers. It looks like I only got my
youngests version of events re his refusal to re sit the exam he got
an A in. Even tho "he did indeed get an A, it doesn't mean he
got 100%" which seemed a bit odd to me. One teacher said “I'm
happy to have him in my class because he's a very bright and a
willing learner but the whole class were told they have to re sit the
exam as a revision aid for the real thing" I was told "year
5 is for continual revision towards the Leaving Cert" and
youngest had "pushed the paper away and put his head down on the
desk and turned to the person sitting next to him and said “why
should I have to do this test when I've passed it, it's a punishment
for the fucking retards that failed" I was so embarrassed at
hearing that and now so ashamed I sent in a letter to defend him.
The
teacher went on "I felt undermined and disrespected and if I
could hear him then so could the other students which is also
disrespectful to them" I was told "in the English class,
the teacher is young and he seems to go out of his way to correct
her, to remind her of things and she too feels embarrassed about how
he is with her" The school "do think he's is an asset and
he can go far with how bright he is but this has got to be nipped in
the bud now because what he's said is against the school rules and he
should have been suspended, we want, need and deserve an apology so
we can draw a line under it and move on" "we know he's not
very sociable which is why we always ask him how he is" they
said "we will do anything we can to assist him, to help him fit
in" I was getting more and more shocked by the minute, what do
they mean he's not sociable and they want to help him fit in, I'm not
liking the sound of this and I'm raging at youngest doing what they
said he did and what he said in the class re the exam. He is acting a
disgrace.
Youngest
was repeatedly texting me asking me how long I was going to be in the
school and asking me where I was.
I
met him at the shopping centre. He wanted to know all about the
meeting and asked did I get his Math exam results, I did, he got 92%.
I
told him the meeting was nothing at all to do with his Math exam and
told him what I'd just been told and I'm furious with him for not
telling me the real story, just his version of it and in future as I
often told him, “you can think what you bloody well like but you
cannot say whatever is on your mind aloud because it's hurtful and
disrespectful and you should know how it feels when people treated
you badly in another County” he wasn't having any of it, he was
adamant he was right and everybody else was wrong. I told him “be
quiet” I had heard enough today and was not about to listen to him
rant and rave and I had a headache and told him I would not talk
about it any more because I had shopping to do. I headed off to
Dunnes and then got the bus home but I was almost in tears on the bus
with him sitting next to me telling me what he thought about me in
his always loud voice. I am ashamed of him, the bus was packed and
people were looking at us and I wish I could just smacked him in the
mouth to shut him up. I do not know this person he has become. I feel
a failure as a mum, I always drilled into both of them that their
behaviour is a reflection of me, they are nothing like me at all. I
never thought that my youngest would ever let me down. I'm not happy
with him at all reducing me to tears in public.
Once
home I got the dinner made then went and lay down on my bed, my mind
was working overtime over youngest and me not recognising who he is
any more. I know he told me he was reading up on Aspergers but could
he actually have it or something else. I'm terrified for him. That
person who talks to me so disrespectfully and who I've been told
about in school is not the son I know.
Youngest
is now telling me “I think I have Aspergers Syndrome” I do not
believe a word of it. He just needs an excuse to excuse his dire
behaviour.
I
now have two sons acting like Hitler towards me. I am abused
verbally and mentally on an almost hourly basis. I am repeatedly
threatened with violence. I am actually asked if I want a slap or
punch in the face by my eldest. I am told repeatedly all that they
think of me, all that I am no good for and I am still coping solo
with no active services or supports in place. I sent Edel from Gheel
a text telling her what the school said and how they remarked that
youngest talked very blunt. My blood was actually running cold about
all that was said and then my youngest acting like a total thug
towards me on the bus.
Because
youngest wouldn't listen to me at all, I intended to put it in black
and white for him to see if that would sink in because I have enough
to deal with without him acting like someone I do not know and I'm
truly sick of his abuse.
19th
January
The
letter
I wrote youngest did not go down well at all, he ripped it up, he was
acting like the little Hitler he's become, he was spouting madness
about the Freedom of Speech Act, he'd printed it out and was quoting
it to me chapter and verse and pacing up and down in front of me as I
was sitting on the couch then he ripped it up. He was shouting at me
"the English Teacher is a cunt and has no respect for us, the
students, she actually said that her last class was like teaching a
class of Autistic's" I'm not going back to that cunting school
and I'm not fucking staying here as you have proved where your
loyalties lie so you are a cunt too and you can fuck off" I was
stunned into silence, all I could think of was my brother in law who
is mentally ill and I'm convinced both my sons are mentally ill too.
I know from reading up on it that it starts in the teen years. My
kids lives are destroyed and in turn they are going to ensure I am
destroyed, I cannot live with any mental illness, I do not deal or
cope with it well at all. It spins my brain into submission due to
fear. I fear the unknown of mental illness because I do not have a
mental illness. I have an emotional illness. That's the only way I
can explain or describe it.
I
went to bed at 8.30pm stressed out of my mind. I woke up at 3.45am so
got up, I relish the peace and quiet when no son of mine is around.
Youngest came down at 7.30am. I was relieved to see he had his
school uniform on, I reminded him it was a half day.
I
got the bus to Tesco and when I got back my eldest was waiting for me
and told me “take a Xanax before I tell you something" him
saying that put the fear of god into me. I told him “spit it out
now, I don't need any tablet” He said that an author he likes is a
white supremacist and he's been on his website and his mailing list
but this author has now been accused of putting a bomb somewhere in
America during the Martin Luther King march and he's worried about us
getting a knock on the door because he's a fan of the author. I told
him “don't worry, if anyone comes to the door they will have to get
past me first” He stayed talking to me, he's in a good mood today,
he said he wants to join the army.
Text
from the ex at 3.35pm " I am not fit for court tomorrow, I have
informed the court office" FFS
I
rang the court and got told "pay no heed to that text, it's a
summons and you still need to attend and you can inform the court of
all prior shenanigans in another County of him issuing summons and
then not appearing for them and he now appears to be starting this in
Dublin because he must have known he was ill long before the day he
was due in court, it will probably just be struck out and he will
still have to pay the maintenance as it's a standing court order"
(he's not bloody paying anything) she went on "I would know a
lot of men who pull this stunt then actually turn up in court but
they message their ex's so they don't turn up just to get them into
trouble so you need to make sure you still attend or a warrant will
be issued for your arrest" This is all sheer fucking madness.
20th
January Court.
Youngest
came with me, it was freezing cold. F arrived, still no female
solicitor in attendance with me despite what she told me at the very
beginning of this journey. The ex's name was called at the call over.
F stood up and told the court about the text and that the ex will
not be attending, he was told we would be seen first. Everyone piled
out and we stayed behind. F asked the judge for an Isaac Wunder
Application after explaining to the judge how many prior times the ex
has done this and that I had to previously travel 3 hours by train
and the ex would be a no show for his own summons and the case had
been transferred to Dublin for this reason.
The
judge agreed to the Isaac Wunder order. It means the ex cannot keep
applying for a summons just for the sake of it and he will have to
have a very good reason and stand in front of a judge before hand to
plead the reasons why before any future summons of his can be issued.
F
said to me "this will give him a taste of his own medicine, your
man has serious problems the past 5 years, he's obviously lost it as
look at all he's done, look at who he is mixing with and you wont
find out anything at all unless you get his backside into court for
divorce"
I
walked around the town with my youngest once we left the court.
Youngest was in a bad mood again. He is not happy that a Model
Agency put the photo they took of him on their website. He would not
be happy if he won the frigging lottery this boy.
21st
January
I
am losing it with youngest, he came home from school mouthing off “I
refused to apologise to the two teachers and the school want another
meeting with you” I need this like a hole in my head. I told him
“your behaviour and attitude is a disgrace and the school were good
enough to take you on in the first place after you sat at home on
your ass for two years, who the hell do you think you are” . He
stomped off to his bedroom like the grown up toddler he's acting
like. The selfish, arrogant twat.
22nd
January
Youngest
said "I will apologise, just to get all you bitches of my
cunting back"
24th
January
Youngests
teacher rang me. She said “we are so happy he has apologised, it's
been accepted so we are drawing a line in the sand now and we're
thrilled that he can now see both sides so there's no need for us to
have a meeting now” If only they knew the truth behind his
apology.
I
rang an Orthodontist for eldest, the cost for top and bottom braces
is €2,800 but they are only for 6 months.
I
missed the postman with a delivery because eldest would not answer
the door. If it's another summons I will go insane. I can't collect
it till after 1pm.
It
is another fucking summons. I rang the court and told them “I have
an Isaac Wunder summons just put in place 6 days ago so what the hell
is going on” The man I was talking to said “it was lifted to
allow him to appear in person and plead his case on Monday in front
of the Judge but it doesn't mean it's lifted for good, just for now
and he must have had a good reason” I told the bloke exactly what
my evil bastard of a husband is like.
I
had to go to the court and pay out another €50 for a Legal Aid
Cert which fucks up my weekly finances yet again. A horrible, awful
woman was at the hatch downstairs in the court.
Clerk-
“What’s your court number” ?
Me-
“Sorry, I can't remember, the stress has left me completely
blank”
Clerk:
“Now come on, you have been here how many times now”
Me:
“Not a clue, the ex brings me here and I have enough to deal
with as it is”
Clerk:
“Are you sure this is his address”
Me:
“No idea, it's not my job to update the court with his
address, I do not keep tabs on him”
Clerk:
“It's not my job either, if you do not know his address, I
cannot help you”
Me:
“It's in his interest to keep you informed, not me”
Clerk:
“Well can he afford to pay”
Me:
“How is that your business, that is for a judge to decide,
over half a million Euro has gone thru his bank accounts and I
have no idea where to”
Clerk:
“He's probably spent it”
WHAT
THE FUCK!!! What a wagon of a woman, it's not her job to comment, to
ask personal questions, to remark, all she has to do is do her job. I
am simply a client seeking a service, she is there to provide that
service, how the fuck is that difficult to do.
When
my youngest got home I told him the school rang me about his apology,
he said “I'm not fucking sorry at all, I just want their bitching
at me to stop" He went into the kitchen then started roaring
"there is no fucking food in this house" I told him “you
will not find food in the cupboard where the sweets, biscuits and
crisps normally are" I felt like screaming back at him to go
and complain about it to your father but I didn't as it would have
solved nothing. I just want a break from all this, from him, from
this horrible life of mine.
Eldest
has been in good form lately but he has gone quiet talking wise, I
hope this doesn't mean he's storing stuff up inside him to explode
soon.
2nd
February
The
solicitor rang. She told me “you should just go ahead and get a
divorce in default of defence but you will not get your full
disclosure” I said “we talked about this last year and it's not
what I want and you should know by now that all I want is my day in
court and the truth to be found out re everything” She said “the
way he's acting he could just plead that he's ill and doesn't
understand anything due to his mental health problems” I said “he
had no problems hiding almost three quarters of a million Euro and
it's a frigging disgrace this has now been going on for 6 years and I
have no money, nothing and me going in and out of the District court
has achieved fuck all for us and I still ain't getting any
maintenance and I'm sick of it” She said she would call me back.
She did call me back and told me “he's put in an
appearance which means he has 10 days to acknowledge receipt of
divorce and will defend your application for a divorce” All I
could think was like hell he will, it's just more stalling tactics.
9th
February
Voice
mail from the Principal at youngests school "he's upset, he's
getting a hard time from a couple of the lads, I saw him in the
corridor and asked him if he was okay, he ignored me and walked to
the toilets, I followed him so he left the school grounds, I went
after him and encouraged him to go back with me to my office"
When
I got home from Tesco I rang the Principal and the first thing out of
his mouth was “he has agreed his social skills are crap, he never
speaks to the girls, he's agreed he's arrogant, he's refusing to
meet with the school psychologist, he said he wants to leave or
change school but worst of all and I'm shocked that he said this was
- it's too late for words, it's time for blood - I would be very
worried at this being said and it all started because one of the lads
googled his name and found him and his model agency photograph and
has told everyone about it”
I
don't know what the hell I am going to do about this boy of mine.
When
youngest got home he went straight to bed and wouldn't eat his
dinner, he said “not hungry” I told him “I know what's going
on because the Principal rang me and told me” I asked him “don't
bottle things up” he just kept saying "fuck off please, just
fuck off" I'm at a loss. I'm worried sick for him and about
him.
I
later sat on his bed and asked him “why the hell is someone
googling your name” he said “it's that cunt T he won't leave me
alone, he calls me a prick every time he sees me and throws things at
me" I told youngest “it will not happen any more and you need
to always tell me what's going on with you because I cannot read
minds and I will go up to the school and sort it out”
I
wrote a two page letter to the Principal before realising the school
was only open a half day tomorrow so I rang the school for their
email address and asked that the Principal read my email as soon as
possible.
"Dear
Principal: Re: our conversation today at 4.10pm regarding my son. I
have never known my son to be as upset as he was coming home from
school this evening and instead of his normal routine he went
straight to bed and stayed there having had no dinner and not even
going onto his computer which is highly irregular and tells me
something extremely serious has had to have happened today at school
before you saw him in the corridor and he then left the school
premises.
What
I did find out is that my son is bullied constantly by T the same lad
who hit him in the balls “just messing” this fine young man
apparently since that incident now has a vendetta against my son yet
my son was his victim and had done nothing wrong, this fine young man
calls my son “prick” amongst other names at every opportunity and
thinks it's okay to fire missiles at my son at every given
opportunity, when he is minding his own business going from class to
class, going to the canteen etc. Again this fine young man took it
upon himself to Google my son’s name, even tho they are not friends
in any way shape or form, nor in the same class and found out that my
son has been signed up by a model agency, something that I am very
proud about and is my child’s own personal business, he then sent a
text regards this to pupils in my son's class. You said he was having
a hard time from a couple of lads; it is now clear that it is more
than “a couple of lads”. You said he is not being hit yet
missiles are being thrown his way constantly, in my personal view
psychological abuse is worse as no one gets to see the pain it
causes.
I
then asked my youngest if anyone else was on his back and he replied
“yes loads of them both in class and out of class” I asked him if
anyone was standing up for him, he said “no, not really” but a
"friend" just told him to take it in his stride” youngest
replied, how could he, it was too much to cope with. This brings me
to the recommendation from yourself that youngest should really talk
to the psychologist as his “social skills are crap and he is
arrogant” something you said youngest agreed with, yet youngest is
not bullying anyone nor is he attempting to physically hurt anyone
either, nor is he searching for information online in an attempt to
do god knows what, with any information found (youngest has had the
use of computers at home since age 4 years and is very proficient
with same, he is also not stupid and would never provide his full
name details on any site he frequents) he attends school because he
wants, needs and deserves an education as he is hugely intelligent
and wants to do something with his life. As you know because I
provided full details of the serious injuries he received at the last
school he attended, the whole male population at that school, 100 in
total made my son’s life hell on earth and it took him two years to
regain some confidence to return to education and I am very proud
that he did so. He does not deserve this. Others in your opinion may
find him to be “different” he may lack in your opinion “social
skills” but he does not attend school to socialise. Telling the
victim of bullying that they need to see the school psychologist when
they are the one doing no wrong is an insult to him. I
know that this is not your intention and I know that your heart is in
the right place regarding helping my son but the hurt he is going
through is caused by other pupils and it needs to be nipped in the
bud now or my son’s life is going to be wasted and for what. I do
hope you find out why"
10th
February
Youngests
year head from the school rang me asking “how is he” I told her
I sent an email to the school re his version of what has actually
been going on. She said she hadn't seen the email. I told her
“youngest had been telling me that he thinks he has Aspergers
Syndrome and the school are telling him he's arrogant and lacks
social skills etc. which has not helped matters” She asked if she
could talk to youngest and I handed him the phone, she asked him if
he would go in and see her tomorrow at 9.10 a.m. he said “okay but
not without my mum”
11th
February
Went
up
to the school with youngest. His year head was very nice and
friendly, she asked him “will you find it easier to write out what
happened” because he kept telling her “I am physically incapable
of saying it out loud” The Principal came into the room and
recommended “he sees the school psychologist” youngest kept
telling him “no” I said “just leave him alone now, you have had
your answer and you are stressing him out” The Principal then said
“I am still extremely worried at him saying to me "it's time
for blood" I find he doesn't even meet my eye when talking” I
said “he (who was still in the same room as us writing at a table)
thinks he may have Aspergers Syndrome and you cannot force anyone
with this condition to look you in the eye as you have repeatedly
tried to force him to do” I said “force is not the answer to
anything” The Principal said “I am disappointed that he has not
been telling us what's been going on” I said “I'm disappointed
this school has violent little oiks who think what they are saying
and doing to my son is okay, they are hurting my son and it had
better stop and stop now” He said "we didn't know" I
said “you knew when he got a "box in the balls" and you
knew when you left your last voice mail to me” The year head said
“I will talk to those involved and ring youngest when I've done
so”
We
left the school then youngest told me he was “staying on the bus
because I want to go to town alone” and told me “I don't need
you as a babysitter” I could have reminded him he couldn't go to
the school without his mum as he told his year head on the phone but
I didn't. I just got off the bus when it got to the roundabout.
When
youngest got back from town he told me he'd got himself work
experience for school in a camping shop. I'm so pleased and proud of
him.
His
year head rang me at 5pm, she said she was still at the school but
hadn't had time to speak to those responsible or involved but she
would do so on Monday and youngest can go back to school on Tuesday.
14th
February
I
am 51 years old FFS, I can't quite believe it, another year older,
another year in paradise, NOT!!
Youngest
gave me a birthday card, chocolates and ear phones plus a €20 Boots
Voucher, Lush soap and bath bombs. He always puts a lot of thought
into presents. When I said “thank you, that was so unexpected”
he said “I got the money from brother” so I went to thank Eldest
too, he said Happy Birthday so all is well in my world today.
I
was up early to meet M from the refuge I had lived in to go to DCC to
meet a woman who will be my support, it's a service they give to
people who have been homeless a long time. M was driving me there. We
met a lovely girl called L who explained she was linked in with a
charity who provide support to live independently, I said “it's
support due to my personal circumstances that I need, nothing else”
She said “that will be okay, I can help you with that too” I
asked “please do not turn up at my door with a file in your hand to
let all the neighbours know you're a professional because I want to
be just like everyone else” She laughed at that. M then ran me
home.
Eldest
told me he wants dumb bells from Argos to start doing weight training
and told me to go and get them.
Youngest
was very nervous about going back to school. I gave him a pep talk
but it does not look like it helped at all. I know that life is tough
for everyone but Christ please give us a break or I will stop
believing in you. That thought made me laugh as I remember the psych
in the other County we lived in asking me “have you ever heard
Eldest talking to himself or talk to someone who wasn't there” I
told him “you will be locking up most people in Ireland if you
judge anyone on that because all Catholics I know are talking to
someone they don't know and cannot see and they attend huge buildings
to do so in their thousands so you better ask for a lot of funding
from the HSE because I can see many new psychiatric buildings going
up” He was a strange man, that Dr Creane, he wouldn't know a sense
of humour if it hit him in the arse.
Youngests
year head from the school rang, she told me “I had a general chit
chat with the class and found there's four students who said all they
want to do is attend school, do their work in peace and leave and go
home and the class has agreed” She did not mention the T bully at
all.
My
back is killing me today.
15th
February
I'm
worried
sick about how youngest is coping. I keep expecting the school to
ring me with yet another problem. I just want him safe.
I
emailed my friend about youngest.
“Hi
Friend, I have not had a minute spare to write in peace about
youngest. He has just gone back to school today after having the past
week off, the school told him when to come back as they wanted to
have a chat with certain pupils. My nerves are shattered for his
welfare. My subject line above is driving me nuts trying to decide
why youngest is now as he is, as I told you he's insisting that I
accept that he has Aspergers as he investigated the subject in depth
and I have to admit that I do not want to accept it but he is now
"odd" (terrible word) and I hate to say that I can be quite
embarrassed in his company. How can someone just change like this or
have I been totally blind and much too focussed on eldest?. We no
longer have conversations, I'll be chatting away and he carries on
talking about random subjects, "God does not exist"
followed up with the data to prove him right etc. He is always
correcting my friend K's 7 year old son, he told him Father Xmas does
not exist and when you're dead, you're dead and telling the child
that cartoons are not real. K was going nuts about him telling her
kid all this, he also told him that white lies are as bad as real
lies, so that makes him a liar. The kid was distraught. There is no
getting thru to youngest about what he can and cannot say, what is
age appropriate (all my fault apparently as he says I raised him not
to lie) He has this face for when he's outside, like he dare not
smile. I am not allowed to call him his name in public as "I do
not want the general public to know my name as it's embarrassing"
(if he were 7 I could perhaps understand this and call it a phase)
He will out of the blue decide to run and his arms are as straight as
a poker by his side, his shoulders and chest far out in front of him,
like he is going to fall on his nose, he has been doing this for a
couple of years now, K said he is just winding me up and messing
about but he's not, he says it's the way he always has run (it's not)
I see nothing that youngest does in Eldest so how can it be
Aspergers except the fact that he goes mental if I move anything,
that he hates change which is relatively new, he is solitary, he has
no friends outside of school, he tells me he hates people, he talks
crap about stuff I know nothing about, he walks with both hands
behind his back holding his wrist. On the one hand I just think that
he's had an awful time of it with the severe bullying in another
County which would make him hate people, then I think was it that
which has triggered this now "strangeness" My greatest fear
is if the crap he's going thru at this school makes him withdraw more
than he is already. Some of the "bullying" is just normal
every day stuff which would probably not affect you or I to the same
extent as it has him e.g.: getting called Harry Potter because of
his glasses. When I told him he would have to grow a thicker skin he
told me “we all have 5 layers so that's not possible” I wish he
was quick enough mouthing off to the bullies. I don't know how to
help him, protect him. I am truly at a loss”
16th
February
I
had awful thudding mule like kicks in my chest palpitations. I had
to keep stopping whilst walking to Tesco. I was jumping with fright
because of them because they were so unexpected and so bad. I
collected eldests money then got the bus to town to go to Argos to
pick up his weights. Good god almighty, how he could even think I
could carry these was beyond me. I called a taxi but had to carry
the bloody things across a busy road and my back is in bits now.
I
got a taxi to Gheel's offices to meet Edel and we were sitting having
a cup of tea when the school rang me. I told Edel I would have a
heart attack if I had any more calls from that school because it was
making me fearful even answering the phone to them now. It was a
teacher. She said “he's refusing to do the detention we gave him
after he was late getting to school on the 10th” I told her
“that's the least of his worries” and explained to her why. I
told her “the whole class are now ignoring him, he's been sent to
Coventry by them all for apparently being a grass” I said “he's
not finding going to school easy at all” She said “I wish
youngest would just talk to me, not as a teacher, I would like to
encourage him to join in sports and have a more balanced life” I
said “he hardly talks to me now unless he wants one of his battles
fought for him and do you not think I've tried everything in my power
to help him but he's like stone once he's made a decision, he will
not be budged and I'm at my wits end with worry about him” I told
her “I'm at Gheel Autism Services and have to go” She said “you
can call me at any time just to talk if you like” What a lovely
lady.
I
rang youngest and asked him if he was home yet and asked him how did
his day go, he said “it was dreadful, not one person spoke to me at
all, I was on my own the whole day, not one person would sit next to
me in class either, it's psychological warfare” I said “it's a
disgrace, I'm with Edel and will see you soon and don't let it get
you down” I told him “the school need you to do the detention”
he said “okay” I was surprised about that because I thought he
would absolutely refuse.
I
forgot everything about the meeting with Edel because of the school
ringing me.
I
was exhausted once I got home, a car was parked next to my gate so
the cab had to drop me off down the street, I was fuming because I
had to carry the bloody weights as well as my shopping, my back is
really killing me.
I
replied to an email from my friend:
“Thanks
a million Friend, I will just have to let him be himself but he
really is going thru the mill and needs my support, he actually asked
me to be his advocate at the school meeting. He walked out of school
at lunch time yesterday as he was accused of reporting two classes
for bullying and they'd been made to write an essay on the effects of
bullying and why it's wrong whilst he wasn't in the school so no one
would talk to him when he went in yesterday so he left. Luckily I
have changed a bit (no nagging) and just let him decide after telling
him I can see both sides because it must be tough on his class mates
too, making him welcome then being accused of bullying, and that he
only has the rest of this week then is on holiday on Friday and it
won't be long till the summer holidays, so he giving it another go
today, thank god. I feel so sorry for him tho. I have to go to Gheel
to fill in some sensory format on behalf of eldest. I've no idea what
this will accomplish but if it helps further down the line I will do
it. I have to buy him weights today with his money, he's in great
form at the moment, I just hope I do not get one of his weights
wrapped round my head in the future”
I
made us all something to eat then lay down on my bed. My youngest
came in and lay next to me telling me all about his "shit day"
at least he's getting it off his chest and not bottling it all up. He
fell asleep, bless him, I covered him up and closed my eyes too but
my back kept going into spasms so I couldn't have a nap.
I
completed my Open University online project then helped youngest
make pancakes.
17th
February
Youngest
went into school late, he said “my first class is PE and it's off
site so there's no point going in because the last time I did, the
class spent the time throwing balls at me and it hurt me and anyway
no one will talk to me” The poor little fucker, I am going to
murder someone over this.
He
rang me at lunchtime, he said “I don't know where to go or what to
do for an hour” I asked him “do you want to sit in the library or
come home” He said “come home” I reminded him “you have just
one more day to get thru then you will be on holiday but if you can't
face it then stay at home” He said “my one time friend S smiled
when he spoke to me but only to say you un friended me on Face Book
and I replied you proved you're not a real friend at all"
I
had heart palpitations with a vengeance at 6.30pm, they frightened
the life out of me. I took a Xanax as the doctor told me they would
stop them.
Letter
from the school given to youngest to give to me. They want me to meet
with the Principal and the school psychologist. The bloody cheek,
it's the bullies who should be seeing them.
Eldest
is 19 today. I woke up at 6.45 a.m, so thankful it wasn't 4 or 5 a.m
which is the time I normally wake up these days. I was gutted because
all I could get eldest was I tunes vouchers and two cards from me and
youngest. What can you get the boy who has everything he needs anyway
except what I really wish for him, peace of mind and freedom from his
self made prison, the poor fucker.
No
sign of eldest at all till 10am. I waited till he went to the toilet
because he can be a real grumpy bollix in the morning. It's weird now
that he was always the smiley one in the morning when he was young
and my youngest was always the grumpy one who I could not rouse for
love nor money, now my eldest seems to be grumpy all the time. I
didn't hear him weigh himself as he usually does every morning after
he had left the loo, he just came straight out of the kitchen. I
walked into the hall and said “Happy Birthday son” and was
shocked to hear him say “Leave me alone, fuck off, just fuck off"
I said “what on earth has happened” he said “I have already
told you to fuck off, just fuck off and die" and he went back up
the stairs. Shit, shit, shit, not this carry on again and fuck, fuck,
fuck, I don't know what to do, who to talk to, my nerves were shot to
pieces as it is because I have court tomorrow with his father. He
threw the birthday cards back at me, unopened. He didn't lift the
5ltr water bottles I had filled for him, they were still in the
kitchen. Something must have upset him, maybe his father contacted
him but I doubt it because eldest always forwards anything from that
man to me, which is scarce anyway. It has got to be me, it always is
but I have no clue what it is. I do not need this crap.
It's
a beautiful day outside, I was supposed to go shopping, pay my bills,
complete my court file and contact the solicitor about court tomorrow
but all I could do was stay at home and cry, tears of sadness, fear,
frustration, worry, sorrow, it was all too, too much and I had no
credit on my phone, but who would I contact. I really have no one at
all. My photographic memory went thru everything from my labour to
birth having him, my overnight stay at the hospital, my journey home
from hospital with him, even the song that was playing on the car
radio “Your Babies” by Simply Red. I cried very hot and painful
tears with my memories of his birth day. If only we all had a crystal
ball. If only we all could see into the future. If only we all could
live happy ever after. If only I could have a fucking lobotomy.
I
used my land line to ring Edel from Gheel's mobile and left her a
voice mail saying “I think he's about to blow and I'm scared”
Edel rang me back and I told her what he said and how
scared I was because it really had come out of the blue, I said “I
don't know what's wrong with him but it's about bloody time he grew
up” Edel said “just leave him till he comes out of it himself”
I told her “I have court tomorrow and I need this crap like a hole
in my head and eldest knows what work I've put into doing my court
file and it could take days or weeks till he came out of this and he
will not eat, drink or use the loo and I'm frightened of him and
frightened for him and every time I hear him move I think is he going
to come and batter me again, hurt me again, end it all for himself as
he always threatens to, to end his nightmare or end my existence and
I'm unable to cope with him” She asked me “can you not go out”
I said “only to the shop but I would be fearful at leaving him for
too long because I'm worried about him” She said “I know and
understand how hard it is for you on top of everything else, your
worry about youngest, your worry about court, I will ring you after
court tomorrow” For fuck sake, how could she not realise how
terrified I am NOW, the words are coming out of my mouth and I'm
telling her so why won't the so called Autism experts even come and
try to find out what's wrong with him and what made him say what he's
said or do I or does he have to be found dead before they will step
in. “Give him space” I see him approx 2 hours per day. I do not
have the skills or the sense for any of this, my bucket is full and
over flowing, he hates me because he hates himself, he will kill me,
one day I know he will kill me and despite me knowing and telling, no
one is listening. I told Edel “I'm done in, I can't take any more,
I want my son out of my house, I'm not taking any more abuse or
threats of violence, I am terrified of him, I do not have the skills
or coping mechanisms to deal with any more, I cannot hear him
threaten to kill himself or me or attack me or attack youngest any
more, you have to get something done and done now” She told me
again “give him space and stay away from him and leave him till he
comes out of it himself” I said “if you don't get on to the HSE
about this then I will contact all Irish and British media because
this is a disgrace, I am not and have never claimed to be Superwoman.
I am a basket case the way you sall have sat back and left me to cope
solo with everything”
The
way I felt all boiled down to an overload of stress and fear and fear
of the known and the unknown. When you are completely depleted of any
coping mechanisms you literally fall apart mentally, emotionally and
physically and you torture yourself about what could happen.
I
wrote a note for my youngest saying “Do not go near your brother”
How sad and sick is that, it's his brothers birthday but god knows
what would happen if youngest knocked on his door to say Happy
Birthday. I just stood holding the note aloft in front of youngest
who was still in bed and I put one finger to my closed lips to let
him know not to say anything back to me. He asked in his sign
language, what's kicked him off, but I shrugged my shoulders because
I don't know and I ain't uttering one word or eldest would hear me.
I told youngest to lock his bedroom door and I would be doing the
same, I never want to be punched and kicked by my son again, I never
want to be spat at again or threatened with a carving knife waving in
front of my face and stomach again and I never want to be chased out
of my house at the end of a carving knife again. Where are the
services, supports and professional help I have been promised since
2009 in Dublin and that other County we lived in from 2006 to 2009.
Edel
from Gheel had told me “because you've recently moved you need to
apply for a new package with the new Disability Manager” I said
“that's nonsense, we still live in the same Dublin area and I want
to see in black and white what Gheel Autism Services are supposed to
be providing for my family and what the HSE are paying you to provide
us with. I want to see the Family Support Plan” Edel said “I
will talk to Andy about it” Why? Makes a change from her telling me
she will talk to Peter Byrne about it.
Walked
to my local area for a quick shop. I was almost in tears and had to
give myself a good talking to, to stop myself from crying. I told
myself to grow a spine and asked myself what would people think at
seeing this wretch of a woman but I felt so weak and emotional and
so angry, how dare eldest do this to me today when I have to face his
father in a court room tomorrow. I've no clue why it's me getting all
his abuse, I would like to scream at my eldest to go and live with
his father, go and abuse him, go and batter him, go and chase him
with a knife, go and call him every name under the sun, go and tell
him how useless he is, go and fuck up his life, go and give him no
life to lead at all. I would never have had the balls to say any of
that to him tho.
I
felt so sorry for myself, I kept telling myself to cut it out, snap
out of it but those bloody tears kept falling and I couldn't stop
them. I don't know how he could just turn on me when he's been quite
stable for a few weeks now. Why can he not just tell me what he's
thinking, tell me what happened, he can tell me to fuck off and die
quick enough, he can tell me that I'm a fat whore. I am not fat and
I am not a whore.
I
walked home and managed to hold myself together till I opened the
front door then I burst into tears. Youngest put away the shopping
for me then made me a cup of tea and asked me “could it have been
the joke birthday card from me that started him off” I said “no,
he hasn't even opened his cards” youngest gave me a hug. I told
him “I feel like jumping on a train away from here but I can't
afford the train fare for you” he laughed at that then said “ we
have no one and no where to go” How the hell did we end up like
this. It is crazy.
I
rang the solicitor and she asked me how I was and told me she can't
make it to court with me. I felt like screaming at her, when the
fuck do you ever make it to court with me, instead I told her about
eldest and she asked me if I was safe. I answered honestly, I do not
know, she asked if I could go to a neighbours, I said none of them
pass the time of day with me, they do not know me. She asked “would
you seriously consider independent living for him” I said “I
would love that, it was recommended by Dr Amitta Shah but fuck all
had been done about it and he would probably kill himself anyway so
how could I live with that” I told her what Edel from Gheel said
about giving him space which was crazy because I needed to know he
was okay. She asked “why is youngest so against having a diagnosis
if he's convinced he has Aspergers too” I told her “he has his
heart set on going to America and he said that anything like an
official diagnosis would stop him from going” The solicitor said
“he is thinking selfishly because having an official diagnosis
would allow him to get help and interventions” I said “you have
got to be joking, we got sod all help for my eldest and I have the
most expert of Autism experts report and recommendations that have
been IGNORED by all at the HSE and all agencies. She wished me luck
with court and said she would call me tomorrow and added “at the
first sign of trouble with your son just call the Garda”
I
asked my youngest “do you feel brave enough to go and ask eldest if
he's hungry” youngest said “no way, have you forgot I've been
punched twice in the face by him before now” I said “off course
I haven't” youngest said “no matter what you make he won't eat it
even if he's starving” He's right. My eldests control over me is
appalling.
Youngest
begged me not to go anywhere near him, we went looking for the small
sharp knives and any scissors in the house, we weren't taking any
chances at all but then youngest reminded me “He has the weights in
his room which could do real damage” I told him I would lock my
door then I thought maybe I won't and just let him brain me if that's
what he wants, it would put me out of my fucking misery, if it wasn't
for youngest I wouldn't even care.
All
I want for my eldest is for him to be happy, to be normal, to have
been out on the lash with friends for his birthday, learning to
drive, being at college, having a girlfriend, god love and help him,
it's not fair for him at all, all these years lost, stuck in whatever
house and not one professional gives a damn. And there is my reason
for staying in this fucked up and trapped scenario. I am scared of
him, of how he talks to me, at me, his threats of violence to me, his
actual violence to me. I love him, he is my son and I feel sorry for
him, I want to help him, I want help for him but I do not want what I
do have, FEAR on a daily, sometimes hourly basis. I just want help
for him and for us.
I
tried to finish my court file but had no concentration. I don't do
things by halves, I have been in court so many times that I know they
can ask for anything and I need to be prepared for anything and have
all my documents to hand and they are always updated by me.
I
was alert for any sound from eldests room to find out if he was safe,
would I be safe, would my youngest be safe. What a fucking life.
At
7pm there was still no sight nor sound from eldest, not a creak of a
floor board, not a tap on his key board, he's not used the toilet
since 10am this morning, he's not eaten, he's not got his water, he's
not taken his meds, they are still on the bread bin in the kitchen.
What in gods name am I going do do. If I got anyone in to try and
talk to him, to try and help him he will lose it completely and I'm
worried sick if he tries to kill himself.
At
9pm, there was still not a sign or a sound from him and I was losing
it and going insane, I was so worried but too scared to go check on
him. I sat on the stairs, I put my ear to his door, I just want to
hear him sigh, it would bring such relief but I heard nothing. I've
two separate court cases with the ex tomorrow and if I don't go I'll
be arrested and all I want to do is get into my eldest and see if
he's okay but I can't and I don't and if he is dead then I will never
be sane again.
I'm scared of him and scared for him. I'm scared he will batter me,
I'm scared he will kill himself, I could not live with myself if I
saw his dead body, that would be the end of me. I wanted and needed
to check on him but total fear was stopping me.
My
head was in turmoil. I put on the TV in my bedroom so that my eldest
would hear that I was in my bed room then maybe he would come out of
his own room, I just needed to know that he was okay. I told my
youngest to lock his bed room door.
I
got hardly any sleep at all just in case eldest kicked off or needed
me and I swore that if I got thru the night in one piece, if he was
still in one piece by morning, then I'm done, I'm taking no more, I'm
doing no more, there
are no wings sprouting from my back, I'm no angel sent from on high,
I am a mere human who has put up and shut up till I can't take any
more, so fuck it I’m done, all done. This is mental. This is mental
torture.
25th
February
I
had one hours sleep. I got up at 4.36am, I put my ear to eldests
door, no sound. I know he's not once used the toilet because he never
flushes the loo at night and the toilet hasn't been used. I feel like
a basket case, I look like a basket case, I am a basket case.
At
7am, I needed to check on him. I wanted to check on him but was
scared witless to check on him in case he attacks me, in case I find
him dead and I felt ready for the loony bin, almost hysterical with
fear. I was convinced he was lying behind that door dead. God in
heaven I needed help, why was no one helping me, I couldn't stop
crying thru fear and panic.
I
got dressed for court, I took two Xanax, I took a deep breath and
knocked on his door at 7.30am, shaking like a leaf. I said “I am
at court today and have no idea how long it will take” he replied
“okay” and I almost collapsed with the relief of hearing his
voice. I was shaking inside and outside from head to toe. I asked
him if he wanted his water brought up to him and he said no so I
left.
I
needed to get my breathing under control. I was unaware I was gulping
down oxygen and shallow breathing that made me feel like I was going
to pass out. I needed to try and control myself because I didn't want
to be an emotional wreck in court in front of the ex but for fuck
sake I could gladly knock the ex's lights out for the shit I've been
left with here and the shit he's still making us go thru, it should
be enough that he's spiteful enough to not want to pay for the food
in his own children's mouths but to inflict his genes on my kids and
he lives a stress free life whilst I go thru this torture makes me
want to howl with rage, grief and anger. Christ almighty I need
someone's arms around me, someone to shoulder half this burden,
someone to take over and give me a break, I felt as sick as a pig and
looked like I'd aged 10 years over night. I threw two tea spoons into
the freezer and held them to my eyes in an attempt to reduce the
swelling to at least make me feel like no one would know I've been
weeping. I may have nothing but I do still have pride.
My
eldest makes me as mad as hell, if he can use so much will power to
fuck me off and do without food, water and the toilet for all those
hours why the hell can he not, as a very intelligent man sort his
life out.
Court.
Youngest
and I missed the bus to town and had to get the dart.
At
the court L who was supporting me was waiting for us. I told her
quickly that we'd had a very bad night so I felt like exploding and
asked her would she sit on me and tape my mouth shut because I didn't
think I had much self control left in me at all. She laughed and said
she would and she and youngest chatted away to each other, she is
such a lovely girl. We were only in the place five minutes when the
ex and his posse arrived, he looked like an old bag of bones. F then
arrived and informed me “he has a witness with him today, I'd no
idea why he would need a witness to stand and claim why he's flouting
all court orders” I said “if his girlfriend is the witness then
you had better get on to my solicitor because I will go loopy in the
court and I mean it” I told him “I am on the edge of sanity
here” and explained about eldest yesterday and the living nightmare
of the past 24 hours.
The
foyer of the court was packed out as usual, it's always like a cattle
market and I hate it. I was bouncing of the walls I was so hyper
thru lack of sleep and adrenalin. I took a seat and in he walked
with his “partner” and another woman, they both looked as
miserable as sin and I thanked god for small mercies that I no longer
had to wake up to that face in the mornings. L said “he doesn't
look like a happy man and they don't look like a happy couple at all
and that one and her friend must think they are intimidating you”
they were continually walking past us slowly, walking outside the
court then walking back in again, L said “they keep doing circuits
of the court and this is nothing to do with them at all” I said
“no one intimidates me, I'm Scottish” L laughed. I said “it's
awful that in a place like this there are no scanners because anyone
could walk in with anything and with the chaos of so many people and
the Garda just standing around a desk then someone could be attacked
and escape easily” L said “yes it is crazy”
We
went up to the court lobby. I just stared at him, he should be
ashamed of himself, what he did to us, what he's still doing, what he
should have been doing, how he is dressed for the court, he looked
like a tramp, he knows how to play the system. I had already shown F
the face book photo of him and his “partner” where he was
decently dressed, clean shaven and told F this was all an act for the
court. The ex did not look at me, he did not look at his own son who
with me or even ask about his other son whose birthday it was only
yesterday.
The
ex now has a solicitor and she came and offered me “€50 per week”
I said no, I told her “he had the brass neck to phone me using his
sick voice (still at his old games that no longer work at all on me)
he asked me “can I pay €50 a week till I get back on my feet”
and I told him “our kids need to be fed, my youngest needs shoes
that cost €55 and you're a disgrace of a man and an apology of a
father who should not be using the title at all” He had sighed
constantly when on the phone to me. He never changes and I hate that
sound, I listened to that sound for far too many years. I told him
“put it in writing and send a copy to the court and get it paid
straight away because I am severely struggling” and he told me “I
will and if I can afford more then I will pay more” And he paid
not one fucking cent so “he can shove his offer up his ass”
His
solicitor gave F a copy of his Statement of Means, it states that
he's getting help from MABS, it's a bit late in the day for that, I
bet he never told MABS he had three quarter of a million Euro go thru
his hands and gave fuck all to his wife or kids. His solicitor made
another offer outside of the court for €60 for maintenance plus
another €20 off the arrears. I said “no, I want to talk to the
judge and I'm not accepting his fairy tales any more” F looked
frazzled due to me. I told him “you're here to take MY
instructions, not the other way around” he then smiled at me.
After
the day and night of terror over my eldest no one was going to ride
rough shod over me today.
The
ex's application to vary the maintenance was struck out until he
lodged his divorce defence, the judge asked me “when did you lodge
the divorce” I told him “April last year” he asked the other
side “what is the hold up” and he got told “it's at the
Statement of Means stage” which was a complete lie because he went
into hiding and I had to track him down myself and he only recently
acknowledged the service of divorce but I kept getting told it was at
Statement of Means stage and here he is providing the court with a
Statement of Means for a full 12 months and is including maintenance
on it which he's not paying so all he is doing is stalling.
His
solicitor said to the judge “Mr X has made an offer to Mrs X and
she will not accept it” I explained to the judge all about his
phone call and “still he did not pay anything so no I will not
accept what I know is not forthcoming, he had his chance” The
judge said “I have to strike out your variation Mr X as Mrs X will
not accept your offer” His solicitor said “Mr X has severe
mental health problems and I have personally spoken to his mental
health social worker the past couple of days” I said “he has
provided this court with his Statement of Means for a full 12 months
so I believe he is just stalling the divorce proceedings” F told
the judge the history of his non payment of maintenance and that “the
arrears now stand at €10,404” The ex's solicitor said “my
client paid until he had mental health problems” which was a
fucking joke and he always had mental health problems, he just kept
it well hidden. I handed F my maintenance calenders of all non
payments of maintenance and my own bank statements which he gave up
to the judge so the judge could see for himself the liar he had in
front of him in black and white. His solicitor went on about how her
client has a mental health social worker who she has spoken to about
his current state of mind. F said “my client cannot afford the
luxury of a nervous breakdown because she has children to raise, one
who has a disability and has not left the house in 4 years, my client
is daily living with severe stress” I said “it's 5 years since
my eldest went out” The ex's solicitor said “that is a
disgraceful statement to make about my clients mental health” F
was told to apologise.
The
judge told the ex “hand over €100 immediately” the ex said “I
have no money on me” the judge went mad and told him “I cannot
believe you came to this court with no money and with what you owe”
he told him “get out and get the €100 I just told you to provide
or you will not be leaving this court today” The ex said “I
have to go to the bank of Ireland” and he was given directions on
where the bank was.
I
told F “that will be his Business Account so if he has no money how
come he's using that account” The ex was back in the court room in
mere minutes, there was no way he went to any bank. F told the judge
“he has a history of paying for a week then stops paying anything”
The judge said “I am not varying the maintenance, it still has to
be paid without prejudice until the 15th June and if he defaults at
all I am giving Mrs X 10 days notice to bring him straight back in to
the court” he asked him “do you hear that Mr X, I will take a
very dim view and you will be sent to jail, do you understand” the
ex said “yes” The Judge said “the original court order still
stands”
I
walked down the stairs with F and when we got to the ground floor,
his “partner” was at the lifts but ran way when she saw us.
L
told me he got the money from his “partner” who was standing
outside of the court smoking. We left.
L
took us down an alley to a cafe next door to her work. I started
talking about my eldest and all that had happened yesterday and said
“it was his birthday and I've been as high as a kite on little
sleep, worry and fear because I thought I was going to be battered
yesterday or I would find my eldest dead this morning” I started
crying. L told me “you look shattered, you should go right home and
go to bed and stay in it till you sleep” She asked my youngest
“can you and your brother fend for yourselves for a couple of days
as mum looks exhausted and has an awful lot on her plate just now and
she needs to get rest, sleep and no more stress” youngest said
“yes”
Me
and youngest got the dart home. youngest told me “just ignore him
when we get home because he's just being a prick” I closed my eyes
on the dart, I could have sleep on a nail I was that tired.
Edel
from Gheel rang me and all I did was cry. I told her “I'm sick of
my eldest and being mentally tortured by him. I feel weaker and
weaker as each crisis comes at me and isolation and lack of supports
are killing me” She said “I will call you on Monday about
supporting you around your youngest” I just want and need a magic
wand.
Later,
my youngest asked eldest if he was hungry, eldest said yes so I made
them dinner. Eldest asked me who the letter was for sitting on the
side, I said a previous tenant. So that is him talking to me again.
25th
February
I
emailed the ex for what I need for next the court case.
“Please
provide bank statements regarding selling your brother, your share of
London property for the next court date attendance in June.
Please
provide bank statements at next court date of the proceeds of
£151,325 from Account Number *******
Please
provide Bank Statement of the proceeds of the sale of English family
home of £49,940 into your English Bank Account ******** It was in
joint names.
Please
provide bank statements of the proceeds of the sale of the family
home in another County in Ireland of €120,000 paid into your Savings Account ******** It was in joint names.
Please
provide Bank Statements from your Business Account
********
Please
provide Bank Statements from your Bank Account Number ********
Please
provide details of the rent you received from the following people
who lived at the family Cottage who claimed social welfare from same
address without my knowledge or agreement: I named 5 people that I
knew of.
I
would also like to remind you that it was your son's birthday
yesterday.
No
Reply
26th
February
I
feel drained and weepy. All is quiet in the house, thank God. I feel
so lonely.
28th
February
Youngest
rang me from school, it's lunch time and he's on his own and didn't
know what to do to kill an hour, he said no one would talk to him,
that it's mental warfare and he wanted to come home, I said okay,
come home.
Text
from Edel from Gheel, she has no time to call me, she will do so
tomorrow. This is a disgrace.
The
solicitor rang me to tell me “we are back in court on June 22nd
to get the arrears sorted out. I've sent three strict letters to his
solicitor but had no reply, I've asked them for all details of his
mental health because he seems fit enough to keep applying for
summons after summons, he will be asked to provide a lump sum at the
very least, Dublin judges are more used to men playing the mental
health card” I said “he has always been mental but he only did
something about it when he was banged up in a holding cell for four
hours” She said “his day will come one day when he'll have no
hiding place and will have to answer to everything”
1st
March
At
the doctor with my back, I have severe muscle spasms, he told me take
extra Xanax as they are also muscle relaxants.
Youngest
rang again from school “no one is talking to me, I tried talking to
one class mate but he walked away, can I come home” I said “okay”
I don't know how he can cope with it all.
Edel
from Gheel told me she will come to the school meeting with me on the
10th and said that she spoke to the school about her attending. I
told her “you cannot talk for someone you've never met so you will
need to meet my youngest first and I'll try and get him to do so”
Only afterwards I thought this is just complete nonsense. Edel is
happy enough to go to a school and talk about Aspergers but not about
my son because she has never met him and here I am reading Gheels
website which states they treat a person holistically, my arse in
parsley they do, there is no sense in them to have even asked to meet
my youngest at all, I had to tell them to do it.
Youngest
rang, he had got to his work experience far too early and asked me
what he should do, I told him to window shop but not to go too far
and to keep an eye on the time so he wouldn't be late. Mammy always
to the rescue, to calm a furrowed brow. I wish I had a mammy.
3rd
March
I
rang my friend, she said “it's all nonsense and the school should
be focussing on nothing else except getting the bullying stopped so
youngest can get his education and not be suffering as he has to on a
daily basis”
7th
March
Youngest
was at work experience in a camping shop all week. I am so proud of
him doing this for himself. He said “I've been on my knees folding
fucking clothes the whole day and I'm in agony” I met him in town
to buy his new converse shoes costing €55.
9th
March
Youngest
agreed to meet Edel from Gheel “as long as you come with me”
We
went to the Burger King in town. He told Edel “I always knew there
was something different about me, I did not fit in, I'm not sociable
but Mum always forced me to be, I thought it was a personality trait
but I've researched Aspergers online and I know that I have it” I
was shocked at what he said, it's the first I had heard all this but
I knew he'd been constantly looking into personality traits of all
sorts online. I have never forced him to do anything at all, I just
always treated both my sons like all kids are raised. So many
professionals have been in our lives and no one ever mentioned
anything. Only when youngest became a teenager did he start getting
strange, but I just thought it was angst, due to all he'd been thru.
Edel said “I am always available if you want to talk more about it”
youngest said “no” We left and I started quizzing him on why I
was just hearing all this now. He said “I did not know how to bring
the subject up” I'm dumbfounded.
I
have all my family home videos to prove that my youngest was sociable
and not forced to be so. He was normal, he was happy, he was always
smiling, he was carefree, he had friends, he was cheeky, he was
adorable, he was loved, he is loved, he is my baby, he was spoiled
because he was my baby. He is still my baby and he does not have
Aspergers Syndrome. No way does he have this. NO FUCKING WAY DOES HE
HAVE THIS.
10th
March
I
had a meeting
with G M the CDVEC Psychologist in youngests school. Edel from Gheel
was running late, she had a crisis at work. I was soaked to the skin
as the rain was so bad. I told the woman “the bullying has to stop
as the trauma of the bullying could force him to leave yet another
school and be at home 24/7 ending up like my eldest and I'm not fit
or able to cope with that” Edel then arrived and explained about
the chat she had with youngest about Aspergers and his specific
needs. We were told “not a lot can be done with no official
diagnosis” I felt like screaming there is not a lot done even when
you have an official diagnosis as fuck all had been done for years
now re my eldest. The Deputy Head said “youngest can use the
library during lunch time to see if it stops him from going home”
I am not happy at all, talking about isolating him to keep him safe
sounds like a fucked up scenario to me. Edel told me to talk to
youngest because him having the diagnosis might make his life easier.
I said “it's funny it did not work out that way for my eldest” I
was being very sarcastic and reminded her that my youngest himself
already told her no but I said I would talk to him.
Head
of year from youngests school rang me “he has twisted his knee and
is in a lot of pain and wants to come home” She told me she had “a
meeting with the school Psychologist V” I asked her “why, because
youngest keeps refusing to meet with V” she said “it's for you
because you wrote on your letter to the school that you're at your
wits end” I said “off course I am, I'm living in hell at home,
I'm living in poverty, I have a son I'm terrified of who attacked me
and chased me out of my previous house with a carving knife, I'm
supposed to have Autism support but all I get is a phone call. I
have a son at your school going thru hell with bullying and is
calling me daily because he says it's now mental and emotionally
warfare and we all went thru that with my ex and I don't know how my
youngest copes with it on a daily basis and he's braver than me
because when I had this with my ex I almost lost my mind” She said
“V could give you support” I asked “can he stop the bullying to
at least give me one less thing to worry about” she said “I
cannot answer that”
12th
March
I
was
talking to eldest in his bedroom, he told me “when I was drinking
water I went blind for a few seconds and shit myself about it” I
freaked and asked him “come to the doctor with me” then asked him
“why when it happened did you not yell for me” he said “it was
only for seconds and it went away” I said “I need to know the
minute it happens again because it sounds serious” He said “okay”
15th
March
Youngest
came home early from school. He said “my knee and hip is bad, I can
hardly walk” I tried to get him to go up to the doctor on his own
but he said “no because I don't know what to say on my own” He
is almost 18 years old for gods sake.
22nd
March
I
managed
to get my essay in to the Open university tutor but I really
struggled with it. I have just one more to do then I will have exams.
I have no chance of passing them.
Youngest
walked out of school again but wouldn't tell me what happened. How
the hell can I fix it if I don't know what happened. I rang the
school but his year head said the class had been out on a trip today
but she would try and find out.
Youngest
eventually told me what happened. He said “I was stopped by the
Principal from going to my locker at break time. I asked him why
because I've done this every day for the past 4 months. I was told
students are kicking the doors in. I asked do I look like I will be
kicking doors in. The Principal said off course not but it's the
rules. I told the Principal the rules appear to keep changing. I then
heard the Janitor say, that one should be a lawyer, he has an answer
for everything, he's very tedious” My youngest was going nuts when
telling me this and was calling the Janitor every “cunt” under
the sun and “how dare he talk about me like that, the staff go on
and on about respect but give none back” He said “a teacher then
stopped me and asked me where are you going and I told her I'm
leaving, going home and she said you cannot leave, it's against the
rules and I replied I don't care and she didn't even have the sense
to ask me why I was leaving or ask me why I had to leave. I was
forced to go to the gym for PE and I wanted to sit in the corridor
away from the rest of the class but I was told I couldn't due to
insurance purposes so I said I'm more at risk of harm from the other
students than I am sitting in a corridor and was forced to go inside
the gym and I was proved correct when R kicked the ball right at me
with force and everyone started laughing so I got up left” He said
“I went into the canteen to order a sandwich for lunchtime and when
I tried to leave I was stopped by a woman who told me, you chose to
come in so now you stay until it it's time to leave, she then told me
three times to calm down and I didn't get it because I was calm
anyway, i just wanted to leave” He said “I need anti anxiety
medication because I'm now anxious all the time, I hate being on
buses and I hate being next to people” I told him “all teens
are self conscious and if you're requesting medication you'll need to
have an assessment first but you should remember all the trouble I
had getting your brother any kind of help and he saw the most expert
of experts and still fuck all was done for him and he's had his
diagnosis since age 15” my youngest was adamant “I'm not going
back to that school, I want you to find me a new school, a decent
school, this is my life and I cannot take any more of this 5 days a
week, 40 hours a week of crap and bullshit” I took him to town
because it felt like the walls were closing in on us.
25th
March
I
was awake
at 4.45am. I am pig sick of waking up so early.
My
youngest decided “I'm going to school because I want to confront
the Janitor about what he said about me” I told him “don't be so
stupid, you're wasting too much energy on this” but it didn't
matter what I said or what advice I gave him, he wasn't listening to
me, he had a one track mind about it, a bee in his bonnet. He
believes he's always right. He is just plain bloody minded and
difficult. He would test the patience of a saint. He told me “Whilst
I'm out, you find out for me the pros and cons of me getting an
assessment done for Aspergers” I told him “the best person to
talk to would be Edel at Gheel” He told me “no but you can speak
to her” I felt like telling him to feck off and do it himself, the
narky little sod, who the hell does he think he is and where the fuck
has my real son gone. He now wants to “transfer schools and you
find a decent one this time because the school I'm at is going to
fuck up my whole life, I'm not getting the education I want and need,
no one could learn at that school and I'm worried that Aspergers will
be seen as having a mental health problem and if you gave a crap, you
would be doing something about all this for me” Yes off course as
per usual I'm doing nothing. Nothing at all.
I
sent Edel from Gheel a text about the assessment, she replied “you
should contact Deirdre as she does the assessments” It's someone
to bloody talk to about the here and now I need to talk about and she
is supposed to be my support. I and we are just another case to these
people, this is just another piece of my heart to break if my
youngest also has Aspergers.
I
rang Gheel Autism (jack shit) Services office. I spoke to the day
centre manager called J. I told him “I need someone to talk to
because I feel like I'm suffocating as my youngest is not acting like
himself any more and I'm worried about him” I got told by J
“Martin is in transit as a passenger so is free to have a chat with
you, not to worry, this happens all the time”
I
texted my friend, she replied “youngests issues are only surfacing
now due to the school environment he's having to cope with” she
said “it's not youngest it's the people around him” and asked
“would youngest like to talk to a young man she knows as a five
minute chat might just answer all his questions” When I later told
youngest all of what my friend said, he replied “nice of him but
no”
I
rang Gheel again. Deirdre's not in till the afternoon. J said “I
spoke to Martin and gave Martin your number and I knows he's free
because I just spoke to him” Not one call came my way and I sat by
the land line in desperation to talk to someone about this huge
change in my youngest and my worry about him. That was just like
Martin, to just ignore a desperate mother once again. The useless
fucking twat. How the hell did he get that job in the first place. He
would not last a minute at the coal face of living with anyone with
Aspergers.
Youngest
was still not happy once he got home. He said “in the English
class, R. D. was looking at S and in a sing song way said “Loner,
loner, you got no friends” the penny dropped with S and he said
“hahaha I get it now. I was called out of the class by Ms K to see
why I'd left school yesterday and told her and she suggested, it may
have been directed at someone else, I told her as I'm the only one in
the class, in the school, with no friends who else would it have been
meant for and you know as well as I do it was at me, so why are you
trying to defend bullies” He said “I also confronted the Janitor
who denied saying anything at all about me and he asked me why I was
undermining him. I told him I'm not, I'm just asking you a question”
I
am sick of this.
I
rang Mount Temple school, no vacancies and a long waiting list.
I
rang St Joseph's, they only take pupils from the local primary
school.
Rang
Deirdre at Gheel again, she wasn't in yet, some bloke took my details
and will pass the message on.
Rang
Edel at Gheel, she was in a meeting, will call me in an hour.
I
asked my youngest to come out a walk with me. I talked to him about
my confusion in the change in him and asked him why he believed he
had Aspergers. He said “it cannot be anything other than this”
and asked me “are you blind” and “how could you not know” I
said “how the hell would I know, I'm just scraping by each day, you
were never like you are now” he said in an argumentative tone “you
better get used to it then” I wanted to scream the place down.
Sent
the ex a text, “I have not received any maintenance, are you taking
the piss” Got a reply “I'm back in hospital and was only talking
to my social worker about that this morning”
How
the hell does that help me.
Email
then arrives from his “partner” she sure does love bit of drama
that one, she should have my life past and present and no future, the
ex must have got her to send it to cover his ass. I find it weird
that he now gets hospitalised, he never did once in all the years I
was with him.
26th
March
“Hi
Friend, Thanks for all your support on Friday, your explanation to me
asking why AS is surfacing now has sunk in and made perfect sense. I
will need to keep separating my experiences with eldest on how I help
youngest. Deirdre from Gheel rang me yesterday afternoon and has been
told about my family, she is willing to come visit youngest at home
and talk over the pro's and con's of having an assessment and
potentially a diagnosis. I have to contact her on Monday then she is
off work the rest of the week so it will be the following week before
she can visit us. I did talk it thru with youngest and he thinks
it's for the best now. He had a dreadful day in school yesterday, he
said he wanted to throw a chair but didn't. I really don't know how
he is coping with it as I personally couldn't, my fear is that he
will explode and guess who will be punished for it. Me. He also
confronted the janitor about what he said about him yesterday re
finding him tedious and a barrack lawyer, the janitor denied it and
asked youngest if he was undermining him, youngest said no, he was
only asking him a question. Bloody hell friend I aint fit for all
this. We had a long chat yesterday and he now knows AS has nothing to
do with mental health but is bit worried about other people finding
out he has it, he said if they are treating me like crap now, so
what's it going to be like if I'm diagnosed. I told him we shall
cross that bridge when we get to it. I'm going to send a formal
letter of complaint to the school as they are not dealing with the
bullying and it has been ongoing for months now. Youngest has looked
at St Joseph's school's website but seems to be drawn to Mount
Temple, he has to make his mind up quickly before the summer
holidays. I am going to have a peaceful weekend I hope, we wont be
going out because the ex again has not paid maint, he says he's back
in hospital, he is a waste of space”
I
gave youngest a letter for school to excuse him from PE because his
knee is bad. I took him to doctor, I'm told it's an osteopath he
needs and it will cost €55.
Eldest
was laughing today because we both only lost 1lb in weight after
being so careful about what we ate. I've not heard him laugh like
that in years. He normally just says lol for laugh out loud.
29th
March
Managed
to sleep till 7am. Youngest was already up. I watched him check then
re check everything he needed about twenty times. He said “I have
the feeling that something is going to kick off at school today” I
told him “stay safe and come home immediately if anyone goes near
you but for god sake think positively and quit being so pessimistic
all the time as it's draining me with you always talking like that”
I've
been thinking about my last conversation with Edel from Gheel when
she was so insistent that she met my youngest alone even tho youngest
said he would not meet her unless I went with him, she wouldn't let
up about it. I ended up telling her “it's his decision, not yours
and not mine” but now I'm left wondering what was behind her
insistence. I trust no professional any more and why should I. I
have yet to meet one who told the truth, who give what they are
supposed to give, look at how my eldest has been left. It's a fucking
disgrace.
Youngest
rang me from school again. He was refusing to sit in the computer
room during his free classes because “the characters of those
already in there is not good” he said he wants to come home. I rang
the school to let them know. He then brought home a letter. The
Principal and Ms K want to see me and youngest on Thursday at 1.30pm.
30th
March
I
rang the school to tell them youngest will not be in today and yes I
will be attending the meeting tomorrow.
I
was on the bus going to Tesco at 9am when youngest rang me asking
where I was because when he woke up I wasn't in the house. I asked
him “where am I always, en route to get daily stuff in for you two”
I
had a long chat with him later about him having an assessment done
for Aspergers. I went to bed early, I have a dreadful headache, I
cannot believe this is all happening again with my baby this time. My
life seems to be bi polar, up's and down's, swings and roundabouts,
some I can cope with, others I just can't cope with at all. The past
few weeks have been particularly hard as far as being a mum is
concerned, nah, scratch that, the last few years have been hard, that
is nothing new for all mum's but fuck me, it's all becoming too much
to take, just me, just one person. Youngest for many months now has
tried to tell me he too has Aspergers, no way on god's earth was he
going to have this as far as I was concerned. I told him to quit
googling stuff to label himself and every other bugger with
something, he has also said he has this, that and the other
personality disorder because he keeps doing online quizzes, I told
him if he googles any health matter it will convince him he has a
serious illness, I got a mouthful of abuse from him.
He
then told me why he believes he also has
Aspergers and told me “you're in denial” I told him all I have to
compare it with is his brother and no way is he like that, well not
yet anyway but as I explained to the school it was traumatic
experiences that had my eldest tip over the edge and not leave his
room and I will not stand by and watch that happen to my youngest. I
will go insane if this was to happen again.
Youngest
then kept persisting, insisting and I still refused to listen,
acknowledge or accept, what sane person would, what sane mum would,
what mum would want this for her beloved child, her baby. He has
witnessed with his own eyes, heard with his own ears all eldest has
said and done and the effect the past years have had on me, of course
I don't want him to have that same diagnosis, who the fuck in their
right mind would want that for her baby, the last child I would ever
have, the beat of my heart, the light of my soul, the ducts of my
very eyes, the spark of any flame within me so I wouldn't listen to
him, this cannot be true.
For
two years after dreadful, sickening, bullying that his previous
school did jack shit about, despite my letters of complaint to said
school and to the board of management and to the authorities of this
country, nothing was done, the Principal retired so that was the end
of that and so my baby turned into a shadow of his former self and
stayed at home for two long years with no socialisation, no friend,
no outside of home hobbies, nothing. He told me we didn't know where
we would end up housing wise which was true so he saw no point in
going out and about and taking part in anything so he was by my side
for two whole years, it didn't help that there were no school vacancy
for him in our locale either but as a very intelligent boy he sat his
junior exams as an external candidate and he sailed thru them. He
really is an amazing son but the signs I refused to see, could not
see were there, just waiting to evolve like a cocoon waiting to burst
forth.
He
had returned to schooling and was getting on brilliantly but once
again bullying started, physical and verbal at first, he was re
christened “prick” then completely ostracised by all his peers
for reporting it, I have no clue how this wonderful son of mine coped
with this day in and day out, I know I could not have done so, I
would have gone ballistic or retaliated and I've asked him why he
hadn't and he explained his panic, the previous serious episodes of
violent bullying that has left him with scars external and internal
that had really impacted on him but what was worse was the lies the
adults at the previous school told so they could just simply sweep it
under the proverbial carpet as “accidents” because they were too
damn lazy to do anything about it and after all my son was the
newcomer, the outsider, so much easier to fuck him out of an
education than have that cowardly prick of a Principal face any
gurriers parents. Scum of a place that was. I
remember going with youngest to the Gardai and he made a formal
complaint re the three assaults but this Garda J. C. who saw youngest
and took his signed statement then became the invisible man despite
many visits and follow up calls to see what was going to happen next,
what chance do we have with this very slack attitude. All they do is
protect their own and never uphold the fucking law, it is a farce.
But, this will not be swept under the carpet, I will make damn sure
of it.
I
truly believe that humans do not care about their fellow man any
more, I find that very sad. I am very sad and honestly now have very
little strength left in me any more, my spirit is dimming at a rapid
rate and I feel like giving up but I won’t as there is no one,
absolutely no one for my children, they now have only one parent,
have indeed only ever had one parent all their life despite having
their father in their lives until age 14 and 12, they didn't ask to
be born and certainly not born with a disability so I hope I can
continue to put one foot in front of the other despite how I now
feel, old, tired, drained, my own life as I would have wanted it is
over, my dreams quashed because the life I want to live is not mine
to live at all.
Youngest
has requested an assessment re a diagnosis of Aspergers, he said he
will talk it thru with the professionals, he wants the pro’s and
the con’s to see if he can be helped and what impact having this
will have on his future life as he doesn't think he will be able to
get to America if he has a formal diagnosis and sadly of all “will
it make people leave me alone” because all he wants to do is attend
school, get his education and sit his exams.
I
honestly do not know what my reaction will be if he's diagnosed with
Aspergers, I feel broken hearted to have burdened both my son’s
with their life so far but can say hand on heart that I did my utmost
for them in every way imaginable, there is no thanks with this
condition, every day is a mine field that has to be negotiated as to
eldests mood so it is pretty stressful with no let up and no other
life, I did not sign up for this and feel aggrieved but what the hell
can I do, nothing except just get on with it and hope for the best,
just try and get thru the hour and the day with no screaming abuse
from eldest and no threats either, not a fucking lot to ask for, is
it?
Hope
is what keeps humans going, without hope we have nothing to get up
for in the mornings, so today my youngest has his first meeting to
discuss the pro’s and
the con’s of an Aspergers assessment and diagnosis and I'm secretly
hoping he doesn't have this condition but I'm telling him it’s all
okay and said to him so what if he does have it, he's still my boy,
still my baby, still my shining light, my inspiration, my beloved
youngest child but I shall probably go to pieces if he is diagnosed
with it. My long gone teenage, stamp my feet, my shouting of fuck
this for a game of soldiers and bang my head of a wall persona wants
to run away and hide but how can I? And tomorrow I attend the school
re the bullying, my third meeting so far, what I do want to do is go
into the class, stand on a desk and rip them all to pieces verbally,
to give them a taste of their own medicine and see how that goes down
but the mature adult in me and not the mammy that wants a pound of
flesh will have to attend instead and try and contain myself however
difficult I will find this.
I
went to bed early, I have a headache, I cannot believe this is all
happening again with my baby this time.
31st
March
Woke
up at 4am. I sent Edel at Gheel an email re all that youngest had
said about getting an assessment
“Hi
Edel, youngest and I had a long chat yesterday after he met with you
to discuss the pro's and con's of potentially having Aspergers
Syndrome, he asked me to give you his decision about it. He spoke and
I wrote it all down: He wants to go ahead with the assessment because
he knows he has A.S. He says he has not felt this enlightened around
any other character trait (?) he believes the positives surrounding a
possible diagnosis outweigh the negatives of which he can think of
none. He believes the positives are: “Being treated accordingly,
each to their own ability, each to their need" (Karl Marx) He
believes “I will no longer be treated nor spoken to nor expected to
be like the rest of the herd as I am not part of that herd because I
know I am different, I know I think differently and will not be
thought of as arrogant any more” Despite the fact that this is not
what I want, expected or believed my son to have, I am only the
mother after all, what would I know. I have to respect his wishes.
It must have taken a lot of internal energy and courage for all this
thought and now decision to come out of him so he would like
arrangements made asap (he has no patience) for any assessment and he
is now happy to go ahead”
I
need to find out the whole of his side of the ex's family medical
history for both my boys sakes, I know for a fact that my eldest has
more than Aspergers. I've been on enough websites and spoke to many
online who have Aspergers themselves to know they are not all
explosive, they would not dream of abusing their mothers. I sent the
ex a text asking if he was able for a chat because I needed a quick
word with him. No reply. An hour later I rang and he cut me off after
three rings. I sent a text saying it's urgent as I have a meeting to
attend about youngest and I need all your side of the families
medical history”
He
rang me and said “I'm still in hospital” I asked him “why”
he said “I do not want to talk about it” I asked “is it
depression” he said “yes” I asked “can you give me your
family history” he said “my father had Manic Depression and was
an alcoholic, my brother as you know is schizophrenic, I do not know
about the other two nor nieces or nephews” He said “you are
wrong about youngest having Aspergers” I said “I'm not the one
saying he has it and it's not been confirmed but he's to have an
assessment” then I said “how would you know anything about him
because you ignored his very presence growing up and do not know him
as an adult either” I told him “you've failed to give me your
own medical history and we have the right to know given the problems
my kids have” He asked me “is that all about youngest” and hung
up on me, the self absorbed twat. He did not even ask about eldest
at all or how youngest was doing. Waste of space he is.
Youngest
is very upset again, Mrs O in the canteen would not let him leave,
she told him “look at the notice on the wall” youngest told her
“I don't give a fuck about any notice. He told me “she had her
back to the door and wouldn't let me out but other pupils came in so
I shot out when I saw an opportunity” He walked out of school and
rang me from the street, he was out of breath and so upset that he
was crying. Fuck, we really need help.
I
sent Edel of Gheel a text saying “it's urgent” She rang me. I
was upset because I feel impotent as to how to help my youngest. It's
at times like this I wish I had a car, I wish I could drive so I
could get to him immediately. Edel said “it sounds like a panic
attack and the staff at the school need to be educated around his
needs, Deirdre is off till next week and I will get you a date for
his assessment and call you with it” She again said “you have a
new Disability Manager because you have moved to a different area so
will have a different Disability Manager” Gheel knew we had
changed our address so why did they not contact anyone or let me know
in December 2010, I have no idea. And it is all nonsense because we
are living in the same postcode. More delaying tactics I suspect. I
told her “that is nonsense, it's still the same post code” She
said she would double check but this is what she has definitely been
told. She said she would talk to youngest because Deirdre after
saying she would meet with him went on leave, so Edel and youngest
have met twice now, once as an introduction and once to talk about
the pro’s and con’s of an assessment and diagnosis which left
myyoungest with more questions than answers.
We
had met up at Supervalu and to take the onus off me and my continual
need to “talk up for son” according to Edel, I decided with
youngests permission that I go walkabout and leave them to it, so I
did and sat in the local chapel for 50 minutes, I was freezing cold.
My childhood upbringing saw me pray using my fingers, saying decades
of the rosary, over and over again, my mobile phone clasped between
my hands for when youngest contacted me to say he was finished
I
have an active, apparent third eye, I see things when I close my
eyes, like a TV screen in my forehead but I'm not asleep, I see faces
I do not recognise, places I have never visited, so as to be
expected when you stare at something long enough you will see a
trick of the eye and I did but I'm not
going into it.
I
love chapels when they are empty, I admire the architecture, the
building of such a huge place that looks small to the outside world,
built by the hands of the poor filling the plate that goes around the
congregation from aeons ago for whatever they could afford to the
detriment of their household, no one said getting into heaven was
free or easy, did they? I watched the locals do their thing, clean
around the candles that now cost 20 cent, they were pennies when I
was a child, I watched them whisper and then not be so quiet and
wondered who they were discussing, we all have someone to talk about
and I stared at the gigantic cross and let my mind wander.
I
prayed that youngest would be okay, I prayed for eldest living in his
own hell that I'm not privy to, I prayed that we could get funds from
somewhere to furnish the house that has not yet become a home because
it’s bare. I prayed I could find extra funds for youngests upcoming
18th
birthday that
I so want to commemorate in some way. I even prayed that my stbx
found peace in his heart and mind as I have been informed that he is
yet again in the local psych unit, why I have no bloody idea as in
the 17 years I lived with him he never once was hospitalised.
Then
youngest rang me, he was finished, was ready to leave and I told him
where to meet me. I was shivering with the cold yet the sun was
splitting the trees outside. We said goodbye to Edel who has been in
my life as my key support worker for a few months and then youngest
and I chatted on the walk home. He is adamant he has Aspergers, he
said it fills in all his blanks, the way he talks, the way he thinks,
the way he feels, he said he has not felt as enlightened before, he
believes the positives outweigh any negatives and he cannot think of
any negatives at all now, he said he believes if he gets a diagnosis
he will treated “according to his ability and his needs” (a Karl
Marx quotation) and will not be “treated as part of the herd
because he is different or thinks differently” that he will no
longer be thought of as arrogant. I wanted to say good luck son but
life aint like that, people aint like that, fuckers will always be
fuckers and they are on every street corner and there is jack shit
you can do about it but I swallowed down my true feeling down, I just
let him talk.
When
we got home, I had dinner to make, I wanted to escape, to blow off
some steam but the only steam I had was coming out of my ears, no
chance of forgetting who I am or what I am in this life time, chin
up, chest out, smile on and light and airy voice switched on, who the
hell am I kidding? I want to rant and rage, scream and shout and
curse like a fucking trooper, this cannot be fucking happening yet
again, IT'S NOT FUCKING FAIR ON THEM OR ON ME, IT'S NOT.
I
realised I've had a headache for 3 days now, lack of sleep and worry
will do that, leave you foggy, heavy, I get to sleep okay, it’s
staying asleep that’s my recent and recurring problem, I have exams
coming up but fuck that, it’s just another qualification that will
come thru the post hopefully that I cannot even afford a frame for so
I have pushed even the thought of exams to one side.
Youngest
woke up at 7am, he asked me again what the meeting today was all
about so I reminded him and off he went to school.
Youngest
rang me, he stormed out of school thru the emergency exit, every day
there is new problem to be solved and I hate dealing with all this
crap. He got in a panic, a staff member tried to stop him from
leaving and he freaked and exited.
The
school meeting was postponed by the Principal until the afternoon now
and I'm running on empty, I've been awake since 4am and I'm
completely knackered.
Youngest
arrived home and he was very angry. I gave him a hug and he told me
how it all began. He hates being around too many people and said he
was stopped from leaving the canteen, understandable because it's the
school rules but he freaked out and told the person present what he
thought of the rules and escaped thru the emergency exit door in a
blind panic then called me and walked home. As usual I told him the
other side of the coin from the school's perspective but all he could
see was his perception of events. He insisted that he should not
have been barred from leaving because anyone could clearly see he was
having a panic attack, He
was ranting and raving, he said he had a panic attack which was
clearly obvious to anyone who seen him. Eldest heard him and told him
“no, you may think others can see it but they can't, the only one
who knows it is you so stop being a pussy and a wimp” Youngest
told him to “fuck off and stop being a cunt” I shouted at them
to stop. Youngest said he's not going back to school and told me “Ms
K is off so how the hell can she attend any meeting” I rang the
school and got told someone will get back to me. I got youngest to
come to Tesco with me, we both needed fresh air, a change of scenery
and change of atmosphere. It didn't work, he did not halt for breathe
once, talking constantly about how “everyone is retarded at that
school” how “they are all scum” I do not know who this boy is
at all when he is like this. He should hear himself and hear how
crass and idiotic he actually sounds.
I
gave youngest money to buy me a card and flowers for Mothers Day.
I
woke up at 4am again this morning and sent an email to Edel from
Gheel saying youngest wants to go ahead with the assessment and I
cannot stand in his way because he is almost an adult, not in my eyes
he isn't as he is still my child. I'm not a mother who wants to keep
her kids tied to any apron strings, my humorous attitude that both my
son’s know about are that kids should be sent up chimneys at age 5
as that is when they are fit for work (joking) Joking aside, I feel
sick with fear for him, I do not want him to have this, it has been
said he will still be him but WTF it is not fair, my child seemed to
exit left and this new person has entered and although he still at
times seems to be my loving, thoughtful, sensitive, beautiful child,
my baby, he can also appear to be this stranger who has no thought
for another, he shoots from the hip, quotes like an academic, looks
down on everyone, including me and I wonder where the hell my baby
has gone, who is this elitist twat and what hope is there for him and
for his brother. Without any hope, we are fucked, totally fucked.
I
wrote a letter of complaint to the school yet again, the physical
bullying has stopped but then he was ostracised by the whole class,
the last person to do this to him was his dad, he just completely
ignored his very existence, I did inform the school that this was the
case and I could not stand by and watch this happen, my biggest fear
is he tips over the edge like his brother and his life is simply
destroyed as is his brothers, they called us both to a meeting. So
from 4am I hummed and I hawed and I argued as in them and as in us
and still could not see a positive outcome so I went on Face-book and
played silly games.
1st
April
School
meeting. We were sitting in the small waiting room and the Principal
came and asked if he could speak to me alone for a few minutes. I
went into the corridor with him, he said “can I bring the school
psychologist into the meeting” I asked “why, when youngest has
repeatedly said he will not meet with him, so why the underhand way
of doing this then but luckily I'm one step ahead of you and have
already told my youngest that you might do this” The principal
said “I would normally have G. M. but she's off sick and Ms K has a
doctors appointment” He took us into a room and I met a little
man, like a wizened old wizard he was.
Principal
– “Do you have any hope for us”
Youngest
– “No, anything good about this place has all now disappeared”
Principal
– He explains “why rules are in place” and “why you cannot
just wander around the school, due insurance reasons”
etc.
Youngest
– “The whole reason for breaks are to prepare yourself for the
next class, gather your book, go to the toilet”
Me
– I explained about the up coming assessment for
Aspergers and about the meeting with Gheel.
Principal
– “Best news I've heard if he's getting assessed, we can get an
SNA when necessary for breaks etc, help with his different
needs”
Me
– “Sounds good but also sounds like he needs a body guard,
why would he need one”
Youngest-
“Does not really sound good”
Psychologist
- “If you need to be different, you have to realise that insurance
in a school is a one size fits all”
Me
– “Explain what you just said by “if you need to be different”
would you say that to someone sitting in a wheelchair”
Psychologist
– “No I'm explaining about insurance”
Me
– “What has insurance got to do with him being bullied and not
feeling safe in this school”
Principal
– “As far as PE is concerned you can just skip those classes if
it makes it less stressful for you, just come into school late”
Youngest
- “I question authority because I know the adults cannot hurt me
but my peers can and will and have”
Psychologist
– “We all push it a little too far but we all need consequences
or we do not learn. Mrs O is very upset at you being so verbally
abusive and has written a complaint”
Youngest
– “I had a panic attack and had to get out”
Psychologist
– “We need to find some focus for your talents”
Youngest
– “I know what I want, I have it all mapped out. You talk about
consequences but there is none for those who have bullied me”
Psychologist
– “There is a huge amount we can offer at this school. Yes, you
have been bullied but we are doing things to try and stop this”
Me
– “It's obviously not working then, all talk about trying to stop
it, how about actually stopping it”
Youngest
– “All I want to do is get my education, I should not have to be
forced to deal with this situation in the first place, it's
psychological bullying too”
Principal
– “I know, give me some credit. The psychological bullying seems
to be done craftily. If this was a court of law, I would be laughed
out of the place as it cannot be proved”
Me
– “Are you serious, it's a school, you're in charge, youngest is
not making this up”
Youngest
– “R. D. seems to have a personal vendetta against me for some
reason”
Principal
– “I had similar problems at school and I retaliated, would you
be interested in learning how best to respond”
Youngest
– “No”
Me-
“Are you advocating he lashes out. He has already explained why he
can question authority but not his peers”
Psychologist
– “You need someone to talk to, the worse thing would be having
no one to talk to”
Me
– “The worse thing is the whole class will not talk to him, they
have sent him to Coventry as a punishment, do you know how this
affects a person, affects my son, it's a disgrace, he is braver than
I ever will be putting up with that crap”
Psychologist
– “If you do not engage with anyone, you will be vulnerable and
it's going to upset your performance. Whether you do have Aspergers
or not, you should know that respect works both ways”
Youngest
– “My opinion of these people has been soured, I do not and will
not re connect with these people”
Psychologist
– “You have crossed the line on occasions, you have an attitude
of “I have Aspergers so I can get away with these things”
Me
– “How bloody dare you talk about my son like this, have you any
idea what Aspergers actually is”
Principal
– “V would have a lot of experience of this. All schools have
problems. If we had an assessment then we could put higher academic
learning in place for you. Will you try our solution, will you give
it a leap of faith, I will admit I was a bit sneaky bringing V in but
he's the man to talk to, I have over 60 pupils waiting to see him but
I'm offering you this chance”
Youngest
– “I cannot physically talk about this, I cannot survive in this
school”
Psychologist
– “I can see he is a ruler type of guy, he wants to defeat others
but in the long run he only defeats himself. He knows what's right
but he takes all a little too far. I would have a worry that he has
oppositional”
Me
– “So you have just diagnosed my son after a ten minute meeting
when he is clearly stressed about having had to even enter this
school”
Principal
– “we have only 7 weeks left in the school year, why would you
want to leave now, it's only 2 weeks till Easter then 5 weeks till
the end of the school year”
Youngest
– “I cannot physically keep going, the problems are all within
this school”
Principal
– “My advice to you would be go see V here on Thursdays, give him
half an hour, get to the end of the year, you can stay in my office
during breaks,you can order your sandwich at 8.30am but if you are
using school facility you need to abide by the rules”
Youngest
– “No”
Psychologist
– “Jesus, sometimes you are a big whinger, all things can be
worked out. You're some man wanting your own way all the time, keep
your battles for the big stuff, stuff that is worth winning, even if
you don't want to talk to me, just meet me and eat your cereal in the
same room as me. You are looking for help but are then rejecting all
offered to you, you reject and complain, you have got into a pattern
with this type of behaviour. It's never right for you, it never will
be right for you but you do need support, you are tough and
determined and you do have coping abilities”
Principal
– “I see you as a Barrack room lawyer, you will always figure out
a way around things, I disagree with your mother here, you are fine
able to talk, I don't always like what you have to say though, would
it help if your mum was with you when you see V”
Youngest
– “No, I have told you many times, I'm not seeing him”
Psychologist
– “It's his way or the highway”
Me
– “Do you have a problem with my son. The way you are talking
about him is not on, do you think you are helping in any way because
I certainly do not”
Psychologist
– “I just say what I see”
Principal
– “I'll feel we have failed you if you leave without the solution
being sorted, take tomorrow off, ring new schools but if you just sit
at home then that will be a huge waste of your abilities. Why do you
always see the worst in people”
Youngest
– “I do not”
Psychologist
– “Your problem is getting on with your peers, that is your
issue”
Me
– “youngest was getting on with his peers till they decided he
was easy meat and easy pickings”
Psychologist–
“I think you would be happier here with what you know. You're
caught in a trap, looking for evidence of all against you, you need
to give and take, we can't be wrapping you up in cotton wool for
god's sake, all we need to do is have a chat about it. You have huge
oppositional issues”
Principal
– “What you are going thru is bad but other go thru much worse, a
lot that has happened would be typical behaviour for this age group.
I would be worried that there is no other school place for you, you
could be in the same, if not worse situation elsewhere. Just think
about it, that’s all I ask, you think about it and let us know”
My
youngest was getting restless so I said that we had to go. He started
ranting and raving as soon as we left the room, I told him “go back
into that room and tell those two in there instead of me” He kept
going on about “the fucking retards need the Psychologist not me”
I switched off because he was driving me nuts. If he put as much
energy into meeting people half way instead of ranting and raving
then he could sort all this out.
3rd
April
My
youngest gave me beautiful flowers and the nicest Mothers Day card
written personally from him that had me bawl me eyes out, my surprise
at the words he wrote really touched my heart deeply. I felt so loved
for the first time in a long time. I wish it was like this all the
time. This was my son back, I hope he stays. The other side of him
drains me. If I had the choice of a lottery win or his written words
to me today, I would rather be financially poor the rest of my life.
Eldest asked me “Is it Mothers Day” I said “yes” and that was
his only acknowledgement of what day it was. He did tho also sign the
card.
My youngests hand written words to me for Mothers Day
"I have never been good with words so decided to write you a letter to say how much you mean to me. For all of my life, you were all I had, the one I depended on, for everything. Even when I was a child I knew you would always protect and love me, no matter what I said or did. I've always admired your patience and articulation and wish I had half as much as you do. I used to think you were invincible and that nothing could hurt you. You weren't like other mum's, you took the world on and took everything in your stride. When things blew up in your face, you remained cool and tried to piece things back together again, making the best of things. You never let anyone see you crack. I remember the first time I saw you crack, I just wanted to make it stop, you're my mum and nothing should upset you. I now know that you're not a robot and just as human, just as fragile as the next person but it still upsets me to see you hurting. You deserve everything in the world because that's how much you mean to me. For all your hard work and dedication over the years, I want to let you know that you are appreciated and I couldn't have chosen a better Mum"
How
much do I love my kids? As much as all the stars in the universe, as
I used to tell them when they were small.
The
definition of love from the dictionary is “a deep, tender,
ineffable feeling of affection towards a person, such as that arising
from kinship, recognition of attractive qualities or a sense of
underlying oneness”
Love
is a word that is also used so easily and often. The greatest songs
ever written
have
been about love, the best films ever seen have been about love, the
most anguished poems have love as their base and love apparently
makes the world go round.
The
love a mother has for her child can move mountains, lift vehicles,
give her life for, go hungry for, die for but not all mothers feel
the same and their personal circumstances come into play, take my own
mother, she had five children and did not raise one of us, that is
abhorrent to me, I cannot imagine, decipher the child I gave birth to
being out of my arms during their early formative years. I bear the
woman no ill will, I met her twice, all woe is her, nor her fault
then poof, she disappeared again like the genie in her own proverbial
lamp. It means I have never uttered the words of mother, mum, mammy,
mam, ma, ever in my life, not ever which I find weird as it is
practically the only name I have been called for half my life, I just
realised this now with my ramblings.
My
own definition of love is: Never having to say you are sorry (I stole
that from the film Love Story) and by this I mean you should do
nothing to upset or hurt someone so bad that you need apologise. Love
should mean you do not hurt those that you love. Love should not be
egotistical, there should be none of the, if you loved me you would
do x, y or z. That is not love, that is blackmail and I'm guilty of
doing that same thing when I was much younger and I've also been on
the receiving end of it too, it makes you feel cheap and used. I
personally think that love should feel easy, comfortable, happy,
alive, joyful, sincere and honest. Or perhaps I'm mad after all and
just talking crap.
I
love my children, those words sound so hollow, so empty, just words
but bring emotion into play and I know that I would die for them,
kill for them and I mean that literally yet I do not kill insects. I
would beg, borrow and steal for them but luckily I have never had to.
I would do anything and everything in my power to ensure their
safety, happiness and well being. I am like any other woman around
the globe, I am a mum, you can scratch my surface and I may let you
see but you scratch my kids and you will definitely see, my warts and
all. Woe betide you suffer my wrath, which is an insight as I in the
past could not say boo to a ghost, the embarrassment of defending
myself or arguing with anyone in public always stopped me from doing
so and I kept myself awake for so many nights in my teens and 20's
and 30's going over and over in my head “incidents” where I
should have and could have and wished I'd said this, that and the
other to the other person when an incident happened. It wasn't fear
that stopped me as my vocabulary has always been extensive, it was
embarrassment but after all that has happened since 2006 and the lies
I've been told to my face by those who are esteemed in apparent high
circles, well, that just takes the fucking biscuit and no mistake and
how dare they. I will not and I have not and I will never put up with
LIARS, as the Scottish say “that gets my dander up” I believe it
may stem from my own childhood of awaiting a promised visit from a
father who never showed up.
More
ramblings from moi.
I
rarely lose my temper, I deal with everything with my swift verbal
responses, which I admit can sound aggressive but I only get that way
when I lose the plot completely, a bit like continually prodding a
sleeping dog, it can only take so much before it gets fed up and you
don't listen to it's growling warnings and you act appalled when it
bites you, well I'm like that but verbally. I would never go out of
my way to hurt anyone with my words, I consider myself to have tact,
diplomacy, decency and kindness but like the prodded dog, I will
verbally explode when enough is enough but I rarely lose my temper
for myself, maybe I do not hold myself in high regard at all.
My
mouth and my extensive vocabulary has got me thru life but always
with tact until I was pushed too far which up until 2006 was always
only in defence of anyone I perceived as being the “underdog”
When
I moved to London with my first partner in 1982, he lost his job had
to sign on near Kings Cross which was like a meat market waiting to
sign on but I always went along to keep him company. An elderly man
was in front of me and I engaged him in conversation as I always
found so easy to do with anyone. A man that should have known better
as he must have been in his 30's or 40's, it was hard to tell as he
was a skinhead with pock marked facial skin and for no reason at all
he pushed the elderly man away to the side of the queue and I was
incensed, I gave that brute the biggest shove I could and he went
flying. My partner at the time was fuming because he thought the
bloke would turn on me and so him but he turned into a pussy cat
after I gave him a ripe mouthful as only the Scottish can, he
probably didn't understand a word I said but he got the gist as he
was putty in my hands after I shoved him and I took the arm of the
elderly man until it was his turn to sign on. If
anyone fucks with any underdog my inner tiger appears but I did shag
all to ever stand up for myself.
4th
April
I
had to cancel my interview with a charity because my youngest wanted
to go to the doctor. I took him to the doctor and youngest told the
GP of his fear of the students, the panic attacks he's had at school
and the anxiety he now gets at the mere thought of attending school,
he was given a sick note for a week and told to come back if he
needed another sick note (a huge difference from how the doctor
treated his brother) he also offered him anti anxiety meds and then
suggested waiting till after his assessment was done.
5th
April
Up
early to go into town with youngest to get his work experience form
filled in as the school needs it. Went up to the charity offices for
my interview, I'd got the day wrong, it's not till Friday. Doh!
Deirdre
from Gheel rang me, she said “I will come to the house next Tuesday
at 10.30am to have a chat with him to get his views on why he wants
an assessment and what he thinks will be achieved if he has a
diagnosis of Aspergers” which I thought straight away was a bloody
odd thing to want to be asking. I told youngest and he wasn't happy,
he said “I've already had the chat with Edel from Gheel and just
want to get on with it ASAP” Deirdre had said “it will take 4
hours admin time so I would like to chat to youngest first” As
soon as I'd finished talking on the phone with Deirdre, youngest
relaunched his ranting and swearing “I already had the chat two
weeks ago, Edel couldn't answer any of my questions, she just kept
saying I needed to talk to Andy or Michael about it, I wants to know
why they're stalling, wasting time, wasting my time and when the fuck
are you going to get me a new school” Ungrateful little shit, I'm
doing all in my power to help him with everything.
Rang
Education Welfare, they only deal with pupils up to 16 years old.
FFS.
Youngest
will not shut up, he's like a frigging broken record, on and on and
on and on and on and on and on and on and on and on about time
wasting, he feels “Gheel are just time wasting time till I get to
18 then no one will help me just like no one helped my brother. I
will be left just like he's been left” He said “I need a new
school now because they will have to treat me according to my
abilities and needs and that is why I needs the urgent assessment”
I told him “tell all this to Deirdre not me because you are giving
me a bloody headache”
I
cannot do this again, I cannot watch another child of mine go thru
“stop the world, I'm in hiding mode” I cannot allow it to happen
but I don't know how to stop it, no expert is telling me how to stop
it, it feels like we really are out in the cold and on our own after
everything that has bloody happened and case conference meetings. I
knew and I predicted that it was a crock of shit and no one, no one
cares at all. I am dog tired of this, I am bone weary of it, a cold
fear is seeping into my heart. I now know that I'm not meant to have
any life of my own, why and who decided is beyond me. My rattling
train of thought the other night when I could not sleep
chugged...this is it...this it it...this is it...this is all it is
ever going to be. My kids may be grown but they need me as much as
they always did. My eldest depends on me for everything, cooking,
cleaning, I even run his bath for him. I sometimes wonder if it's
mammy syndrome or a blatant taking the piss from him or easier for
him or me. I do confront him but only in my head, I'm no longer brave
enough to do so straight to his face, it's supposedly a low arousal
technique, keep all hunky dory, do not react, retreat if necessary,
so writing this down is my way of SHOUTING it all out of me, of how
much I fucking hate having to live this way, cope this way, hurt
inside this way and cope ALONE.
6th
April
UPC
cut me off because I still owed them €80. Eldest roared at me “get
it paid now, use my money and never, ever let this happen again” I
felt like telling him to fuck off out of my face, who the hell does
he think he is talking to me like that.
Youngest
is again in my ear asking me “how long till my assessment” he
says “I need it so I can take it to the doctor and get anti
anxiety meds so I can go to school” he's asking me “will I get
it before Easter” I told him “I don't know does but does that
mean you will go back to school then” he said “I don't know”
God give me frigging strength. I told him I'm not the person he
should be talking to re his anxiety so I made him an appointment with
the GP, he said he did not feel he could talk on his own so he wanted
me with him.
Into
the GP we went. I explained why youngest was there and the
possibility of him also having Aspergers and the school bullying.
Youngest then spoke after the GP had been filled in by me. He got a
sick note. The doctor wished me luck as we left. I said it's not luck
I need, it's a magic frigging wand, he laughed at that and I thought
I could see pity too, have I yet again been walking around with my
eyes shut re my kids and this Aspergers.
I
need to write a letter to the school with a copy of the sick note. I
need to email the Advocacy lady and also my friend. At this moment in
time, they are the only people I trust enough to lay all my
proverbial cards out on the proverbial table.
7th
April
Took
youngest to the cafe, had a lovely slice of cake, it made a nice
change but he ruined it by moaning, complaining and bitching about
“not going back to that cunting school” I got mad at him, and
told him to “give my head some bloody peace and quiet”
8th
April
Interview
with a charity so I can get out of the house and volunteer. I was not
expecting to be in front of a panel of three people but I got on
great and made them laugh.
Rang
the doctor for another sick note for youngest so the school would not
de register him yet.
No
maintenance been paid. For the love of Christ, what will make that
low life pay for his kids.
A
call from the Principal acknowledging receipt of the sick note but
asking when youngest was coming back. The sick note is for one week
to take the pressure off youngest and me too to give him some time
and for me to try and make him see sense and hopefully return to the
school with supports in place. So why is the bloody Principal on the
phone after day one of the sick note. For fuck sake. Some people have
no common sense at all. All higher education places should be
teaching everyone to have common sense and handing out degrees in the
subject, it sure would save a lot of bullshit in the long run.
9th
April
Youngest
is pissing me off big time with his bitching and moaning, it is non
stop, he will not let up, he has nothing nice or good to say about
anyone at all. He is the biggest emotional vampire I have ever
encountered, he can drain all happiness out of me in nano seconds. I
ended up shouting at him “you have two choices, either go to school
or don't go to school, piss on the potty or get off it” He had the
bloody sheer cheek to tell me “you don't give a shit about me” I
told him “that's my main problem, I do give a shit and far too much
and I wish to god I didn't because you are bombarding me every waking
minute and continually sucking what bit of spirit I have left in me”
Had
a college day for my exam study. At the moment I have not a chance in
hell of passing anything because I do not get a minutes peace to be
left alone to study.
10th
April
I
have 10 days to come up with a miracle to get something for my
youngests 18th
birthday. No fucking maintenance is being paid at all.
11th
April
Forced
to send a text to ex re no maintenance. Reply at 12.57pm “Still an
in patient, having difficulties sorting out welfare, my social worker
has organised an emergency allowance, I'm picking it up on Wednesday”
I
checked his girlfriends blog, she posted a photo of their dining
table with their dinner on it and a bottle of wine was the focal
point in the middle of their table. I am full up to the back teeth
with his bullshit.
12th
April
Deirdre
from Gheel was here at the house for two and a half hours. She said
“youngest fits the criteria for Aspergers” I burst into tears in
front of them both, youngest gave me a hug, Deirdre said “it's
still him” but she knows nothing, she knows fuck all. My youngest
flits in and out, the other side of him has taken over 80% of the
time. I am broken hearted, I was secretly hoping it wasn't true. How
can it be true, how can my baby change as quickly as he has done in
every way possible. He is not the boy I know and love and adore and
would die for, he went downhill fast after the bullying in another
County, he isolated himself. My friend had said it usually presents
in teens when hormones kick in, no wonder no one knew what youngest
had, he didn't even know himself so how the hell could I have known.
It feels like I have this stranger who has taken over my son's body
living with me and I want my baby back. I WANT MY FUCKING BABY BACK.
We were always so close, he was always the spark in my life, my
reason for breathing, my side kick, my buddy, my friend, my beloved
son and I want my baby back.
Deirdre
from Gheel said she would be back to do part two of the assessment
but she wants to see youngest on his own. She wants his history and
the time line of his childhood. I have it all written down anyway
because I've written baby journals in letter format from pregnancy
for both my sons so I just have to type it out and send to her.
I
couldn't see what I was typing from my hand written baby diaries due
to the tears pouring out of my eyes. I am finding this so difficult
to accept. Why can no one see what this is doing to me, do they even
care, I doubt it. If anyone did care enough to ask I would tell them
I feel like I have been hit by a runaway train that continued to drag
me along until the train decided to stop, leaving me skinned raw, all
my senses seem heightened yet numb, I find it very difficult to
describe, everything appears to be rushed yet I seem to have slowed
right down, I have stopped still whilst life goes on all around me,
this must be what shock feels like. I just cannot believe it. To be
told, ah well, yes your baby has this life long disability that
caused your life to change so drastically and so isolated with your
eldest son, this disability that means there is no let up at all with
constant verbal abuse, threats, demands, threats of violence and
actual violence but don't worry your baby is still your baby and we
shall see him again in a couple of weeks to finish his assessment,
bye, bye and off she went. I AM INTERNALLY SCREAMING THE PLACE DOWN
WITH A HEART BROKEN INTO A MILLION PIECES, BATTERED, TATTERED, BEATEN
DOWN TO A PULP. Someone, somewhere, anywhere, please fucking help us,
help me, for Christ sake, please help me.
Youngest
has
been remarkably mature about this journey he decided himself to
partake in, he led this process, he figured it out all on his own, he
knew something wasn't right with how he thought, acted and interacted
with the world around him, he did his own investigations before
telling me what he considered he had, then he continued down the path
seeking professional clarification via an assessment. I just cannot
believe it tho. What a top woman I must be having two kids with a
life long disability and I did not know. Gold star to this mum for
being a fucking loser idiot. I have yet to be asked by anyone how I'm
taking it. I'm not taking it very well. I am utterly heart broken. I
never saw this coming at all. I was far too busy stuck in shit from
all quarters to even see my best buddy son had Autism. How did I not
know.
How
do you describe grief?
With
my eldest this road was so very different. There was something so
obviously and clearly wrong with him since childhood and he was
eventually diagnosed after a self inflicted crisis and the diagnosis
with him was kind of a relief to me, albeit a total shock, because it
explained why he was like he was and what he did and the plan back
then was to get all professionals onboard to help, advise and support
him, which DID NOT happen. And he wasn't going to let it happen
either.
I
just have to trust that my youngest will be fine and continue to be
mature regarding anything that comes his way and that he will seek
help, support and advise as and when he needs it. I am so proud of
him and how he has dealt with this, I am consumed with pride but my
heart is broken and I feel like the most stupid imbecile person on
the planet. I didn't know. I didn't see it. I do not want this for
him. No one is surprised except me. Why was I not advised of the
possibility of this in 2007, there were enough professionals in our
lives about eldest and youngest also met many of them. If I had even
been told there was a possibility of this happening it may have saved
the poor child the crap of sustained and violent bullying at the
school he attended previously. My hope now is that the professionals
now involved have told me they will have a meeting with his present
school and make sure it's a safe environment for his needs. All I
want is for him to finish his education in safety and we shall see
what he wants to do after that is done. I also hope that the school
bullies who are actually cowards will grow balls and leave my son the
fuck alone once and for all.
I
have hardly been out of the house since the assessment process began.
At home I have to be seen to be coping, be strong, be capable, be
okay. I have two sons who do not leave the house so there is no place
in the house that I can be alone, to fall apart in private, as I feel
I am going to do. I know being outside leaves me free to be myself,
it allows me to think the thoughts that I cannot think at home but my
eyes fill up with tears merely with my thoughts at the moment and
that's not good to happen in public so I swallow down the lump in my
throat that is now a permanent fixture, I bottle it all up and
tighten the lid on any emotion but by god when that lid comes off, it
scares me to think what will happen when everything comes gushing out
because I feel so angry, cheated, grief stricken, petrified and
fucking furious at the cards I've been dealt and now my poor kids
also, they have already suffered and the child inside me is chanting,
it's not fair...it's not fair. Yes of course things could be much
worse, I know that, of course I do, but at this present moment in
time to find out my baby has a disability that will never go away,
that will cause him difficulty in interacting with others the rest of
his days when I will not be around to be his shield, his buffer, his
protector, his mentor, his mammy, has me weeping silent, hot,
painful, choked up tears, this is my baby, my buddy, my friend, my
side kick, my beloved child. It's not right and it's not fucking
fair. The sensible side of me says I have been the best mother I
could be, the child in me says I have been a crap mother, what kind
of mother doesn't know her children had a disability. My only excuse,
defence is that when you live with something long enough it becomes
normal. I really did not know and fuck knows what's round the corner
for me and for us. What else is coming at us. I am so damn weary. I
want my baby back. I want my eldest back as he was before the
agoraphobia. I want my kids to be normal again and I make no
apologies for saying and writing that because it is my truth.
Edel
from Gheel Autism Services wrote to me that “Aspergers Syndrome is
a sub group within the Autistic Spectrum. It is a development Neuro
biological disorder and people can experience huge social anxieties
and have trouble reciprocating social interactions and communication.
There can be a tendency for having intense interests and
preoccupations and many people also have specific sensory issues. In
some extreme cases people with Aspergers Syndrome can become very
withdrawn from society due to heightened stress levels fuelled by the
demands of social interactions, communication and sensory issues such
as sound and light sensitivity. High levels of stress and anxiety can
leave someone with Aspergers Syndrome easily frustrated and very
angry.
No
one has ever said or written that I know of, what it does to the
person who lives with this who doesn't have Aspergers, no one has
written what it does to them, how it affects them, especially if they
are alone and isolated and dealing with two sons with this, in my
personal view, a dreadful condition. No one ever tells you the truth
or the real story.
All
my hope and dreams for my sons and for me disappeared in a diagnosis.
Youngest from childhood in my eyes was going to be an architect, he
was always brilliant at designing and building things. Eldest always
wanted to be a soldier or a lawyer, what chance do they have now when
they cannot cope with an outside life. And I don't think I am strong
enough to handle this on my own. In fact I know I'm not and I keep
telling the powers that be this, but they do not listen and they do
not care and they do not give a shit.
13th
April
From
Edel from Gheel:
Hi,
I'm just checking to see how things have been since? In relation to
youngests school, D is waiting to hear back from the educational
psychologist and Ms K in relation to putting supports in place for
youngest to go back to school, as we were saying it is important to
have supports in place and staff training carried out before youngest
returns in order to ensure that things go well for him. Once Deirdre
has report finished she will contact you with same. I
think it would be a good idea to arrange to meet up again soon or you
can contact me when you feel ready. In relation to Michael McCreadie
he is over next week on Friday 20th May as we had said and can meet
with youngest in the afternoon. I'll be in touch next week in
relation to confirming meeting place and time. Kind regards”
14th
April
Deirdre
from Gheel was here for four hours. Youngest had a lot of tests to
do, he was really stressed out that it would still not be done and
ready for when school started back but Deirdre told him they were
half way thru now. She said she will get the report typed and ready
to be signed off by Andy Mc Donnell and will “ring the school to
arrange a meeting as they need to be trained to facilitate his needs”
I
checked my emails and got one from the ex's girlfriend I forwarded
her email to my solicitor. I am fit to be tied.
The
pure cheek and audacity of it coming from a girl who has never been a
mother or a wife, they are wrapped in their own bubble giving not a
thought of the shock or pain of how a mother would feel on finding
out her child has a life long disability and she wants my children's
medical information so she can pass them on to my sons fathers care
team in a mental hospital. She and he can both go and fuck themselves
to kingdom come. How dare he talk about my kids to her. I suppose it
takes all sorts to make up a world. They are getting no energy from
me to even warrant any reply because I have no energy left to give.
I
rang the hospital my ex is in and asked for admissions. I told the
person at the other end of the phone that I am the ex's wife of 21
years and I received an email from his current girlfriend requesting
my children’s medical details which I will NOT be providing. The
man asked if he could have my contact numbers in case of an
emergency. He then put me thru to the ex's Consultant's secretary. I
told her I can give you his full history having been his wife of 21
years, the secretary said that's great, will you be free to talk to
the Consultant by phone tomorrow as he is busy with meetings all day
today”. I said “okay”
L
who kindly escorts me to family law court came to house at 12.30pm.
I was upset telling her about my youngest. She said “I will contact
Edel from Gheel, I think you have just been abandoned and left to get
on with it and I think it's a disgrace a mother can be given news
that her son, another son also has a life long disability and no one
has contacted you to to see how you are coping with that news” I
told her “it's just another cash till ringing for them, they don't
care about people” I said “they should be assessing themselves as
they have as much empathy as a tin of fucking paint”
My
friend rang me, she asked “how are you coping with the news about
youngests diagnosis” bless her, she is a wonderful woman. I cried
down the phone to her. I was so upset. She said “supports can now
be put in place” I said “sorry but I won't hold my fucking
breath waiting, where is the supports for eldest cause we still ain't
got them and I'm sick of mentioning Dr Shah's name and report” She
told me hang on in and email her as often as I need to as it will
help me to off load. She is a remarkable woman. I would be so lost
without her.
Edel
from Gheel rang me. I'm not happy and told her so. “As far as I am
concerned I have been given the worse possible news I could be given
concerning MY baby and no one cares, it may be just another paid day
to you but this is my and my kids life” She said “I can meet up
on Monday at 2.30pm in the cafe”
15th
April
I
have woken up in a furious mood. I want to kick the crap out of
someone. I want to rant, rage and scream and howl poison filled
profanities at someone, anyone, I want to off load this bubbling
internal fury and feel like me again, but I can’t. I had a dreadful
nights sleep, I was awake every two hours with a mind like a car race
track and for someone who is normally up, bathed and dressed by 7am I
am sitting here unwashed and undressed thinking what is the fucking
point, my external mask can stay off today, I have nothing planned
anyway, no meetings, the boys are in their rooms, youngest is still
in the land of nod. At least I am feeling something
again, even if it is anger, it means I have some energy returning,
that I am coming out of the numb fog that had descended.
Eldest
was awake at 4am and told me “I had a dream about Zombies, it was
great and I did not want it to end”
18th
April
I
met Edel from Gheel in a cafe for the first time in months. She said
she is looking in to where I can get a mosquito net for eldests
bedroom window because he will not open his window in case anything
that buzzes flies in and he told me he was dreading the summer months
because he almost cracked up last year (his excuse for attacking me)
so I was told by him that I had to sort that out. I had to leave the
building because I broke down in tears in the cafe, I was sobbing and
blubbering which was very embarrassing. I talked about my youngest,
his behaviour, how he talks to me, his education and worse of all
this fucking Aspergers diagnosis. I kept losing my train of thought
regularly but Edel said “it's stress” my hair falling out again
had already told me that. Having a one and a half hour chat helped
even though I can hardly remember what we spoke about. Ahhhh, what
the fuck, it will all be fine eventually I hope. It had better be as
I'm exhausted mentally and fucked physically.
19th
April
I
rang the solicitor, she said the ex “has been checking out my
linked in page numerous times” She said “I'm not in least bit
worried as I've come across worse characters than him but it proves
he's clearly worried” She told me “ignore all from the
girlfriend, I believe she's trying to suck you in to communicate with
her and she's talking complete nonsense with what she said in her
last email because no solicitor would ever engage with anyone in a
mental health unit, they would not be allowed near him, the
girlfriend must be bored” She asked me what hospital was the ex
in, then said “he can only play that card for so long and he will
have to face the divorce one day”
My
gorgeous boy youngest is 18 today, the years have flown by in the
blink of an eye. I put €100 in a birthday card for him, I've no
extra money for anything else. He gave me a huge hug and asked if I
would go into town with him. We walked around many shops but he ended
up putting the money on his 3V card to spend online.
Eldest
showed his brother how to do squats, it was the first time in months
they spent ten minutes in one another's company with no war of words
or threats breaking out.
I'm
feeling very sad for my eldest because it's April again. It's been 5
years since he was part of a normal life, 5 Springs, 5 Summers, 5
Autumns and 5 Winters have passed him by and he's had no part in it.
It's a crying shame he's missed out on so much life, fresh air,
oxygen, human company, education, friends. It's like he no longer
exists in the outside world at all, he is doing time but has
committed no crime. He was a stunningly beautiful child and is now a
very handsome man yet sees himself as monstrous looking which is so
far removed from the truth, what a tragic waste of a life in someone
so young with so much going for him. I wish I knew what the fuck to
do. I can honestly say I have tried everything. I've been told “keep
positive about him because you never know what the future will bring”
but god above this has gone on for 5 long years now.
I
am down in the dumps. I suppose once I get over the shock that I have
two children with this Autism that has to date caused so much anguish
and fool that I am, I did not even know it till it got so extreme it
was clear something was wrong, I feel guilty too, I feel pity for
them both, for their future and pity for myself at having no other
life and been left by that evil bastard ex in utter poverty. I'm
raging I've had no proper supports except phone calls and a meeting
in a cafe when I say continually that I'm going to crack up and now
I'm on medication for stress, it's a straight jacket I should be in
by now. Perhaps that is what Gheel are waiting for, they will
probably get more money if they take over completely once the carer
has cracked up. They know what this is doing to me because I shout it
at them often enough.
26th
April
Deirdre
from Gheel was at house at 10.30am. I had completely forgot she was coming and
was just out of the bath and had no make up on, I was mortified at
being seen like this. Again she was here for over 4 hours. She asked
if I could leave the living room so youngest would had no
distractions. These people think they can say what they like to
people in their own homes. I sat upstairs. Youngest was fuming at her
but he said nothing till she left and told me in his by now usual
manner. He said “Deirdre said not once, not twice, but three times
that the normal population would say this, when I didn't understand a
question” I told him “you've probably taken it the wrong way”
but he was adamant he hadn't, he kept saying to me “the opposite of
normal is abnormal” He said “I do not like these people at all”
I told him to tell Deirdre himself instead of waiting till she'd left
and blast it repeatedly at me and hound me about it over and over
again. He screamed at me “I can't” No answer to that but it's me
that gets his blasts of venom directly in my face.
Just
some thoughts: In the past 50 years the changes in families re
divorce, lone parents, smaller families and people moving far and
wide due to economic reasons means that more and more people become
isolated (as in our case) and then have to depend on professional
help, education and support but you have to find all this out for
yourself as no one will be banging down your door to tell you exactly
what services you are entitled to.
In
my personal case you get passed from Billy to Jack then told Tom,
Dick or Harry is responsible but Tom, Dick or Harry are far too busy
and have to speak to someone else for clarification and get back to
you but oh wait, they forget you as soon as they leave you and you
find yourself back at square one and slip into a deep dark hole of
despair, depression and/or anxiety and left alone to deal with it
all.
Meanwhile,
Billy, Jack, Tom, Dick or Harry are being paid a decent salary, can
clock in and clock off, can have an outside life, do not live the
life that a carer has to and the carer wonders just what the fuck is
going on, if anything. Yes I'm being facetious, just giving a hint of
what carers feel and cope with. I could really go insane if I harked
back and thought of all the professionals who have let my eldest down
due to knowing absolutely nothing about his condition or deciding he was far
too expensive an exercise to waste funds on and so washed their hands
of him.
But
Dr Amitta Shah did know everything and gave her many years of
expertise and wrote an extensive report on my eldest with IMMEDIATE
recommendations that I was told by IAA “whatever she recommends,
the HSE have to commit to and get it implemented” AND told by M
from Autism Services “whatever Dr Shah has recommended, all will
have to abide with it” yet not one fucker did.
All I can do is wait and hope and hound the professionals but if anyone had told me that we would still be in this situation five whole years later I would never have believed it, perhaps it’s just as well I didn't know. I will be fucked if I allow the same bullshit and lies from any professional to allow my youngest to end up that way. I am not as green and naive or cabbage looking as I was back then when I knew Jack shit at all about anything.
All I can do is wait and hope and hound the professionals but if anyone had told me that we would still be in this situation five whole years later I would never have believed it, perhaps it’s just as well I didn't know. I will be fucked if I allow the same bullshit and lies from any professional to allow my youngest to end up that way. I am not as green and naive or cabbage looking as I was back then when I knew Jack shit at all about anything.
Luckily
I have a very strong personality that has carried me onwards so far,
apart from one episode when all around me thought I was cracking up
when I head butted a tree after a bad episode with my eldest, I don’t
know what the tree felt but it quickly brought me to my senses. I
feel physically unwell now so I'm going to the doctor for an MOT,
something is wrong and I have been putting it off for a while so it’s
time I got checked out. Mentally I'm very low but I know that's only
isolation, terrible poverty and fear and worry.
27th
April
Eldest
wanted two bookcases and a black out blind for his bedroom. I got
them from Argos, the weight of them and getting them into a taxi was
awful. The blind didn't fit his window because he'd measured it
wrong. What a waste of money. Youngest put his bookcases together for
him. Eldest then said “I want to buy hundreds of books, decent
classics to fill them up”
28th
April
Youngest
had a meeting at Gheels office to meet Deirdre. I thought great
because it would mean I could get my head down and study for my exams
but oh no he said “I can't go alone because I'll get lost” so he
insisted I went with him. I took my study books with me. I
had to go to the sorting office first to collect a missed delivery of
books for my eldest because neither eldest or youngest answered the
door whilst I was at Tesco shopping.
Youngest was with Deirdre in Gheel for an hour. I sat in the dining area. Edel sat with me.
Deirdre came out and told me “the report is 10 pages long at the moment and he is very intelligent” I said “I know” She said she told him about an Aspergers support group held in town on Sunday's but he told her “no thanks”
I left with youngest and we started the long walk to the bus stop and youngest said “I'm going to no fucking support group, they just want to lump all the retards together” I was almost in tears in the street thinking about another child of mine having this Autism and was still trying to get my head around it all. It was all happening far too quickly for me and I hadn't accepted that this could possibly be true but he wouldn't shut up. He started shouting at me in the busy street, in front of everyone walking past “how the fuck did you not know I had this, you must have known” I told him “I cannot take this right now and no I didn't know at all, all I know is I had you and I gave birth to two perfect and healthy children who passed all milestones, you went to school, no one picked up there were any problems despite me telling everyone about your brother since he was aged 4 and I've done my best all these years under very difficult circumstances” I told him “ I'm in shock about you having this too” He said “I don't believe you, you're a liar, you must have known” I stomped off like a child and told him “leave me the hell alone, I do not want you to talk to me at all if you don't quit with the abuse and the blame” He wouldn't leave me alone, he was going on about school, telling me what he thought of the place, the staff and the students, he said “I'm not going back until Gheel have spoken to them and got everything in place for me, then I might go back, I'm now willing to meet Michael Mc Creadie to learn coping strategies”
It is me who needs to learn coping strategies, it would help me if I was deaf and couldn't hear him, he never knows when to stop. He never thinks about anyone else but himself.
Youngest was with Deirdre in Gheel for an hour. I sat in the dining area. Edel sat with me.
Deirdre came out and told me “the report is 10 pages long at the moment and he is very intelligent” I said “I know” She said she told him about an Aspergers support group held in town on Sunday's but he told her “no thanks”
I left with youngest and we started the long walk to the bus stop and youngest said “I'm going to no fucking support group, they just want to lump all the retards together” I was almost in tears in the street thinking about another child of mine having this Autism and was still trying to get my head around it all. It was all happening far too quickly for me and I hadn't accepted that this could possibly be true but he wouldn't shut up. He started shouting at me in the busy street, in front of everyone walking past “how the fuck did you not know I had this, you must have known” I told him “I cannot take this right now and no I didn't know at all, all I know is I had you and I gave birth to two perfect and healthy children who passed all milestones, you went to school, no one picked up there were any problems despite me telling everyone about your brother since he was aged 4 and I've done my best all these years under very difficult circumstances” I told him “ I'm in shock about you having this too” He said “I don't believe you, you're a liar, you must have known” I stomped off like a child and told him “leave me the hell alone, I do not want you to talk to me at all if you don't quit with the abuse and the blame” He wouldn't leave me alone, he was going on about school, telling me what he thought of the place, the staff and the students, he said “I'm not going back until Gheel have spoken to them and got everything in place for me, then I might go back, I'm now willing to meet Michael Mc Creadie to learn coping strategies”
It is me who needs to learn coping strategies, it would help me if I was deaf and couldn't hear him, he never knows when to stop. He never thinks about anyone else but himself.
30th
April
I
just
realised I'd no medication left for eldest. I tore the house
apart looking for them but had none left. I rang D Doc
who told me I could go down to them at 2.45pm. I couldn't function
properly because I was scared witless that eldest would flip at me
again because when I told him this morning there were no tablets left
he freaked out roaring at me “I will go into withdrawal again”
I
got the bus to D Doc. The doctor gave me 4 days supply. I had to
practically beg for them because they said they couldn't give me any
because they hadn't seen the patient. I must have looked and sounded
like a nutter because I told the doctor “I'm not be leaving empty
handed, you can call the Garda to remove me and then call the HSE to
go and look after my kids” but thank god I was given them in the
end because I wouldn't have gone home at all because I knew what I
would have faced with eldest if I had no medication to give him.
I
chased the ex again because I've still had no maintenance. Court
orders mean nothing.
I'm
not superwoman, no one is but professionals expect me to be despite
me telling them at Gheel that I'm falling apart here. I feel as big
as Tinker fucking Bell. No one seems to notice I am literally falling
apart mentally, emotionally and physically.
I
need to study. I need to focus on my Open University course somehow.
Eldest
asked me to cut his hair for him, it's almost waist length so I was
nervous about cutting it but I did and it's now shoulder length and it looks good.
He has always been gorgeous looking, he just cannot see it himself. I
always thought he would be the model in the family.
I kept his hair that I cut, like I always
did when they were young, barbers thought I was mad as I would be on
my knees collecting my sons hair they'd cut from the floor. I still
have all their hair cuts in envelopes.
3rd
May
I
need
to get a repeat prescription.
I
need to send an email to Deirdre and Edel at Gheel re youngest not
going back to school until Gheel staff have spoken to the school.
I
need to study Block 5 and get my essay done and do my online
assignment for the Open University.
4th
May
I
was in Tesco when I realised my eldest had told me he was waiting on
a large delivery of books, I didn't want the delivery missed because
it would mean a long walk and a heavy load for me to carry if it was
missed. I rang my eldest 5 times and he didn't answer
once. I rang youngest, it took me ringing him three times before he
woke up and answered. I told him to make sure he stayed awake for
the delivery, he said okay. When I got home there was a missed
delivery card in the door. Youngest had gone straight back to sleep
when he finished talking to me on the phone. I am not happy.
I
keep telling myself to get my arse in gear and study.
Out
of the blue my eldest downloaded all 70 and 80's music for me. I was
delighted and touched that he thought about me.
Sent
a copy of youngests sick note to the school by email and told them he
will be back in school once he's met Michael McCreadie who's going to
teach him coping strategies.
5th
May
Deirdre
from Gheel rang, she said “I'm awaiting a call from the school so
we can go meet them and inform them about Aspergers” I said
“neither me nor my youngest want the full report given to the school,
they don't need to know about any family history, they just need to
be taught about what having Aspergers means” She said “okay I
won't”
I
sent a text to Edel from Gheel asking if we could have a chat, she
said she would call me at 5pm but she didn't ring me at all.
6th
May
Checked
my bank at 3.30pm for maintenance, nothing was paid. I was freaking
out. I needed that money desperately. I sent the ex a text saying
“I'm in town and will go straight into the court because you
haven't paid the maintenance” When I checked my bank at 4pm he had
paid, the freakazoid, he didn't even reply by text to let me know,
what a wanker.
I
broke my heart crying today. I should get it in my thick skull
because youngest has been telling me and Edel from Gheel has been
telling me and now there is a report on it's way to me to confirm
that my baby has Aspergers. It is not fair for him, it's not fucking
fair. I really didn't see this coming at all. I have no idea what
this means for his future at all. The Professionals are so used to
dishing out reports, doing their job but what about us parents, we
are just left with the earth shattering information. I AM FUCKING
BROKEN HEARTED. I want someone to hold my hand and tell me it will
all be okay, I want someone to hug me and say they will be there for
me and help me thru this. But no one is so it won't happen. My son is
just a new cog in a Disability wheel, my eldest has been neglected
and ignored now for 5 years by the powers that be and I do not even factor
anywhere in this god awful shitty scenario. God please, please,
please give us our old life back before all this shit began. I want
my sons back as they were before all this. They were normal.. I will
do anything to have them back as they once were. I never knew before
how painful and hot and searing a hard lump in the throat could be.
Just please bring me back my sons. PLEASE GOD, PLEASE.
7th
May
Another
email to Deirdre of Gheel
"Hi
Deirdre, I have attached a consent letter for the school meeting. I
would like to reiterate that I do not want the school to see the full
report as my youngests whole life has nothing to do with them, it is
only help and support to cope with his anxieties that he will need to
get back into school and stay there. Can you let me know when I shall
have a copy of this report regarding my son please. Many thanks”
8th
May
My
friend rang me and told me that no matter where I would have been the
boys would have still had the problems they now have and it's usually
the teen years that brings all to the surface. She told me to stay
positive. I turned my phone off and went to bed. This is not like me
at all. I am not like me at all. I do not know who the fuck I am any
more and I'm not in the mood for talking and no one except my friend
calls me anyway.
Had
an email from Deirdre from Gheel in response to mine. She said she
will not give the full report to the school.
10th
May
Awake
at 4am, I can't sleep, I want and need to stop thinking.
I
had to go and meet L for a review support meeting. They will keep me
on for another 3 months for court support. I'm so grateful about it.
I
twisted my knee running for the bus. Jesus Christ the pain was
horrendous.
Got
home at 12.15pm, made eldest lunch, went to bed, no report from Gheel
arrived. So now Gheel know and the school know but the mother knows
Jack shit because I still ain't got it and neither has my youngest.
Something is twisted and fucked up about that.
Had
a missed call on my phone from Gheel, they wanted to talk to youngest
first and then me.
I
rang Gheel. Deirdre told me “we had a meeting with the Principal
and with Ms K, we were told the school staff would find youngest to be
arrogant but I told them it's the Aspergers, not youngest” She said
“it's great to see people actually understand when it's explained
to them, I believe they are now coming to an understanding of
Aspergers but the school are insisting they use their own
psychologist to give their staff training” I said “no way, I've
met the psychologist and he hasn't a clue about Aspergers because he
tried to force my youngest into socialising when my youngest told him
he couldn't” I told her “Gheel should be the ones teaching all
staff who come into contact with youngest” Deirdre said “all we
can do is liaise with the school because we don't wish to offend
them” She said “the school is open to supplying an SNA for
youngest to get him from A to B because his safety would be the
biggest issue and I will talk to Ms K about not calling youngest out
of his class in front of everyone else. The report still hasn't been
signed off by Andy McDonnell as yet but yes it's complete but cannot
be sent until it's signed by the boss” She said “I have emailed
Andy about it again and will email it to you once it's been signed”
I
feel so upset and very alone. I want to go back when my boys were
little and make different choices, but no one knew, not even their
schools knew so how the hell would I know they had A.S. I wish there
had been an early diagnosis for eldest and by god I did try even when
he was little as I knew by his behaviour there was something wrong
with him but it was poo pooed by anyone I spoke to back then. I
should have stayed away from that evil bollix of an ex the first time
I left him instead of always being sweet talked back. I would have
lived in the same place and been permanent and stable and financially
independent. Why did I not know about Aspergers, why did know one
else see it. I went to enough people when eldest was younger. It's
not fair. Now I am in worse state than ever. Do professionals think
this is normal, finding out you have two kids with a life long
disability, who are so abusive and difficult to live with, do they
think I'm super woman with no wants, needs, hopes and dreams of my
own, not deserving of anything else except this continual crap and my
own damn company. The boys do not even notice me except when I have
NOT done something they want. I am just a piece of furniture, always
here to cook, clean, shop, mind them, protect them, defend them, yet
they do not give me a minute of their time in at all.
I
sent Edel from Gheel a text “I do not want to see you tomorrow
because I do not see the point in going round in circles with nothing
ever changing. I will call you when my mood is not so low”
I'm raging at Gheel. I have told Edel one meeting per month is not
enough for me with all I have going on with my sons on a daily basis.
I'm sick of going round in circles, sick of no services and no
supports in place. I told the HSE and I told Gheel that my biggest
fear was my youngest ending up like my eldest and stuck in the house
24 hours per day and now it's happened. I’ve come to realise that
Gheel are simply a business, they do not actually give a shit about
families at all coping with what I'm having to cope with. I have lost
count of the amount of times I have told them that my biggest fear
was youngest becoming the same as his brother.
I
sent my friend a text, she rang me, we had a long chat.
I
went off to Tesco and had a call from my land line “where are you”
from youngest, I asked him where he thought I was. Where is the only
place I ever go to. Perhaps they should just tag me like a criminal.
Youngest
hasn't been out unless he's with me the past 6 weeks now and he then
turns into a stranger, he gets argumentative, he dictates to me, he
totally drains me, he calls me a show off in the street because I am
myself when I'm out of the house, I listen to my music, I sing along,
I talk to strangers and all this makes me a “show off” according
to youngest. I'm not a show off, I'm like a puppy who is excited and
delighted to be out and about and seeing other humans.
I've
still not managed to get any sleep at all, my knee is still killing
me from when I twisted it but I found a support bandage to wear. I
don't want to get up or go out tomorrow but I have to bank eldests
money because there is no one else to do it.
I
have €2 left in my purse until Thursday, what a fucking horrible
life this is.
11th
May
Not
had much sleep. Was at the post office for 9am, bad day the rest of
day.
Youngest
was awake early, I convinced him to come and get his hair cut, I said
we would go to the barber because he was used to that place. He got
his hair cut short and it's lovely to see his face again, his hair
grows as quick as the grass.
I
kept checking my emails to see if the report would come thru as I was
told it would from Gheel. I got nothing, this is cruel.
Eldest
didn't eat the lunch I made him, he ate crisps and biscuits instead.
If he thinks for a minute he will get away with having a go at me
when he puts on weight again, he can think again.
I
sent an email
to Deirdre at Gheel: “Thank you Deirdre, I did speak to the
Education Psychologist when I had meeting with her and she said
getting an SNA could take a very long time so I do not hold out much
hope for that, looks like youngest will be at home 24 hours per day
for the rest of the term and the very long Summer holidays.
Appreciate all your help”
13th
May
I
cancelled
my meeting with Edel from Gheel because I've been so upset with
everything happening and my eyes are so swollen with crying and I
will not be seen in public looking this way but she was insisting
that we still met up, she said “I think it's important” What IS bloody important is that she listens to me, listens to what I'm telling her, I do not want to go anywhere in public and have a
nervous fucking breakdown in front of any one.
L
rang me, I cried my eyes out telling her I'm finding everything far
too much to cope with. L asked me if she could ring Edel at Gheel for
me and told me “ no one can force you to do anything or go anywhere
and you have a right to be respected and to be heard” I said “try
telling these people that” She said she would call me back once
she had spoken to Edel.
L
rang me again, she said she had spoken to Edel who said that she
“understands” how I feel. I said “that's a complete turnaround
because she would not let up about me meeting her despite me telling
her no, for a full 15 minutes” L was told “Deirdre from Gheel is
meeting with the Educational Psychologist at the school” I had been
told the meeting would be held with the Principal. “Gheel are
doing this so all remains friendly with the school” I do not trust
Gheel at all, not one of them, I should have trusted my own instincts
back in 2009 when I was chasing their CEO Peter Byrne for my report
back and having my texts and calls to Martin “who helps parents”
ignored for Christ knows what reasons. They are not about helping
people, they are about money, I am convinced of it. They are a
business.
- Edel from Gheel meets me in public and talks to me and gets me to talk about personal things which breaks my heart and so I always end up crying and feel shame at doing so in public, it is embarrassing. I feel exposed and I feel particularly emotional due to all that is going on in my life with my kids. The last time I met her I had to leave the cafe as I was so upset and we sat on a park bench in full view of everyone whilst I cried my eyes out, how the fuck is that support.
- So called crisis support, I am told I can call or text at any time but when I do it can take days before anyone gets back to me.
- I have requested continually but still haven't got to see the Family Support Plan for me and my family, why not?
- Youngest was told, not asked, he was told to meet Michael Mc Creadie in a cafe despite not knowing the man and having never met the man before and he was told he had to go alone. Why all the dictating, what exactly are they experts around Autism for, as it does not sound like it to me at all. I am always getting told that anxiety is a huge issue for those with Aspergers but they then over rule “anxiety” and tell my youngest who to see and where to see them, it's just crazy.
- I got told “counselling was part of the support package” by Edel continually and she would “source the right counselling” for me but nothing came out of it and it has been a year since I was told and told again and again. Nor do I know what the “support package is” and I have been asking to see it since fucking 2009.
I
do not like the changing of stories, it makes me question my own mind
which is why I write all and everything down and having total recall
of all important conversations helps too.
Email
from Edel from Gheel
“Hi,
I'm just checking
to see how things have been since? In relation to youngests school,
Deirdre is waiting to hear back from the educational psychologist and
Ms K in relation to putting supports in place for youngest to go back
to school, as we were saying it is important to have supports in
place and staff training carried out before youngest returns in order
to ensure that things go well for him. Once Deirdre has report
finished she will contact you with same. I think it would be a good
idea to arrange to meet up again soon or you can contact me when you
feel ready. In relation to Michael McCreadie he is over next week on
Friday 20th May as we had said and can meet with youngest in the
afternoon. I'll be in touch next week in relation to confirming
meeting place and time”
My
reply to Edel from Gheel
“Hi
Edel, re
supports being put in place, we both attended a meeting with the lady
educational psychologist who advised it would take a long time for
any SNA to be employed for youngest. My youngest stopped going to
school on Thursday 31st March, six weeks ago, before this he was
coming home every day at lunch time and before attending this school
he was at home for 2 whole years, not leaving the house unless with
me. I have repeatedly told all that my biggest fear since this shock
came out regards youngest is that I fear he will end up like his
brother, it looks like that fear has now been realised the past 6
weeks, hence the extreme urgency with this assessment and the school.
I cannot fault yourself or Deirdre but I am absolutely fuming that
the report has been ready the past two weeks and just waiting to be
signed off by Andy. To leave a mother waiting to find out exactly
what is officially wrong with her child is downright cruel,
especially since it occurred completely unexpectedly to me. Gheel as
a service have been aware of my family situation regards my eldest
since 2009. I clearly remember visiting the Health Manager Carol
Doolan back then. I sent four begging texts to Martin and many calls
desperate for help and advice as I was back then as I am now, doing
this solo, I did not receive one response. I did inform Peter Byrne
who declared that "it was not like Martin" and “to take
it up with him” Why am I telling you all this? The delay with the
report being signed has just reminded me that Gheel are a service and
in my personal view not thinking of the people behind the case files.
My kid is at home 24 hours a day like his brother unless I insist he
comes out with me. The report has been ready for two weeks waiting
for Andy to sign it. No amount of talking will change a thing, my
kids are now men, both have a disability, not a mental illness, they
both have huge IQ's, they can both now talk for themselves as me
doing the talking has achieved nothing at all in 5 years. I will of
course talk for them as and when they need me to”
15th
May
Youngest
went shopping with me, out of the blue he said “I'm not going to
meet Michael Mc Creadie any more, he's a stranger and it's stressing
me out at the thought of meeting this stranger in a public place”
I got into a panic, he had agreed to see this man, the man is flying
over from another country to see him, youngest cannot keep doing
this. Youngest said “you cannot force me to meet someone I do not
want to meet, you cannot force me to do anything” I said “so
you're the big man now are you talking to me like that, well you can
contact Gheel yourself and tell them what you just told me so someone
else can have the appointment then, in fact you can talk to them the
way you talk to me, I'm giving you my permission to be rude to them
like you're rude to me” Youngest said “I will not be letting them
know anything, I just won't turn up” I'm fuming at him, he's
acting like an idiot and it's about time he grew up and did things
for himself instead of making bullets for me to fire for him and I
get no bloody thanks at all, no appreciation at all for anything I do
for him.
I
ended up sending an email to Deirdre at Gheel myself to cancel
youngests meeting, only out of respect for Michael Mc Creadie coming
over from the UK.
Email
to Deirdre from Gheel
“Youngest
has just announced that he does not wish to meet with Michael Mc
Creadie. His actual words were "he's a stranger, I do not want
to meet a stranger and it's stressing me out that I have to meet him
and in a public place, so I'm not" So he is refusing. Can
you please contact youngest directly if you wish to discuss this with
him. Thank you.
I
told youngest that I was going to start walking on a regular basis to
get me out and get me fit. He told me “you better not think for a
minute that you’re dragging me out with you because I hate people,
I hate society and I do not want or need to go out” I told him
“you now have the support and services of an Autism agency, so talk
to them about all that you hate. He replied “I do not need supports
and services” FFS, only days ago and for weeks too he was roaring
at me that Gheel getting him this assessment will help change his
life because people will be made to “treat him according to his
abilities and needs”
I
feel like a volcano that is about to blow. Youngest is never off my
back, he is never done moaning, he is like a cloud of doom circling
my head constantly. Nothing is good enough for him, no one is good
enough, no one is doing enough. I want to scream at him do it all for
yourself then, grow a pair of balls, stand on your own two feet, go
see what real life is all about. But I say nothing and just get more
internally stressed and physically ill. He knows how much I love him
and he uses that to his own advantage all the time.
16th
May - Another Email to Deirdre from Gheel
“I
had a long conversation around youngests refusal to now meet with
Michael Mc Creadie as it came as a bolt out of the blue on Sunday to
me and he says that when he was asked to meet with him he only said
yes out of politeness and then he did not know how to get out of it.
He further said that he is “an autonomous human being who only
wanted to find out if he had Aspergers and does not want any
help/support, he only wants to get back into school and for the
school harassment to stop and to be treated accordingly, wants to sit
his Leaving Cert exams, wants to leave school and leave the country
as soon as he has done so” He went on to tell me that he “has
constant levels of anxiety outside of the house and it's caused by
people so the less people in his life the better but he will discuss
it with the family doctor” I am to ask you if the” family doctor
and the school have received the assessment report ”
At
2pm, Deirdre from Gheel rang my land line, she said she got my email
and wanted to talk to youngest. I handed youngest the phone. He told
me she asked him “why have you cancelled the meeting with Michael
Mc Creadie” even tho I'd sent her an email telling her exactly what
my youngest had said about it. She asked him to “reconsider
meeting Michael” he said “no” then said to me “why all the
fucking pressure, I said no and I was only being polite by saying yes
in the first place but no means no” I told him to give me the
phone because this was sounding to me like a professional bullying
him into doing what THEY wanted and I told Deirdre “enough now,
he's made up his mind and told you no, so stop it” She said “it's
a real shame because I think Michael would be able to help him” I
said “when he decides he can contact Gheel directly because he's an
adult of 18” She then accepted that.
When
I got off the phone, youngest was going fucking nuts “about Deirdre
harassing me” I told him “you should never say yes to anything
just to appease someone but I do understand their view point because
they have gone to a great deal of trouble and the man is flying over
from the UK” I said “lets go over what you do want and need so
that there's a clear record of it and no one can be mistaken from now
on.
He
sat on the couch next to me and I wrote down what he said
“I
will go back to school if there is a cease of the harassment and I'm
treated according to my needs and not to be grouped in with the
others"
“I
want to leave when I need to leave, I know that I have to follow the
rules but when my stress levels get too high the only thing I have in
my head is to get away"
“I
want the correct medication for my anxiety because even going to the
shop now makes me anxious, the thought of going into school makes my
anxiety levels huge, I am an autonomous human being and only wanted
to find out if I had Aspergers, I do not want help, I just want to go
to school, finish my education, leave school then leave the country”
At
4.20pm I got an email from Deirdre of Gheel
“Hi,
Ms. K in the school phoned me back. She had a meeting on Thursday
evening with Michael and the educational psychologist Georgie about
how to support youngest in his return to school. Michael is eager to
directly discuss this with youngest and Ms. K suggested making an
appointment to do so. Regarding the meeting with Michael McCreadie on
Friday I suggest that youngest reconsiders, I can accompany Michael,
we can change the venue, youngest could speak to him in advance.
Michael is especially good at working with young people so I would
really encourage him to consider meeting with him, particularly as he
is unlikely to approach the school psychologists for support”
I
told youngest about Deirdre's email and he went mad then said “I
want nothing to do with Gheel now, they're obviously not listening to
me, they are cunts”
17th
May
School
Meeting with Ms K and the Principal.
Youngest
was asked “what are your pressure points” youngest replied
“harassment from the pupils and the staff” We were told “it's
too late to get an SNA now and we don't think you actually need one
anyway” Ms K said “I know about the meeting you have
refused to attend with Michael Mc Creadie on Friday, can you not just
give it a try” (I was furious, it means Gheel are talking to the
school about things that do not concern them at all, my youngest is
18 and his permission has not been sought to discus anything other
than his educational needs) my youngest replied “I do not need any
organisation helping me” Next on the agenda was pushing my
youngest to meet with the school psychologist to learn coping
strategies, he was told “try him once and if you do not like it
then you do not go back, simple as that” youngest said “okay I
will do it once if it will shut you up going on about it because you
obviously don't want to listen to what I say or what I want” Ms K
then said “at the last meeting I had with Deirdre and Edel from
Gheel (Edel kept that quiet because she didn't mention she was at the
school to me) they told me that you getting called out of the class
upsets you” youngest said “it's embarrassing” she said “I
will not do that any more then”
The
Principal told youngest “Gheel have offered you a support group
meet up with others with Aspergers so why are you not going”
youngest said “because I don't want to go and I've already said I
don't want any organisation's help, in other words forced to do what
I don't want to do” The Principal then asked him “what exactly
do you need to improve to get thru life” youngest said “social
skills I suppose” The Principal said “it needs practice not
dependence, try things once, you're busy saying you don't want to be
labelled but you're the first to label yourself more than anyone else
and you would not be at the highest level of Aspergers anyway, I
asked them (Deirdre and Edel from Gheel) and they told me he is
likely but not very likely and you are not highly likely”
WHAT
THE FUCKING FUCK!!!!!
I
lost it after the Principal said that. I told him “that is utter nonsense,
it's like saying someone is a little bit pregnant or only has cancer
a little bit and you need to get your facts straight, what chance
does my son have with anyone in this school with that attitude” I
said “you either have Autism or you don't and my youngest does”
The Principal said “I put a lot of time and energy into asking
questions about his diagnosis” I said “well you heard wrong
then” He asked my youngest “who do you trust” youngest said “my
family but I do not trust professionals, psychologist or teachers”
The Principal said “if you expand you might find other people to
trust” youngest said “trust has to be earned and not expected” I'd heard enough and said “we're going home” and I stood up. I
was fucking fuming about his words of “likely but not very likely”
what the fuck is going on with Gheel, they told me very little about
meeting the school and I didn't even know that Edel was there and
she's my supposed key SUPPORT worker. My youngest has no chance of
being treated according to his needs that he keeps spouting on about
with this attitude at this school. God I'm raging and about fit to
lose my temper with Gheel and tell them exactly what I think of them.
Neither youngest nor I have seen the official signed off report yet
but here are Gheel and the school discussing it. Deirdre told me that
youngest has Aspergers yet apparently she has told the school
something different according to the Principal. What the fuck is
going on.
I
sent a text to Edel and an email to Deirdre.
18th
May
I'm
having a crap time with my solicitor so I emailed her: “Hi M, can
you please forward me all and any correspondence sent to my
ex or his divorce solicitor since my divorce application was lodged
in April 2010, can you please do the same for all and any
correspondence received from him and his solicitor in response
to your requests. I have still received nothing returned from F
including the HSE letter regarding my ex. I am writing to his brother informing him that I am calling him as a witness for divorce
to prove my ex has consistently lied regards the money he
has received from selling his share of the London
property. I was forced to stop divorce proceedings in the UK in 2006
and still I'm getting no where, so I am going to find out why and
take it further by complaint, my first step is the Law Society, which
is why I need all correspondence, they will advise what I can do
and hopefully my ex can be halted and so presumably his
solicitor in holding up my divorce proceedings”
Eldest
didn't get up till 11.30am, that's very late for him. He's fed up
because his weight's not going down fast enough for him, he wants to
cut out the yoghurt’s and he was going to take 5 Lyrica pills at
the same time. I said “don't be ridiculous playing fast and loose
with your health” but he will not listen and it means I cannot go
out of the house in case he has a bad reaction to the medication. I'm
sick of being on such a tight leash because of him and his bloody
shenanigans.
Deirdre
from Gheel rang me at 1.15pm, she said “I want to persuade him to
change his mind about meeting Michael Mc Creadie” I reminded her
“he has said no umpteen times now and he needs to be left alone
because only I get the bloody back lash and anyway he's still at
school” She asked “does he have Skype” I said “not that I
know of” I told her of my fury at the Principal saying youngest is
“not likely to have Aspergers” she sounded frustrated about
this, she actually sighed loudly. I asked her “when are we likely
to get the signed report of youngests assessment and official
diagnosis” she said “Andy told me he would send it to me tonight
because we're all busy with something new” I asked her again “so
when will we get the report” she replied in a short clipped manner
“you will get it when I get it” I wasn't having that from her,
the cheeky bitch. I said “excuse me, do not speak to me like that
and while you're on the phone why are you having meetings with the
school about my son's assessment and diagnosis when we haven't yet
got it” I heard her talking to someone else in the room with her
and she said “I have to go, I will phone Andy McDonnell tomorrow
evening” The staff at Gheel Autism (jack shit) services are a
fucking disgrace.
When
youngest came home I told him about Deirdre from Gheel ringing and
asking to speak to him, he wasn't happy and said “how many fucking
times do I have to tell them, they are taking the piss, this is now
harassment” He then said “I think the Lyrica are working because
I didn't feel anxious once in school, I didn't have a panic attack
but all the other pupils are ignoring me as usual and the teachers
are now talking to me like I'm a retard” I told him “you're
probably just ultra sensitive, just keep your head down and cope as
best you can”
19th
May
Youngest
is in very grumpy mood, he told me “you are treating me like a
fucking retard” All because I instinctively brushed cat hairs off his trousers with my hand. I asked him “is that your new word
of the week, it's getting very boring hearing it” he told me “fuck
off” and slammed the door going out of it. Twat.
Eldest
has increased his intake of Lyrica to 4 per day after telling me
“they're doing fuck all for me” I told him “check out if it's
safe to self medicate and get to the GP” he called me “an
ignorant bitch” why I'm an ignorant bitch I have no idea and I've
no bloody intention of finding out either. I'm fucking sick of the
pair of them. They are grown men acting like kids and bullies to
their own mother.
I
drafted a letter to Gheel and the HSE:
- I do not consider two letters sent in one year to my eldest constitutes support and services.
- I do not feel one meeting per month in a public place discussing highly personal and upsetting to me topics to be support.
- I do not feel that being told my son's Diagnostic Report is ready and will be with me on a certain date and then does not arrive and then having my emails regards this ignored to be at all professional.
- I do not think that my son's refusal to meet with Michael Mc Creadie constitutes continued pressure from Gheel for him to reverse his stance helpful.
- I do not feel that Gheel are showing respect to my son, your now Service User and nor me, the parent.
I
rang S, the Advocate about all this, she said “youngest is an
adult, if he says no it has to be respected, he can ask them at a
later date if he changes his mind, he cannot be forced nor should any
pressure be put on him to do what he's refusing to do re meeting
Michael Mc Creadie”
I'm glad I spoke to S. I love that down to earth, kind and helpful girl.
I'm glad I spoke to S. I love that down to earth, kind and helpful girl.
I
went out walking to meet my youngest from school. When I met him he
said “I saw the school Psych just to shut them all up and it was
the most uncomfortable experience I ever felt in my life and I won't
ever be seeing him again because it's all psychological bullshit”
He said “I was asked by him what my first memory was, I told him, trying to get a piece of Lego that dropped behind the sideboard when I was age 4, I was asked by him if this was the headlines of a newspaper what would the heading be, I told him slow news day” that made me laugh because that would have been my response. He said “not once was I told about any coping strategies, it's a waste of time and that psych is the weirdest man I have ever met and something is not normal about him” I disagree about that. Yes V is the weirdest man I have met to date but by god I have met many a weird man yet I do feel V has his heart in the right place but I do feel he has got more than used to people tugging their forelock to him so he feels he is very important.
He said “I was asked by him what my first memory was, I told him, trying to get a piece of Lego that dropped behind the sideboard when I was age 4, I was asked by him if this was the headlines of a newspaper what would the heading be, I told him slow news day” that made me laugh because that would have been my response. He said “not once was I told about any coping strategies, it's a waste of time and that psych is the weirdest man I have ever met and something is not normal about him” I disagree about that. Yes V is the weirdest man I have met to date but by god I have met many a weird man yet I do feel V has his heart in the right place but I do feel he has got more than used to people tugging their forelock to him so he feels he is very important.
I'm
not at all pleased, all that pushing of my youngest to see that man
by the school and he didn't take the opportunity to do what they all
asked youngest to do, learn coping strategies, what a waste of time,
that man should be put out to grass. Why didn't he not help youngest
re the bullies, the mental warfare he said he's been experiencing and
his isolation where no one speaks to him in the school, it's
appalling that man failed him, he totally fucked this up, psycho
babble should not have taken place at all, no wonder my youngest
doesn't trust any of them, not one of them sticks to their word at
all and now he will never see the man again, the idiots. I've lost
count of how many times the Principal told us “how expensive the
psych is and needs to be used by youngest” What a waste of school
funds, those funds would be better spent on someone roaring at the
bullies what they are doing to another pupils very spirit and that they
have to stop the bullying.
Deirdre
from Gheel rang me as we were walking home, She said “I've sent the
report to you and there will be no surprises or shocks in it and I
will be out to see you next week to see what you both think and see
if you have any questions about it”
Me
and youngest ran home and read it together on the couch, half of it
we didn't understand at all. We now believe the school have indeed
seen the full report despite me telling Deirdre from Gheel that they
weren't allowed to because youngest didn't want them to, because it
said on the report how “youngest needs to keep drinking water”
and the Principal mentioned this at the meeting when we were at the
school and the Principal wouldn't know anything about the amount of
water youngest drinks because he takes in his own water. It also does
indeed say “youngest is likely to have Aspergers”
Deidre
of Gheel rang me and I read out a list of questions we had about her
report. She said “put it all in an email to me and then she replied to
me “no, the school didn't get to see the full report as you
requested they did not see it” I don't believe a word she's
saying. I asked her outright “does my youngest have Aspergers”
she said “yes and we only write likely, because he doesn't have the
huge numbers of maladaptive routines, fixations or rigidity, so he
wouldn't be as bad as others would be”
I said “I want it in black and white with a simple sentence of clarification that my youngest has Aspergers Syndrome because the Principal said and I quote “he only has it mild and can cope” and I want the sentence removed regarding my brother who I wasn't raised with and I don't know him and I only mentioned it to you in conversation and certainly not as part of any family history or assessment.
I said “I want it in black and white with a simple sentence of clarification that my youngest has Aspergers Syndrome because the Principal said and I quote “he only has it mild and can cope” and I want the sentence removed regarding my brother who I wasn't raised with and I don't know him and I only mentioned it to you in conversation and certainly not as part of any family history or assessment.
I had heard 3rd hand from my half sister who has never met my brother, that
she'd heard my brother was a drug addict but it hadn't been
confirmed” Deirdre said “people with Aspergers can take
substances to help them cope with their difficulties” I said “I'm
astonished you're diagnosing my brother as possibly having Aspergers
Syndrome, my brother was horrifically abused by Christian
Brothers in a care home as a very young child and none of my family
have ever had any kind of Autism so it's just ridiculous that you
would even mention my brother in my youngest son's report” She
said “I will change the wording” I don't believe a word of what
she just said. She is one strange woman. I believe she has huge
social issues of her own in my personal opinion.
20th
May
Edel
from Gheel rang me. She said “we've only been meeting in a public
place because I didn't want to encroach on your personal space” (but
she doesn't mind my personal feelings and angst being held in a
public space) that one has an answer for everything. She said “I
would love to meet eldest” WHAT? why would she think for a second
she will be meeting my eldest. It will never happen unless my eldest
wants it to and I told her so. Perhaps she doesn't believe my son is
in his bedroom alone 90% of the day, perhaps she thinks I've been
making all this up the past 5 years. She said “I would like to come
to the house on Friday when L (my court escort) is out to see you”
I reckon this one has her own agenda and I'm always proved right when
it comes to my gut.
Thinking
about Edel from Gheel. I feel they're of no use at all, they just
keep trying to put a plaster over a broken bone. There is no real
help, support or services at all. I told my youngest “I feel like
telling them to fuck off because they're stressing me out now” he
told me “wait till I am finished with them” FFS
20th
May
Eldest
told me “I'm taking no more Lyrica” I said “don't just quit
them, you need to wean yourself off them because look what happened
when you quit the Xanax, the fall out from doing that” He said “I
am angry” so I walked away because I wasn't hanging around for any
of his explosions towards me. He said “fuck off, you know nothing,
you know fuck all so just fuck off” I felt like
roaring back at him, that was a lot of fuck's in one sentence and I
had already fucked off when I walked away from him after he warned me
he was angry but I said nothing but I bloody wanted to tho. He is a
cretin when he wants to be.
21st
May
College
day. T came to visit with her daughter last night, she makes
everything around feel lighter and brighter. She ran me to the
college and said she would pick me up later, she took youngest out to
an indoor market and “bought him a sandwich but he wouldn't eat it
because there was sauce in it” T said “I was mad as hell at him
because he wouldn't take it back to the counter and it cost me money
that I cannot afford and I hate waste”
22nd
May
T
went home. I felt woozy in my head, I was up late studying last night
and had to go back to bed and have a lie down. Youngest went to the
local shop for me, he told me I looked ill, I said it's probably just
a cold coming on. He sat on couch with me and hugged me till his arm
went dead. Eldest got me all episodes of The Good Wife to watch on my
lap top in bed, I love it. I kept sleeping on and off. I really feel
poorly.
23rd
May
I
don't feel any better at all, I tossed and turned all night long, I
feel so tired. Youngest told me “I'm taking two Lyrica because
taking one is not having any effect at all any more” I told him
“tell the doctor this and don't be doing an eldest with medication”
he called me “a cunt” for no damn reason at all. I hate this side
of him, I really hate it and it's not fair. He knows I'm feeling ill,
he told me I look ill and he still talks to me like that. I detest
him when he's like this.
At
12.28pm youngest rang me from school asking “can I go into town to
hear O'Bama's speech. I said “you can do what you like because you're an adult” He then asked “can I come home first” I've no
idea why he was asking for permission, he came home at 1pm. I gave
him my cash card and a small shopping list because I'm bouncing off
the walls with tiredness and feeling ill. He ended up not going to
town “because I never got any text telling me where to meet two
people” I told him to text them but he refused to text them.
I
did nothing all day, I lay down for nap, I got up, I lay down for a
nap. I cannot figure out what is wrong with me at all, it's like all
my energy is gone, I just about managed to make the boys dinner then
went to bed again. I am wiped out.
24th
May
Youngest
rang me at 12.30pm, he was upset and told me “I ordered my sandwich
in the morning from the canteen but it wasn't there when I went to
get it at lunch time” he said “I'm not going without food, I'm
pissed off so I'm coming home” He said “the Principal is pissing
me off too because when I went to my locker the Principal came up to
me and said he wanted me to continue seeing the school psych, I told
him no and I only went to see the psych once for everybody else’s
benefit and didn't find it helpful so I'm not going to see him again,
The Principal would not take no for an answer (as per usual) and said
it's to help you focus, I told him focus is something I already have
because I know what I want to do with my life, I have my life mapped
out” The Principal told him “the assessment states you are a
very talented individual who needs to be challenged and forced to
interact with people more” (that made me furious) youngest told
him “forcing me to interact with people will only make me feel
worse and is against my human rights and it will not do me any good” Whilst youngest was telling me all this I was raging at that
Principal. I told youngest “I will get that man off your back”
and “I think the principal is making up his own interpretation of
the diagnostic report but I will sort it” These people have not a
clue as to how what they say to youngest is then impacted on me. They
have been told by me but they just do not care.
I
wrote to the Principal. I'm still raging about him badgering
youngest. I know they are trying to help but they are not helping at
all.
Email
to Principal:
Dear
Principal. Re your conversation with my youngest today. He does not
wish to meet with the Psychologist again, he did not find the session
of any use to him personally, he gave in to prior repeated requests
to get everyone off his back and has made the decision that this
service is not for him so I would be grateful if you would no longer
tell him that you think it’s best for him to see the Psychologist.
You apparently also told him that his assessment states that he is a
tremendously talented individual that needs to be challenged and
forced to interact with people more. My youngest replied that forcing
him to interact with people will make him worse and do no good at
all. Firstly, when I asked you if you had been given a copy of the
assessment, you told me no and now you have quoted a fair bit of it
so far. Secondly, no one will force my son to do anything that he
does not feel comfortable with or that he has chosen not to do
especially when he has tried and only did so to please other people.
Thirdly, my youngest has a diagnosis
of Aspergers Syndrome, he is not as you said at the meeting “only
likely to have it, it’s only mild and it’s not so bad” My
youngest has Aspergers Syndrome which is a form of Autism, it sits on
the Autism Spectrum as defined by the DSMIV. People with Aspergers
Syndrome lack the ability to interpret facial expressions, tones of
voice, body language, subtle social cues and to make and maintain
friendships. With Aspergers Syndrome there are varying ranges of
anxieties, social and otherwise which my youngest is experiencing in
school and seeing our doctor himself about this. The above
description did not come from any website or professional but from my
eldest son who also has Aspergers Syndrome so he would be a bit of an
expert in describing what he has and how it affects him and his
brother. I
am not at all happy with the words force being used nor the nagging
that has been going on, my son only wants an education, nothing more,
can he just be left alone to learn now please. Thank you”
Eldest
asked me if he could “bake a cake” I helped him. It would have
sunk the Titanic it was that heavy but we had a good laugh making it.
24th
May
T
rang, she wants to come up for the Bank Holiday with her new
boyfriend for him to meet her “Mam” I told her I would be a bit
concerned about eldest not feeling safe to come out of his room with
a stranger in the house but I would talk to him about it. I did, he
asked “why are you asking me when you know I don't want to see
anyone or be seen by anyone” I left and walked down stairs and
cried at my feeling of helplessness, I don't know how to help him, I
don't know how to help myself and I really want T's company. I need
adult and friendly company for me especially on a Bank Holiday as I
hate them when I'm alone and I'm always alone.
Youngest
asked me what was wrong with me and I told him that I would have
loved to have T's company on a Bank Holiday weekend and he knows how
much I hate long weekends but I also know that it's not fair on
eldest either because it will mean if T brings her boyfriend then eldest
will not come out of his room at all to even use the toilet and I
will be on edge for him the whole weekend and he stopped taking his
Lyrica medication on Sunday. Youngest said “tell them they cannot
come then”
I
had to ring T and apologise, she said not to worry about it, she just
thought it would do me the world of good and said I need to stop
letting the boys control me. I know I do but I have no back up to
help me to do so.
Got
81% on my TMA 7 for Open University. I am shocked about that.
25th
May
Could
not sleep again last night, I ended up coming down stairs at 4.30am
and going back to bed at 7.30am. I don't know what is wrong with me.
26th
May
I
took a sleeping tablet so had a great sleep at last. Youngest has
exams from now till Monday. He rang me as he was walking to school,
he said he had bad burning pains in his calf so he was coming back
home, which means he's missing doing the exams, shit. The GP is off
so he had to see his stand in, a very nice man who told him that he
has Fibrositis and gave him a prescription for painkillers.
27th
May
Both
L, my court support and Edel from Gheel were at the house this
morning. When Edel went to the loo I told L "I'm still not happy with
Gheel as a service" I went to the toilet myself and when I came out I
said I had to go shopping and was going for the bus. Edel offered me
a lift, she said she was going that way then spent 20 minutes driving
round in circles saying she was lost despite having Sat Nav in the
car. I know it was just a ruse to get me to talk to her and I told
her why I was pissed off at her and my experiences of Gheel going
back to 2009, it did help clear the air a little but I still believe
that me putting it in writing would warrant a response in writing
back from them.
I
told youngest I would meet him at 3pm outside the doctors for his
appointment so asked him to get the bus from school. There was no
sign of him as I stood outside the doctors, he didn't answer his
phone or reply to any of my texts and I went into lala land convinced
something bad had happened to him at school. He eventually rang me
and told me he was in an exam and that I had got the time for his
appointment wrong. I hadn't got any appointment time wrong because I
set an alarm on my phone to remind me. He arrived very late and we
had to wait for over an hour to see the doctor. Whilst there I gave
the receptionist his Diagnostic Report to photocopy but it couldn't
be done because they had run out of copier paper. The doctor gave
youngest Xanax to help him thru his school exams. I had deja vu
because I have been here before with Eldest when he sat his exams.
I
went to bed after I made the dinner, all my limbs feel heavy. I wish
I could shake whatever this is off me.
Youngest
came into my room and lay on my bed next to me and told me “a girl
in school gave me a lift, there were lots of people in the car too
and I was the only one who put on a seat belt so the girl driving
started swerving all over the place to frighten them all” I told
him “never do anything so stupid like that ever again, if anything
had happened I would not have believed you would have been in
anyone's car because I wouldn't have known anything about it” He said
“they were sound to me but I'm not stupid because I know how quick
people can change because it always happens to me” I am horrified
at him just jumping in someone's car like that.
27th
May
Youngest
rang me from school. He said “I was sitting for first break
outside the reception area when some woman walked in stinking of
booze to register her son to start at the school, the boy with her
for no reason called me a fucking geek but Mrs H overheard him and
came out and told me to go and tell someone what's just been said
because this new kid might be shit scared about starting a new school
and want to quickly make a name for himself, she said no doubt the
kid would remember you the next time he saw you and Christ knows what
would happen” All I could think was what has the fucking world
come to, instead of that new boy having a strip torn out of him by
staff immediately to nip any future behaviour in the bud my son is
told to go and tell someone. What a joke. My son was sitting in the
reception area to feel safe in the first place, so much for him being
told at a meeting that he could sit in the Principals office, they
are a joke up there.
28th
May
I
have a stinking head cold, every orifice I have is streaming, I feel
like total crap, I look awful. I didn't get dressed or go out the
whole weekend, I'm not ft to do it.
30th
May
I
went to the Court to get a Legal Aid Cert, I was told “new rules
means no one can apply for two certs in a 12 month period” It's
not my fault that evil bastard ex keeps summoning me to court then
doesn't show up then re applies for another summons when things go
against him. I sent the solicitor a text. She rang me at 6.15pm and
told me “you're covered anyway because it's an adjournment and not
a new case” she could have bloody told me before now and saved me
the hassle. I feel like crap. I want to fucking escape all of this.
4th
June
Had
a missed call on my land line. I recognised the code, it was from the
tiny village my ex lives in, no chance was that a coincidence, yet he does not have my land line number. It was
followed by a text from the ex's phone “ran out of petrol, do you
want a Western Union instead” Do I hell want that, he's just
fishing for my address. I sent it to the solicitor, she advised
“change your number and inform the Garda”
I
had my bathroom floor done and the hall and living room is now
laminated, it cost me €500 but it makes the house look so much
better. A man came out to measure eldests window to get him a mozzy
blind so he can open his window and nothing flying or buzzing will
get into his room. I'd previously asked Edel from Gheel if she knew
who could do it and she gave me this man's number, she said that's
who Gheel use. He told me the cost would be €125 but when it came
to paying he said €150 because he'd not originally included tax.
What a rip off.
I
got the respite grant which paid for my flooring then I gave my youngest €200 and bought eldest clothes and all my bills are to
date. Me and youngest went to Ikea.
7th
June
I
got myself a puppy from a farm in another County. The bloke was
driving up to Dublin to take his sister to the airport so he met me
on my street at 7am. She's so gorgeous but very shy and timid.
Eldest came down to see her then told me “you're mad to get a dog”
I told him “it's company for me and I hate walking on my own”
8th
June
I
took a copy of my youngests Diagnosis report up to my GP. I told him
“I feel awful” He said “it's stress” I told him “you're
nuts if you cannot see every orifice of mine streaming with mucus and
my eyes so swollen because they will not stop streaming either”
Edel
from Gheel asked if my youngest wanted to meet Michael McCreadie. When
I told youngest what Edel had said his reply was “no and tell those
cunts to leave me alone” because he doesn't have the balls to tell
Gheel himself.
9th
June
The
mozzy screen for eldests window arrived. I didn't know we had to fit
it ourselves, and at that bloody price it should have been gold
plated. Youngest fitted it but had to scrape some plaster off the
wall to make it fit, so much for made to measure. It means eldest can
now open his window with no fear so his room won't feel like an oven
now and make him dog tired and miserable with the heat. He asked me
“why have you done this for me” I was puzzled at that strange
question, I told him “because I bloody well love you you daft thing
and because you need it” No reply from him. I'm finding it hard
being a mum nowadays, it was so much easier before I knew about
Aspergers, I think before any label was given to them I was fine, I
could talk and retaliate verbally but now all I try do is bite my
tongue which is so not me and so my health suffers. My own kids who I
gave birth to are like strangers to me, the kids I had disappeared. I
want a normal life for them and for me.
Me
and youngest took puppy out to local shop, the poor thing was spooked
at all the noises. One cat is scarred for life but the other cat is
stalking puppy and swiping the poor thing at every opportunity.
Eldest
told me “I'm not talking to you” he gave me no explanation why.
I couldn't care less.
I
have studied as much as I can given how ill I feel.
10th
June
A
man
came to put blinds up at the window in the living room, he told me “I
got the rest of the window blinds made up for you for when you can
buy them” I told him “you shouldn't have done that because god
knows when I'll next have money” He asked me “do you want me to
make out the receipt for more than you paid” I asked “why on
earth would I want that” he said “lots of lone parents do it and
get the Social Welfare to help” I was shocked at that. I told him
“I'm straight as a dye and is there a huge sign on my forehead that
says lone parent” he apologised. How would he know my personal
circumstances, the cheeky fucker. The living room is nice and
starting to take shape now.
11th
June
In
town with youngest. I bought him new converse shoes for €55. I
bought a drill in Argos but it didn't come with drill bits but I
didn't know that till I got home so I had to buy them from the
hardware shop locally. I put up the new mirror from Ikea but it's all
wonky and I have destroyed the wall. Eldest was laughing his head of
at the state of it.
I
had a dream that I failed my exams, god I do hope that doesn't come
true.
20th
June
T is here for the weekend. She is fabulous company and we do nothing
but laugh our heads off.
Eldest
hasn't spoken to me for 11 days but he woke me up at 6am by coming into
my room shouting that he had chest pains. He called me every name
under the sun and was shouting “you do not give a shit about me” T said “Mam I'm taking you away from this house today, I don't know
how you can put up with him, I would box him if he was my son, he
will not ever be happy and you will only end up demented by them both
and I think that will happen soon” she was begging me to go home
with her and just leave them to it, she said “the HSE will have to
get their fingers out and replace you” Eldest was now crying in
pain so I gave him two paracetamol and two anti inflammatory tablets
but they didn't work so I rang D Doc. I had to go thru the usual
drill of why eldest couldn't go in person to wherever they hold their
clinics at the weekends. A nurse rang me back and questioned me some
more, she could hear eldest howling in pain in the background.
Eventually she said that the doctor would be out to us shortly.
The
doctor who last saw my eldest at our old address came out. He's a
young man and he remembered my eldest. He gave him an anti spasmodic
injection, he said he thought it might be “his large intestine
going into spasms” he also left a prescription. T got up to take
me to find a chemist but there's not many open on a Sunday. Eldest
then started projectile vomiting. I felt so sorry for him, then his
other end started too so it must have been a bad reaction to the
injection he just had. I have never seen anyone, except in a
hospital, being sick like that. I knew he was scared, he told me to
“hurry and get me the prescription” I jumped into T's car and
thanked god she was here because if I had to depend on buses on a
Sunday god knows how long it would have taken me.
T
drove me up to the shopping centre to see if the chemist was open, it
wasn't, someone told me if we go down to where Gheel are I would find
one there, we didn't see any chemist there.
I
kept ringing youngest for updates on eldest. He told me “get back
home right away because eldest wants to go to hospital now” I knew
eldest had to be feeling really bad to want that.
We
headed back to the house and I rang the hospital and explained his
severe agoraphobia problems and his Autism and told them he would not
be the most patient of people and the lady on phone said she would
tell the nurse in triage that we were on our way and told me “at
the moment it's not too busy”
We
collected eldest and youngest and I grabbed a basin because eldest
was still being as sick as a dog, thankfully he wasn't sick T's car.
When we got to casualty eldest just sat down on the waiting room
floor with the basin in his hands and he was writhing in pain and
shouting “I want to die” because the pain was so bad and too much
for him. He started shouting at me very loudly “do something”
I
went up to the receptionist again and apologised for annoying her and
said “I'm getting the head taken of me by my son verbally and I
might have my own meltdown here right in front of you because I'm
ready for bolting if he blows with rage at me. I'm not hanging around
for it” she laughed and told me she will go see the nurse again and
after a few minutes eldest was called in for an initial assessment.
He
was seen by the Triage Nurse and again he was vomiting everywhere,
she gave him an injection for his pain but it didn't work and he
crushed my hand as the needle went in him and he was almost roaring
with the pain, he was then given tablets but he threw them up and was
put on fluids and given a stomach smoothing injection too, I'd never
heard of that before but again it didn't work and he was roaring and
cursing that “no one is helping me” I told the nurse “I will
be running away because I'm not fit for him when he's in this state”
and I decided I was whispering no more and told the staff about his
condition and why he's like he is. I told them “he's not left
whatever house we've lived in for 5 years and 2 months” Eldest
said "it's you and only you that's getting stressed out"
There was not a mention of all the names he called me this morning,
this boy of mine has a face for everyone. I threatened to call T in
to us because she heard all he said to me and she knows what he's
really like.
He
said “I'm fine being out and I want to go out and finish my
education, it's only when I think about it at home that my panic
kicks off and that's what stops me from leaving the house” I told
him “there are people out there who are just waiting to help you”
and asked him “do you want me to contact them” he said “yes”
I was thrilled to bits about that.
T
came to find me, she said she had to leave as she needed to go and
collect her child to go home. I gave youngest my cash card and told
him to go with T and give her petrol money because she'd driven all
over the place with me this morning looking for a chemist, she said
she would then drop youngest back at the house but they appeared back
at the hospital because youngest couldn't find his house key.
I
asked youngest to come and sit with me but he said “no because I
hate and detest hospitals” that's another new one for my youngest.
He then said “I don't want to be here” so I told him “walk home
then” I didn't need any crap from youngest. I've had non stop crap
since 6am this morning from eldest when he was slagging me off and
those were his first words to me in 11 days. Youngest stayed sitting
in the waiting area.
Eldest
had a chest and a stomach x ray. All was clear, a nurse tried to
take gas exchange blood from an artery in his wrist but she couldn't
do it. I noticed his drip was not working and had to get a nurse to
fix it, when she did she sped it up. A registrar came to see him and
said “he's a mystery and it must be due to the diet he's been on”
I said “eldest would never normally complain about pain so it has
to be bad for him to need to leave the house to come to hospital”
Eldest was given Pethidine and it's the only thing that worked for
him. It was now 6pm and we were still in the hospital. The registrar
said “the only cause for concern are the crystals in his urine
because this can lead to stones but you can go home now”
We
got a taxi home at 6.45pm. Eldest was sick again but went to bed and
took the bucket with him. I carried up some drinking water for him
and went to bed myself at 8pm. I felt so sorry for eldest and sorry
for my youngest too having to be in the hospital waiting area for
hours and so sorry for my poor puppy left home alone all day.
20th
June
Declan
Sweeney the Director of Re Connect
Autism came
to the house at 11am, he explained his service to me and it sounded
perfect, it could maybe save my almost broken in pieces relationship
with my sons. I gave eldest one of his leaflets, I told him “this
would be a better service than Gheel who want to “take mum out of
the picture” and let us babysit you attitude” I told Declan I
would contact the HSE.
I
rang the HSE. I was put thru to Disability, no manager was there so
I left a message with a woman detailing who I was, what I'm supposed
to get in the way of family services but don't “so I'm taking
matters into my own hands and I want you to contact Declan Sweeney
and provide us with his service instead” I was asked by the woman
“do you have the correct office for your area” I sighed very
loudly because this is the first thing they always ask when you ring
them, they must be reading from a fecking script. I then got told
“the message will be passed on” I heard nothing back from
anyone. I'm still raging at Gheels CEO Peter Byrne telling me “the
only route to eldest is by removing you” I felt like telling him
to hire a hit man then, the silly fucker.
I
sent Edel of Gheel a text telling her “eldest has been ill and was
in casualty for 8 hours” she replied “I will phone you in the
week” It seems like my key support does not think I need support
and she didn't even enquire why eldest had been in hospital. They do
not give a bollix at all, do they.
Email
to the solicitor. “I still have no maintenance paid to me and I'm
still waiting on my documents from F and I'm sick of asking for them”
Eldest
is no longer sick but he's down in the dumps and he's definitely in
a bad mood about something.
21st
June
It's
the first day of summer and it's pissing down with rain.
I'm
raging about Edel of Gheel. My son spent all those hours in casualty
with chest pains and non sop vomiting and had to go to a hospital
after not voluntary leaving the house in 5 years and after I informed
her, she told me she would phone me in the week. I want it in black
and white what service we are supposed to be receiving because this
is not on. Crisis support my arse. Eldest does not need a PA to
replace me as a baby sitter or someone to run around for him, he
needs practical help, supports and services as said by Dr Amitta
Shah, he needs professional help to rejoin the outside world again.
I
told eldest this morning “Gheel do not give a shit so we had better
start researching ourselves what options there are to help you out of
this way of life” He said “okay” It's only when I talk tough
that he listens to me and knows that I mean business.
The
solicitor rang to tell me yet again she cannot make it to court with
me and neither can F so she's sending a woman called J. I was told J
is the same height as the solicitor and blonde. FFS. I asked her “why
are you sending a stranger when you're my solicitor” she said “I've
sent your history to J so she'll be up to speed with your case” Is
that even legal for her to do that when she didn't ask for my consent
about it. I'm not happy about this at all, it also means I now have
to get my court file out and do another one for this woman I've never
met and just hope that she gets the time to read it. I have no
fucking luck at all in my life. It's one thing after another.
22nd
June Court.
I
was awake at 5am. I woke youngest up at 7am and we left to catch the
8.30am bus. It was pouring down with rain. I was feeling nervous for
some reason and got an attack of Neuralgia down the right side of my
head, face and ear. I met up with L inside the court and she pointed
out “the happy couple” as she called them so I knew where they
were sitting and they both looked miserable and had no posse with
them today. There was no sign of any solicitor looking for me so I
sent my solicitor a text, she replied “J is in there somewhere”
which was no help to me at all.
At
the call over I had to go upstairs to the court room alone.
I
then had a tap on my shoulder asking “are you A” a nice girl was
standing in front of me that I found out was J and I handed her the
new file I made for her and asked her to read it before I went into
court in front of the judge. We were all like sardines in that
waiting area because the place was packed with people. J told me “I
have two other clients and have to run off to see them”
As
she walked away I noticed where the ex was and he was staring at me,
I found that weird. We were 5th
in line to be seen in the court room so I waited in the foyer and as
soon as my name was called and we went into court my solicitor J
asked the judge for 5 more minutes because “I've not spoken to the
other side yet” so out we trotted again. Both solicitors walked off
to talk to each other.
I
stood against the wall and the ex was crouched down in front of me
but to the left of me and started going thru a Tesco carrier bag he
had with him then he started writing, he stood up and approached me
and asked “can I talk to you” I told him “ you're 6 years too
late but work away if you must” He showed me an A4 piece of paper
that had my writing on under the heading of £151,000 inheritance
he'd got, he asked me “is that your writing, do you recognise this”
I said “yes, but I also recognise your writing and you have changed
all the figures, I can clearly see you have written on top of my
figures” He said “I have all the receipts” I said “fantastic,
just show them to the judge when we go back into the court” He
ignored that and said “you spent £24,000 on Xmas and flights in
one year alone” I said “you're madder than you look and how the
hell did I get access to £1 never mind the bullshit sum you've just
come up with when I'd no bank account and no access to any money”
He said “there is no money” I said “I don't care but what I do
care about is you proving that statement you just came out with
because there was money and plenty of it so we shall just leave it to
the courts to find out where it all went to then shall we” He went
quiet. I asked him “how could you see your own flesh and blood in
this court and not even acknowledge youngest, you just walked past
him, what father walks past his own son” he said “well he does
not talk to me” I asked him “what age are you and why do you
think youngest doesn't want to speak to you, do you really want me to
remind you here and now what you did to both your sons” He said “I
tried to talk to youngest before and he ignored me” I said “you
offered him a biscuit and youngest told me and said who am I the
bloody dog” The ex started laughing, I said “it's not funny is
it” He again said “there's no money” I replied “that’s a
pity because €690,000 has gone thru your numerous bank accounts and
you left us with nothing” he said “that's rubbish” I said “oh
I can prove it, I never open my mouth unless I can prove what I say
is true so you need to disprove it by providing your own documents to
dispute what I say and I do provide” He looked confused at that.
He
said “my last solicitor charged me €10,000” I said “yeah
right, for 3 court cases, pull the other one, you surely haven't
forgot or believe your own lies because I know it was spent on the
Save Tara Hill campaign you're heavily involved in, I have all the
photo's and what you wrote online so I can prove it”
He then put on his sick voice (ughh) and told me “I’ve lost 4 stone” I reminded him “you told the court the last time that it was 3 stone” I said “you really should remember all your lies” He said “it's true I cannot afford to feed myself” I told him “get back into the family home then because the €1,000 you spent on Organic food is still in the house in a large box so you have no need to go hungry and your girlfriend should be careful what she puts online because she has a photo which shows the date clearly on it of your dinner and a bottle of wine on the table and have you forgot you said the same thing on the 16th Oct 2008 when you took me to court and said you couldn't afford to feed yourself and lo and behold you were a busy bee spending €75,000, yet you swore on the bible you had nothing, it's funny that you also forgot I have a photographic memory for all this shit” He said “I also had a very large tax bill” I said “you have used that old excuse for as long as I've known you and it's rather stale now so please make up something else just to halt the boredom for me, all you have to do is provide the judge with your last tax bill or the address of your tax office as it will be easy enough to check out” I asked him “how come you have all these so called receipts when I don't have any copies” then asked him “why were the kids stuff and my clothes dumped outside the family home to be left to the elements to be destroyed” He said “you managed to take the TV” I said “I had to sell the bloody TV to feed us because you would not pay maintenance” He changed the subject, (he's not that mad then) he said “A.K the tenant you got kicked out and you really upset her, thought the black sacks were rubbish and threw them out” I didn't believe a word of it, I know it was him that did it and he always denied any knowledge up till now. I even had a solicitors letter from him claiming he knew nothing about any black sacks belonging to us. I said “I hope you've saved all of A.K's rent payment receipts too because I'm entitled to half of all you received from her” He started shouting at me “Your entitled to nothing and you will get nothing, how dare you keep trying to get anything when I have nothing” I was getting embarrassed because there were many other couples waiting to go into court listening to him shouting at me. I saw a figure come rushing up and he was grabbed by the arm by his solicitor away from me. She told him “stay away from your wife, what do you think you are doing, you are not helping your case at all”
He then put on his sick voice (ughh) and told me “I’ve lost 4 stone” I reminded him “you told the court the last time that it was 3 stone” I said “you really should remember all your lies” He said “it's true I cannot afford to feed myself” I told him “get back into the family home then because the €1,000 you spent on Organic food is still in the house in a large box so you have no need to go hungry and your girlfriend should be careful what she puts online because she has a photo which shows the date clearly on it of your dinner and a bottle of wine on the table and have you forgot you said the same thing on the 16th Oct 2008 when you took me to court and said you couldn't afford to feed yourself and lo and behold you were a busy bee spending €75,000, yet you swore on the bible you had nothing, it's funny that you also forgot I have a photographic memory for all this shit” He said “I also had a very large tax bill” I said “you have used that old excuse for as long as I've known you and it's rather stale now so please make up something else just to halt the boredom for me, all you have to do is provide the judge with your last tax bill or the address of your tax office as it will be easy enough to check out” I asked him “how come you have all these so called receipts when I don't have any copies” then asked him “why were the kids stuff and my clothes dumped outside the family home to be left to the elements to be destroyed” He said “you managed to take the TV” I said “I had to sell the bloody TV to feed us because you would not pay maintenance” He changed the subject, (he's not that mad then) he said “A.K the tenant you got kicked out and you really upset her, thought the black sacks were rubbish and threw them out” I didn't believe a word of it, I know it was him that did it and he always denied any knowledge up till now. I even had a solicitors letter from him claiming he knew nothing about any black sacks belonging to us. I said “I hope you've saved all of A.K's rent payment receipts too because I'm entitled to half of all you received from her” He started shouting at me “Your entitled to nothing and you will get nothing, how dare you keep trying to get anything when I have nothing” I was getting embarrassed because there were many other couples waiting to go into court listening to him shouting at me. I saw a figure come rushing up and he was grabbed by the arm by his solicitor away from me. She told him “stay away from your wife, what do you think you are doing, you are not helping your case at all”
J
my solicitor for the day came up to me and apologised and asked if I
was okay, I said yes and she asked me to follow her to somewhere
quieter. She told me “his solicitor is claiming all the money is
gone” I told her “he stood and swore the same on oath in 2008
and I proved it was the same date he began withdrawing €75,000 from
his bank account, the man is a liar and I can prove it and it's him
that needs to disprove it to the court”
We
went back into court. J told the judge that the ex “left the family
home and rented it out and has not given a penny to his wife” The
ex denied this, he said “M refused to give me any rent and the
other two who were living there had no money to pay me anything at
all because they were just doing a course”
J
said to the Judge “it makes no sense at all that he's paying €100
a week private rent which is more than the mortgage he's not paying”
His
solicitor asked that “the maintenance arrears to be put forward for
the Circuit Court because there is a divorce pending” and I almost
hit the roof and grabbed J's arm. J interrupted and said to the judge
“the divorce has been ready to go for a year and he is stalling it
and has repeatedly refused to declare where all monies and assets
have gone to and this has been the case for the past 6 years now”
she told the Judge “this court and the court in another County have
demanded proof but he just simply fails to show up then issues
another summons the next day”
The
judge asked him “where did your inheritance came from” then asked
him “what is your fathers name” then told him “you have 6
weeks to provide this court with all bank statements in Ireland and
England or you will be looking at jail as an option if you do not
provide these to the court”
The
Judge then asked me “is the maintenance up to date” I said “no”
and he told the ex “hand it over now and if you default again your
wife can bring you back here and you will look at jail time”
His
solicitor by now clutching at straws told the judge “my client has
been bad with mental health problems” the judge said “haven't we
all” His solicitor said “he's been bad enough that he's had to
spend time in a mental health unit” The judge asked “how has
that stopped him paying maintenance then” and said “hand over €80
now or remain in this court building and I will deal with you after
all the other cases have been heard” His solicitor said “he will
have to go and get the money from his partner” The ex left the
room to go and get the money.
His
solicitor told the judge whilst the ex was out of the room “ he's
at present being assessed for Aspergers Syndrome” I shot my hand
up and the judge nodded at me to speak, I said “Aspergers Syndrome
is not a mental health issue and I should know because I have two
sons with this condition” he said “sorry for your troubles”
His solicitor asked about getting criminal legal aid for her client,
the judge said “no, if he has nothing to hide then he has nothing
to fear and will not need legal aid”
We
were told to leave but not to leave the court till I had the money in
my hand. I told J “this court has no jurisdiction to order a full
disclosure” she said “it does now” and hugged me because she
knew this was all I ever wanted. She said the judge also ordered
something else which means the bailiffs can go into whatever house he
lives in and remove anything of value including documents. J gave me
back my file and said we can meet up for a proper chat at the Four
Courts before the next court case in September.
I
went downstairs to the foyer and smiled at my youngest and L and told
them I had to wait on some money, his solicitor came up and asked me
“will you sign a receipt for the €80” she was giving me. I
laughed and told her “I was made to do that in my marriage when and
if he decided to give me any money” She laughed and said “he has
a huge case full of papers but I didn't have much time to prepare
because I only got him as a case this morning” We all left and I
saw him and his girlfriend in deep discussion with the solicitor.
23rd
June
I
had
a chat with eldest about Michael Mc Creadie, he said “I wouldn't
mind meeting him” I knew this had to take place fast in case he
changed his mind so I rang Edel from Gheel and told her, she said she
would be out to the house tomorrow at 11.30am.
Had
a call from the charity, they would like me to be a volunteer in
their detox unit, I am thrilled about that and cannot wait to start.
I
reminded eldest that Edel would be at house tomorrow and would tell
him all about Michael Mc Creadie.
24th
June
I
woke eldest up and again reminded him “Edel will be out this
morning” he told me “I need a Xanax” and he went into the
toilet but within two minutes he came out and told me “I have no
need to see her, I'll just read a book on anxiety” I told him
“you've had that book for months now and not read it at all and it
will be good to find out about this professional and you can get an
assessment done too if you're interested because we think you're like
how you are because of how your father treated you, nothing else”
he lost it with me and roared at me “I'm a fucking social retard”
I asked him “do you actually know what that word means because I'm
now fed up with both you and youngest using it willie nilly” he
told me “fuck off, I'm not meeting anyone” I said “it's not
fair Edel has probably been up all night getting the correct info for
you and now you're changing your mind at the very last minute” He
changed tact and started on me by saying “you called me socially
inept when I was only 12 when I was making a cake” I said “you
need to start getting your facts straight because I have never used
the words “socially inept” in my extensive vocabulary. He stopped
and he stood still and looked at me sideways and said in a very low
voice “do not do that, do not lie to me, I do not like that” I
said “the only one lying thru their teeth here is you, turning the
bloody tables on me because you've bottled out of meeting Edel, it's
help you need before I crack up or is that what you want to happen
considering you and I quote “fucking hate and detest you and hope
you die” you have mixed me up with someone else so search your
bloody brain and figure out who said those words “socially inept”
to you because it certainly wasn't me and I don't appreciate being
lied about” He marched off, I still had so much more I wanted to
say to him, I was furious at him and about him, the cheeky git that
he is, I didn't feel in the least bit scared of him today because he
pissed me of to the point of anger and he knew it which is why he
stormed off and wasn't still standing in front of me finishing me off
with a verbal blasting of all the worse words he could think of to
hurt me but no matter what nasty vile things he calls me I will not
allow him to frigging lie about me, the days of any man doing that to
me are well and truly over.
Something
inside of me snapped or maybe I just woke up to the fact that I'm
being used and abused yet again, for him to stoop so low and tell me
to my face I said something to him when he was 12 when I never said
any such thing in my life was so beyond me, he's just a coward who
doesn't have the balls to meet Edel so spun everything around to
blame me for something I never said in my life and I hate liars with
a vengeance, they are dangerous and they need to lie on top of lie on
top of lie to cover the first lie they ever told. I have not been a
liar. I am not a liar and I never will be a liar. This is one thing
he will not get away with. I slammed the kitchen door so hard after
he left and I never do that so he knows how pissed off and angry I am
at him.
Youngest
came running down asking “what's going on” I told him “ask
your lying brother what's going on” and told youngest “I'm sick
of setting things up for eldest, jumping to his command when he wants
this, that and the other and at the very last minute he's bailed out
but guess who has to deal with it, not him, not you, but me and the
frigging icing on the cake is him shouting at me that I said
something when he was 12 when I know I never said any such thing at
all and no one lies about me so tell him thanks for that and he's
made up my mind for me because I am now done now with the pair of
you, you're both grown, you're both adults, I've done my job so sod
you both”
I
have changed, something has changed. And no one likes it, not even
me.
I
took puppy out to the park and rang T. She said “I don't know why
you bother your arse with them at all, they are both disrespectful
little bollix and I've seen it with my own eyes. Come down to me for
a couple of days” I said “I wish I could but I have Edel coming
out today” T said “I wish one of them had lied about you years
ago because I prefer this side of you, at last standing up for
yourself, do not to forget how you feel at this minute in time, they
will both be shocked at mam fighting her own corner for once” I'd
never thought of that before. It is weird tho, I will fight anyone's
corner but I rarely fight my own. T again asked me “come down to
me for a few days break because I'm scared you're heading for a
breakdown” she said “I think they both take the piss and tell you
things to shut you up but when push comes to shove they have you
exactly where they want you and I knew this day would come” She
said “I want to read them both the riot act” I said “that will
only make things worse” she said “how the hell can things get
any worse, the state you are in and that bastard (ex) swans about
with not a care in the world yet claims the sick role whilst you, the
healthy one is being brought down low by it all”
I
sent Edel of Gheel a text telling her “I'm out walking because if I
had stayed in the house I would have exploded and thrown eldest out
on his ass” Edel texted me back at 11.05am that she was on her way
out to me.
Edel
came to the house. I told her “I'm done, I've
put up with many things but I will not put up with anyone lying about
me, I had my fill of that with the ex, he almost drove me insane, his
insistence that I had said or done something made me start believing
him and question my own sanity and no one will ever get the chance to
do that to me ever again. My ex even tried to tell me his eyes were
grey when they're blue and I ended up studying frigging photographs
even tho I was with him then for 17 straight years so no one is lying
about me and affecting my mental health ever again, it's bad enough
how eldest and youngest treat me and talk to me but this I will not
put up with” It seemed like it was my turn to rant and rave like
my sons do regularly because I couldn't let this go, I couldn't get
over it but I know for a fact that I never uttered those words eldest
accused me of saying. I said “I'm pig sick of setting things up at
his request, like the home school and the man and woman spent hours
in the other house with eldest sitting beside them and smiling and
chatting then the minute they left told me “I ain't fucking doing
it”
Edel
said “he probably does want to meet me but has blown it up in his
head and his anxiety and the reality of doing it stopped him” I
said “he has no problems when he wants something, like T taking him
to change his 3V voucher because it would not work” I said “I
wish he would just hit me over the head with a hammer or something
and put me out of my misery once and for all because I hate living
this life, I hate being used as their shield and I get no thanks or
appreciation at all for the life I've been forced to lead at their
behest, at their beck and call, they are not kids, they are adult men
and should be helping themselves out of this mess” I said “if
I'm ill I see a doctor, if I had Autism I would seek out an expert to
help me live a full life but they don't do fucking anything at all
except bark at me, they take it all out on me and I've had enough of
it all, I'm sick of them continually telling me how much more
superior they are than me intellectually but are doing Jack shit to
get out of the mess they are in, the mess they have me in, have
dragged me down to” Edel said “I know how stressful the past 8
weeks have been for you with youngest also being diagnosed, you need
to take time out for you and you alone, I fear you're becoming burnt
out” I had never heard that before. She said “they can fend for
themselves for a while and will not go hungry, they are capable of
making themselves a sandwich or whatever they like, I think you need
to go off somewhere, anywhere to try and relax” I told her “T
invited me to go to her place” she said “it's a good idea and you
should seriously think about it” I told her “I would still have
the problems I have when I came back” She said “I do not know
how you feel but I understand why you're feeling as you do”
When
Edel left I did not make their dinner, they can fend for themselves,
they ain't handicapped, they can make their own damn dinner. I went
to bed, my eyes were so sore from crying, I don't even know why I'm
crying any more, I know I'm angry, frustrated, lonely and in fear for
my own sanity.
Guilt,
that old mammy guilt came into play and I ordered them a pizza. I
called up the stairs to them that it had arrived, I said “eat it or
you don't eat it, I don't care” youngest came into my room asking
me if I had any Rennies because he had heartburn, I told him “no I
don't and if you need them then walk to the local chemist and get
them, he said “I'm not doing that” I said “don't ask me to do
anything you're not prepared to do yourself ” He walked out. I
would have normally ended up doing his bidding but I'm not today. I have
been truly sickened by eldest and been thinking what they both put me
thru.
27th
June
Walked
puppy to the vet for her last injection. Went to Tesco, made sons
lunch and covered with plates then called them for it and went into
my room, I just do not want to be around them at all.
Made
them dinner at 5pm and called upstairs that it was ready, only eldest
came down and said “I'm taking his up to him” that was a first,
he never does anything for anyone so an alarm went off in my head and
I went upstairs to find out what was going on with youngest. I asked
youngest “what are you still doing in bed at this time of day”
he told me “I have nothing to get up for” then he clammed up,
something was going on but if I persisted in finding out he would
retreat even more and I was far too drained to be bothered any more
and felt not an ounce of guilt for saying so. I also felt disgusted
because I hate the way he pulls the woe is me attitude, it's
emotional blackmail meant to get me back to heel, I had it with his
father and then with them both but it's not going to work this time
because I am teetering on the edge here as it is and if I do try to
find out what's up with him, I know he will just clam up even more or he will tell me to fuck off and you do not care, I'm not going to give him the
opportunity today to say anything in the way of abuse to me, I know
he will come out of it when he is good and ready.
Youngest
did not eat the dinner I made, he ate a full packet of ice lollies
instead, I do not know what's going on and I'm too drained to find
out, too drained to care. I need a break, a normal life, some
laughter. I want more than this continual drain on my spirit.
26th
June
I
kept waking up thru out the night, I gave up even trying to sleep and
went on my computer. I was in the bath and dressed by 7am. I was
trying to think of what I can say to youngest that would help him but
not have him lambaste me, I am sick of the cycles of this crap, I get
no break from any of this, I wish to god they both would put
themselves in my shoes for a change and see what I have to cope with
from them, they only have one of me but I get it in stereo from them
and they are getting worse and I am getting weaker, too weak to cope
with them both.
I
decided the best thing I could do was to get us away from the
draining atmosphere of the house and get us out into the fresh air, I
knew he would talk if we were out and about walking. I woke him up at
9am telling him I'd ran a bath for him and asked him did he fancy
going on a train trip to Greystones, he asked me why, I said because
I heard it's beautiful and it will get us out of the house for a few
hours before it gets too hot outside, he said okay.
An
hour later and he was still not out of the bed. I went to tell him
the bath was now stone cold, he said “I do not give a fucking shit”
That is it, I'm done pussy footing around them both. I told him “both
you and eldest are going to regret treating your mother like a piece
of crap, like shit, I'm sick of it, I'm not putting up with your
abuse, swinging moods, you will not be happy till I am swinging from
a rope and now you can both go and live in a place of your own”
youngest said “why, what have I done” I was open mouthed, he
surely couldn't be serious after the way he just spoke to me. I told
him “why don't you just stay in your bed and think about it” and
I left his room.
I
was so looking forward to going out, I was wearing a skirt for the
first time in years, I wanted to get out and away from the atmosphere
of misery, doom and gloom that chokes me in my own house. It's only
when I'm on the verge of cracking up that I revert to being myself in
my house, it's only when I'm like this that I get the courage to say
what I think and feel, all other times I'm like a simpering wreck as
their abuse and vile insults wear me down so much so I swallow down
the real me just to try to keep the peace, don't rock the boat girl,
think of the consequences girl, well fuck the consequences and fuck
them.
Edel from Gheel is off work for a few days. Gheel is shut and in the two
years I have known them they have not once given me any number I can
call if it's an emergency and this is an emergency because I've had
enough, I know I'm shocking my sons and I'm shocking myself too but
I'm not being brought to heel by them any more.
Took
puppy for a walk, I was so annoyed and so angry and had no one to off
load to. I will be smothered in eczema before this day is over.
Came
home and kept busy, I even washed the walls down. I checked my emails
and had one from eldest and my heart started banging loudly in my
chest, it's weird how even now just seeing the ex's name can freak me
out. It wasn't from the ex tho but from my eldest who has his name.
I knew it would be abusive before I even read it.
“youngest
stayed in bed all day yesterday and today because he's fucking
depressed and won't tell me why. I want nothing to do with you
because I'm terrified of being around people and you tried to bring
someone here after I'd forgotten you'd said they were coming, leaving
me feeling sick with stress most of the day. I've
said before and I'll say again: get
me enough of any substance to overdose on and I'll be out of your
hair for good. I cannot fucking stand you and I have no future due to
me being fucked up in the head, so you'd be doing me a favour”
My
reply to eldest
“youngest
is not “fucking depressed” he is sulking either due to me (off
course) or because he has no money to do anything or go anywhere as
he constantly says, or he couldn't complete his review for a Japanese
site he was anxious to get done, if you actually conversed with him
on a regular basis he may have told you but as his Mother I know the
best thing to do is leave him to come out of it on his own. I did not
“try to bring someone here” the girl Edel from Gheel comes here
on a regular basis once per month and you agreed to come down and
listen to her as you “have no problems being out now” when you
were at the hospital and I told you about Edel knowing a Michael McCready and asked would you like to know more about learning coping
strategies re being out and you said yes then asked me to take a
photo to prove that you were out. I continually reminded you about
Edel's visit and you appeared fine with it. I cannot and do not read
minds so how in gods name am I to know how you are feeling. You
“cannot fucking stand me” I have heard it so often now it does
not hurt me any more yet I find it very strange that when you had the
opportunity to move to London with us you refused but had us up
sticks again and come back for you and from that day I have had no
life at all. I fought everyone who wanted to have you hauled away,
including your Father. I fought the HSE system which nearly killed
me but unfortunately did not. I neglected youngest to the point I did
not know he had the same condition, I've taken dogs abuse from you
with rarely a kind word uttered for anything I do, do you think by
now that I don't know of your contempt and hatred of me. You are
hardly “fucked up in the head” if people are sick they see a
doctor, if they are ill they go to the hospital, f they have a social
anxiety disorder they seek the proper help to overcome this but you
decide not to, you decide you cannot and so nothing has changed nor
will ever change until you and you alone decide. This is not the
first time you have asked me to give you enough meds to kill
yourself, you surely have enough sense to know that is never going to
happen and I have also told you it’s not like you've read it in a
book, take enough tabs and go to sleep forever, you could end up
brain damaged, nerve damaged and have to live in a hospital having
everything done for you for the rest of your life. You two do not see
me as a human with feelings, Christ knows why not and I do not
deserve your disdain, contempt, hatred, and disrespect. I deserve a
break, I know it and all professionals know it because I'm at
breaking point having not had a break in 5 years. In the past few
weeks I had daily school crap to deal with for youngest and then saw
him being diagnosed with Aspergers. I had exams to study for and
sit. I had to face that sod and his partner yet again in court (5
times this year alone) and had you 8 hours in the hospital. I have
constant pain in my ovaries that needs a hospital visit and stay over
but I cannot as yet again I put you and your brother first so forgive
me but I do not give a crap that you cannot stand me as I cannot
stand myself for putting up with all this for all these years with
not an ounce of gratitude, conversation, laughter, not an iota of fun
ever. You may want to kill yourself, you may think that I want you
out of my hair, which is complete nonsense as I could have walked
years ago, but you will not do it under my roof or with my help. If
you decide to continue with this conversation verbally I will not be
listening and will take steps to protect myself and you. I am going
to bed as I have taken pain killers for my ovaries, so leave me in
peace, your sandwich for lunch is covered in the kitchen. Mum”
I
asked my youngest to come into my room because I wanted to talk to
him, he shouted “no” and something about a bitch then he locked
himself in his room. I told him “unlock and open the door and don't
be so ridiculous” he was roaring thru the door “it's all your
fault (isn't it always) he said “you have not spoken to me for
three days now for no reason” I said “that's rubbish” and
reminded him I arranged a trip out for us this morning then reminded
him of his horrible words to me, he said “when you do speak to me
it's with disdain and aggression” I said “you have to be bloody
joking coming out with that, the only aggressor's in this house are
you and your brother and you should hear yourselves and the foul
words you cannot help but direct at me, do you think I have no
feelings and if you lie about me again then you are out the door and
have professionals sort you out and take your crap because I no
longer can” He said “do what you like, fuck off you cunt”
I
checked on Gheels website for an emergency number as I cannot take
this, there were no emergency contact numbers on the website. I sent
Edel a text asking her if she knew of an emergency number when Gheels
office is closed because I need help and I need it now. Edel rang me, I apologised because I thought she would have texted a
reply and not rang me because I know she's off work. She said “it's
okay because I'm free to chat anyway” I read out eldests email to
me and my reply and told her what youngest has been like and how he's
talking to me, lying about me and is now locked in his room and I'm
scared because the last time my eldest locked himself in his room he
took an overdose and youngest has multiples of medications in his
room and if he doesn't unlock his door then I'm calling the Garda
because I cannot go thru this fear. I was sobbing so much down the
phone to her that she could hardly understand me. She asked “why do
you think youngest would take all his meds” I said “I have just
read out eldests email to you and he says youngest is “fucking
depressed” I said “I'm sick of eldests threats of suicide, sick
of how he tells me what he feels about me, I can no longer have them
live with me, I will end up insane, it's bad enough one of them
treating me like this but two of them is just too much for one person
to cope with who has no other support at all. I cannot cope and I'm
not coping and I don't want to cope with all this any more” Edel
said “it's good that eldest is telling you his deepest fears” I
said “I'm focussed only on his hatred for me, his threats of
suicide but I'm more worried about youngest being locked away in his
room” She told me “focus on something else and make sure you go
to your course because they can fend for themselves” I was so busy
crying that I didn't see eldest go into the toilet, it was only when
I heard the toilet flush and he walked out that I realised he would
have heard everything I'd just said. I told Edel “I want this all
ended” I said “thank you for ringing me on your day off” She
said she will ring me tomorrow.
Youngest
walked into the kitchen with his dishes, he said “eldest told me
you were on the phone to someone telling them that you're calling the
Garda if I didn't unlock my door so that just proves what a cunt you
really are” I told him “get away from me before I say something I
may regret and you may regret hearing for a very long time”
God
almighty this is all just pure madness, they both obviously hate me
so much, their words, their actions, their emails tell me so, why are
they living with me then, why do they not just bugger off and leave
me in peace, piss off and leave me alone, they are really mad in the
head, they have got to be as none of what they say is normal.
I
went into my room and turned on my computer and there was another
email from my eldest. I didn't bother reading it. I've had enough of
him and his hatred of me. He is tho a joke, telling me by email that
he wants to kill himself but at this precise moment is on his
exercise bike to keep his weight down. He's not in the least bit
suicidal, it's just emotional blackmail. It's time for him to leave
home, he is nearly 20 years old for god's sake.
27th
June
It's
1am and I cannot sleep at all, I read my eldests email to me.
“My
life is fucking miserable and has been from about the age of 12. I've
spent virtually every fucking day of the past 4 years day-dreaming
about different ways of killing myself (psychiatrists call it suicide
ideation.) You brought me into this world so it makes sense you
should get the blame. I do not like you nor am I ever going to unless
you help me end this. Overdosing is a painless and guaranteed way to
go if you mix lots of substances (painkillers, sedatives) with
alcohol. I
have absolutely no future. My teeth are mangled and mutant-looking
and it'll be 2-3 years before I manage to get braces off (if I even
do fucking get them.) They'll still be dark-yellow coloured and no
amount of bleaching can fix that. I will be in my mid twenties before
I'll be back to fixing my education. I will never be able to
socialise and my life is already fucking over at this point and I
utterly despise you for the fact you didn't even fucking mention
there was anything wrong with them to me when I was a kid. I have
malocclusion at it's retroactively fucking humiliating that I had to
go to school like this. I hate the fact that I breathe. I will never
have a shred of normalcy and I want to die”
I
replied to his email and I pulled no punches either. I'm not going
to feel sorry for him. I'm sick of all his woe is him and his life:
“Makes
sense to you that I get the blame for having you!! Leave it out boy,
that’s not a very bright conclusion for an intelligent person like
you is it. Excuse me for
falling in love with your father and him not having an ounce of
decency to tell me his medical and mental history till I had to live
with it and find out for myself for 17 sickening, abusive years and
he too told me that everything was all my fault and tried to convince
me it was me that was mentally ill. Two parents had you, not
just one. Pity you didn't tell the psychiatrists when they asked you
outright the very same question re suicidal thoughts, to which you
told them no. Dr Canning also asked you last year and again you said
no, how many opportunities have you let slip by to get sorted. I do
not take kindly to blackmail and do not care that you don’t like
me, I’ll get over it, in fact I have always bloody well known it
and the only reason I put up with you is because you are my son, flip
it round for a second, would you put up with this if it were you in
my shoes? Not in a heartbeat would you as even tho you are more than
capable of doing anything, you do nothing for no one. Get over
yourself, people have to put up with living with huge disabilities
every day in life, no arms, legs, sight, have learning difficulties
but still out and about and work, you should try going to Tesco and
see them in action.
You
have had 5 years and two months to do something about your own
education. 2 years ago I got you “not school” installed, you
waited till they had done it then told me, not fucking doing it. I
sent off for the Open University brochures, you told me you could not
read thru them so I had them printed out for you to read and yet
again you did nothing. I contacted the education Dept. to get you a
tutor for leaving cert but you had to pay for it yourself and
refused, you could have done something the past 2 plus years yourself
re education.
You're
right you have no future, you have nothing with that woe is me
attitude. As you do not smile I fail to see what the problem is,
braces I have investigated can be worn for 3 months at a time, and as
you are not an orthodontist you have no clue as to how long this will
take, watching you tube vids and reading about it does not make you
an expert. Proper dentist bleaching will whiting immediately, last
year I rang 3 dentists and explained all and yet again even tho I had
made you an appointment you refused to go. You despise me for not
mentioning your teeth to you, how many times did I tell you that your
father had a small jaw as you have and too many teeth and he had to
have 6 removed, how many times did I tell you that I had no access to
money, no transport and normally no access to even a bloody phone,
you know all this because you were there.
I
am all done now. I have done my job as a mother and raised you. I am
not living this life you forced me to live any more, you ain't happy,
you make everyone else unhappy so it’s time you got your own place
and employ professional people who chose to do this work for a living
and can clock in and out each day to help you live a normal life and
help you access all you need re your teeth, your education and your
anxiety and who I know will not have you angry towards them as that
has just been saved for me hasn’t it, you actually have two parents
so why hasn’t he ever got any of this shit. Now just leave me alone
as I have reached the end of my last nerve”
It
actually felt very good to think sod him, I told him how I really
feel for a change and I do not give a crap about any consequences, I
really have had enough, perhaps this will sink in with both of them
now. I know for a fact that they would never do what they do, or
speak like they speak to another human being except me and they think
this is normal, well it's not and neither are they, this has nothing
to do with having Aspergers, it's there innate personality, their
fathers bullying and controlling genes, not bloody Aspergers.
I
couldn't sleep so I stayed up. I have a first aid course to go to
and I'm wrecked. I sent L a text asking her if she was in her office
today as I would be in town and would love to have a chat with her.
She replied she would be free at lunch time. I made the boys lunch
and left the plates covered and got the 9am bus to town.
At
lunch time I met up with L and showed her my eldests two email to me
and my replies to him and told her all that had been going on with my
youngest. She said “you look really tired and stressed out” and
asked “are you fit to stay on for the rest of the day and do the
course” I said “I would rather be out than in the house” She
said “don't feed into eldest by replying to his emails” I said
“I wouldn't normally but I'm just happy I no longer care and can
tell him how I feel for once” I told her “this is my first
permanent house in 6 years and I don't want to be in it whilst my
sons are because I cannot take any more” She told me “keep in
touch and get as much support as you can for yourself”
I
managed to stay at the course and to stay awake. I left at 5pm. I
rang youngest and was surprised when he answered as he normally cuts
me off. I asked him how many times they had let puppy out for the
toilet, he said once, I told him to let her out now and I'm on my way
back.
I
bought a cooked chicken for their dinner and made rice and wedges and
called them down. They both came down for it and they both said thank
you which was a nice change.
I
checked my emails and eldest had sent me another one. I am going to
go insane because I told him to leave me alone and in peace. I'm not
reading it. I'm too tired and I'm going to bed. I will take myself
away somewhere for the day tomorrow.
28th
June
Up
at 6.30am, I feel okay energy wise. When youngest got up I asked if
he would come to the shop with me to hold puppy outside whilst I
shopped, he said okay but that he needed a bath first, it took him an
hour.
I
haven't spoken to eldest, how can I talk to someone who openly
despises me. When I think of them both I think having Aspergers
doesn't make you lazy, abusive, aggressive, disrespectful and violent
and all this is only ever aimed at me.
I
made lunch for them and went off to County Wicklow, it is a beautiful
place. I popped into a cafe and had tea, I felt a bit stupid because
I was on my own and the place was packed because the weather is
gorgeous. I walked along the beach, I have so many memories of doing
this daily with the boys in England, silent tears dripped down my
face. I need a fucking lobotomy to release me of all my memories
that now only cause me pain. How can my sons now be like this when
they had my love always.
I
got back at 6pm and made dinner then took puppy for a walk. Not a
word out of eldest or youngest at all to me.
29th
June
Up
at 6am. Woke youngest at 9am by asking him “ can I have all the
rubbish out of your room for the bin man” his room was full to over
flowing and all rubbish was strewn over his floor. He asked me “where
are you going” I said town, he asked me “is the water hot” I
told him yes. I think this means he wants to come out with me.
When
youngest was ready he saw I had a rucksack and asked me again where I
was going, I said “town then I'm going to jump a train to go to
Bray if you feel up to it” From nowhere he said “You never
mentioned Bray to me, I'm not going, how dare you disrespect me” He
went off to his bedroom leaving me stunned with confusion.
I
walked puppy to the park and thought Christ almighty what have my
sons become, they are not normal in the head any more, no good them
blaming Aspergers because they were raised without me knowing they
had it. They wouldn't even talk to their father this way because they
are shit scared of him so why the fuck do they think it's okay to
talk to me like that.
I
come back from walking after an hour. Youngest came down and asked me
“Are you going to town or what” I said “I told you earlier I'm
going to town then I'm going to Bray” he said “forget it then”
I haven't a clue what he's going on about but I do know that my boy
ain't happy about mum doing something for herself for a change. I am
drained by him and it's all mental, not physical.
30th
June
Youngest
asked me if I was going out today. I swear I shall go criminally
insane if I get a re run of yesterday. I told him I'm going to the
seaside, he said he'll come with me.
It
was a lovely scenic journey and so peaceful walking along the sea
front, hearing the sounds of the waves, I have missed that so much.
I
had a conversation with youngest about his behaviour the past few
day, he said “I am angry at living in poverty” I said “you
have no idea what real poverty is” and reminded him he's “well
fed, clothed, has heat, has all he asks for from me” He said
“having no money of my own means my life is on hold, I want to do
so much, to go places and leave the country” I said “you can do
all that without abusing me and you have your whole life ahead of you
but you wont go far at all unless you gets your Leaving Cert as no
one will employ you without proof of an education” He said “I do
not want to be employed and work for cunts” he has a way of using
that bloody awful word and putting such emphasis on it that it's
practically spat out of his mouth with venom. He said “I will have
three businesses of my own” He then told me about an old man, an
animator who died and made him “realise I have done nothing with my
life so far” I said “the only way you can change your life
financially is to get yourself a job, any job, so you can have a
regular wage because I'm keeping you on what I get and it only
stretches so far” I had a long chat with him about Eldest and his
emails to me and why “I panicked and got so worried with you
locking yourself in your bedroom and what's worse is I know you knew
I would be worried” He said “Eldest was practically in tears
because he heard you on the phone to someone telling them you were
ringing the Garda and he told me to get out of my room and go
downstairs to prove I was no longer locked in my room” I said “why
on gods earth did you do all that to me and say what you said to me,
life is heavy enough for me to cope with without extra heaped on my
shoulders” He said “why are you such a cunt” I couldn't
believe it, I felt like leaving him and going off on my own in a
different direction. He just proved he does not give a damn, he is
selfish, ignorant and not worth another ounce of my time or energy. I
am done with him.
1st
July
My
friend sent me a text, she is back from her holidays, she rang me, I
filled her in on all going on with eldest and youngest. I told her I
give up, have had enough, am taking no more, my mental health and my
life is worth more than this. She said it's about time I began to
think about myself.
No
maintenance in the bank again.
I
started going to the charity meetings once a month.
I
got the 4.30pm bus back from town. Youngest met me off the bus. He
told me “I've done the dishes and hoovered the living room for you”
I gave him a hug and said thank you. We walked to Super Valu, he
wanted diet coke, I got eldest Irn Bru. Youngest took it up to him
but he said he didn't want it. Silly me I forgot when eldest has the
hump with me he won't touch anything that's Scottish. Something is
seriously wrong with that boy/man.
Youngest
wanted me to go out walking with him so I brought puppy too. I told
youngest “as you're now a man I'm going to talk to you as one adult
to another and I want you to listen, not butt in, just listen” He
nodded his head. I told him “ I am going to Gheel to get them to
find eldest a place of his own to live in before I slide under and
never resurface, I am finished and washing my hands of eldest and if
you want to leave with eldest then you're more than welcome to move
with him if that's what you want to do but if you want to stay with
me then you need to find a professional to let off steam to because
it cannot be aimed at me any more, I am giving eldest one chance of
either moving out or agreeing to meet with a professional once per
week and I feel stupid and weak to again be on the receiving end of
being used, abused and controlled by men who should love me. I
deserve a peaceful life and no more walking on egg shells, above all
else I deserve respect for all I have done for you both” I said “I
realise eldest may well refuse both options and it will be a
traumatic time for him if he has to leave the house but he will not
change and so I have to” I said “I know he will not talk to me
the rest of his life once he has to leave and no doubt I will be the
one to blame for all that's wrong with him to anyone who will listen
but I can live with that as I know the truth and so does he, I now
realise we have no family life and have not had for years and it will
never change” Youngest said “eldest knows himself he has
something more wrong with him than Aspergers but he hardly talks to
me and will not tell me what he thinks he has” I said “only a
professional will be able to find that out then be able to help him
because I cannot” We walked back home, both of us now deep in
thought.
For
someone who loves life and human company like I do, all I have
thought these past two years is I wish I was dead. I am furious at
all the professionals in our lives since that other County 2006 and
now 2011 and they have and still have done nothing. They just sit back and
wait to pick up the pieces once the carer is destroyed, has had
enough, falls apart. How dare they, how fucking dare they. God
almighty even I know that it's cheaper to support people so they
don't fall apart. This is peoples lives, their mental and physical
health, my mental and physical health at stake. Who cares, they
certainly do not, they do not live this life or live with my sons, I
do. I know for the professionals it would be of to a residential home
for their loved ones so it would not affect their lives, they haven't
a fucking clue.
Went
to bed at 8pm. I am so pleased that youngest seems to be coming back
to himself again and is making an effort. Eldest refused his dinner
again, it's still in the kitchen. It's always the same old merry go
round with him but there is nothing merry about any of this.
2nd
July
Woke
up 4.45am, I heard eldest in the kitchen getting cereal. I cleaned
the house when he went back to his room. When youngest got up he
asked me if I was going out today, I said I had the charity social
trip to go on. He said he was bored so I cancelled the charity trip
and went out with youngest instead taking puppy to St Ann's park. We
bought lovely cakes in the French market.
Made
eldests dinner when we got back, youngest called him for it, he said
he didn't want it. It dawned on me that he's not coming down for it
because I have my laptop and computer desk in the kitchen so I asked youngest to help me up to my room with the desk to see if eldest
would come down then. I was right, he came down for his dinner when I
was no longer sitting in the kitchen.
4th
July
I've
had enough abuse to last me a lifetime from eldest and now youngest.
How
can you love someone who hates you so much? Eldest is not talking and
it’s killing me. I have so much to say to him, to ask him, to
share with him. Why does he hate the only person who has ever loved
him, who ever will, and will love him till the day I die, I have
nothing to prove any more, the past 5 plus years of living this way
should have shown that. 18 years may have gone by in a flash but I
still see me birthing him, still see those formative years, still see
that absolutely gorgeous baby, infant, toddler, child, youth, my son.
I love him but can no longer help him, I am not equipped for what he
needs. I am sorry. I am desperately sorry.
I
am furious at the so called professionals, this is peoples lives,
their physical and mental health so how dare they just sit back and
not do anything constructive except jolly me along to check how I am,
to make sure I am holding us all together alone with no other
frigging life at all. Could they do this, I very much doubt it. It
would be off to private institutions for their offspring I imagine.
Perhaps I am wrong. I remember talking to a psychiatrist who told me
“at age 13 children are well equipped to go and live in a boarding
school environment, in fact it would do them good, teach children
independence and self sufficiency” I remember thinking what an
idiot, not a maternal bone in her body, off load the teenage years to
someone else so you can continue down the career path you chose for
yourself and yes she had two kids in a boarding school, having money
and a good education changes lives, no point me thinking how it would
have changed ours as I will never get what is half mine legally. My
relationship with my eldest has now irretrievably broken down, he
does not speak to me and I will not speak to him. I would previously
have found some excuse or another and “gave in” but not now, too
much has been said and done to me so I’m done and informed Gheel
that I'm done.
Walked
to St Ann's park with youngest and puppy, then went to Tesco and
walked home.
Edel
from Gheel rang me. I told her I'm out in the street which means I
cannot talk as things are too personal to do so. She carried on
talking and asking me questions and I let rip at her by now not
caring who the hell heard me.
I
told her “Gheel are sitting back watching while I fall apart, you
have done Jack shit except send two letters to my son” I peppered
this with apologies to her for her getting it from me “but thanks
to your agency doing nothing in the way of services and supports my
relationship with my eldest has now broken down and I will not be
seeking to repair it and I want him out” I told her “it takes me
a long time to awaken from stupefied slumber but once I do wake up
and make a decision I stick to it and I will not change my mind. The
only thing open to my eldest now and I mean it, is that he has to
agree to meet with a professional once a week to talk over all his
problems if he wants to live with me because I'm not a professional
and I will not be abused any more by him, he is an adult and can take
responsibility for himself. 5 years and 3 months I have had of this
and it's enough so when the hell are Gheel going to start listening
to me as they clearly haven't since April 2009 and I will go public
again and I don't care if the whole world ends up knowing me any more
because I've had enough. I know this is more than Aspergers and even
then Aspergers is not a free ticket for him or youngest to say or do
what they like continually to hurt me, do you all think I'm a bloody
robot with no feelings at all”
Edel
said “we can come up with some practicalities at the meeting with
Andy McDonnell” I said “the only topic of discussion will be my
eldest is out of my house for good or he agrees to meet weekly with a
professional, nothing else, I'm not interested in anything else.
Practicalities will not help me, it's either in or out for eldest
under my rules from now on” I told her “I do not like Andy McDonnell anyway because I have never forgotten the veiled threat he
made to me about him having to go to the high court to remove a child
from a family to get them help which he told me the very first time I
met him and I’m done taking abuse from anyone including
professional abuse of power, I'm taking back control and I have a few
thing to say to Andy McDonnell because he really upset me the last
time I met him and I shall be airing my views on the matter and see
if the air can be cleared, if not I am finished with your agency”
Edel
said “we have to focus on what can be done and it's no good you
getting at Andy” I said “I will air my views as I see fit and
they are my terms, I've had my eyes opened and it's either my way or
the highway for eldest” She asked me “what's your new
counsellors name” I said “that's not relevant, I found the
counsellor under my own steam after waiting on you repeatedly telling
me you would source “specific counselling” for over a year and I
still heard nothing so it's my business who I'm seeing because I pay
for it”
I
felt awful erupting at Edel like that but it had to be said, it's
just a pity it was said in the street but I did tell her when I
answered the phone that I couldn't talk. I
accused her service “of trying to cover a broken bone with a mere
plaster, you wait until families fall apart at the seams mentally,
emotionally and physically. I no longer trust your service, my
eldest has now stripped away any remaining love I felt for him and I
will not be used nor abused by him any more, he's an adult and 5
years plus 3 months of this perpetual torture is enough for me,
Aspergers is not an excuse nor a free ticket nor ride to do and say
what he wants to hurt me and only me”
I
have a fabulous memory for anything that effects me emotionally, I
have no idea how I do it but a simple key word will propel me back to
whatever memory was triggered and I recall where I was, what I was
doing, what I was saying etc. The downside of that is all the
memories I have are painful and so hurt me when recalled.
I
missed a call from the solicitor. I rang her back and she said “the
ex's file is now with Dublin Law Society” I filled her in re
eldest, she asked me to “put it in writing” and send it to her, I
said “no, it has nothing to do with my divorce” she said “it
will be a true statement of the stress you are under” I said no.
5th
July
S
the Advocate rang me. I told her about my call with Edel and how it
was all said by me in the street and I'm really hanging on by a
thread and cannot take any more. S told me “you have genuine
complaints” and “I haven't heard you as strong as you are now for
a long time so stick to your guns and if you need my help to put in a
formal complaint just give me a shout” She also said “I was fed
up telling you that this was abuse and not Aspergers”
Youngest
decided he was in “dreadful pain” “in agony” in fact because
he had a bit of sunburn on his neck, he refused to come out with me
to help me to carry the shopping home. And Eldest is still not
talking to me.
6th
July
Edel
sent me a text, “meeting with Andy McDonnell at Gheel Respite
House at 1.30pm”
Youngest
sent me a text asking “when are you coming home, we need bread and
diet coke would be nice too” I was wrecked after being out doing a
course the charity had sent me on. I got home by bus at 5.30pm then
made dinner. I asked youngest if eldest had spoken to him at all, he
said “no except to tell me to move when he was in the kitchen” I
hate leaving them alone together because anything could happen. I was
so tired I went to bed at 8pm.
Some
things I read online that seemed appropriate “ It's time to leave
the womb no matter how old you are” “ You have been so busy
trying not to rock the boat that you forgot to row forwards” “It's
in times of darkness when stars shine brightest” “You can still
be a good egg even if your slightly cracked”
7th
July
Meeting
at Gheel with Consultant Clinical Psychologist Andy McDonnell and
Edel.
Andy
explained Aspergers to me. I think I should bloody well know by now.
I
told Andy “I'm scared witless of my eldest and I cannot take any
more abuse or fear, my son is a walking volcano and I never know when
he's going to erupt or what he will do to me. I fully believe one day
he will kill me or kill himself and he openly hates me and it's like
a constant drip drip drip of abuse, like acid dripping on my heart
and he switches everything round to always my fault so he can piss
off because I am done. He's also punched youngest in the face twice.
I'm done, he's a grown man” I read out the contents of a letter I
drafted and wanted Gheel to send him “I want eldest out of my house
and into a safe place to live where he can be helped by Professionals
and it should have been done re Dr Shah's report and immediate
recommendations” Edel said “giving him an ultimatum will stress
him out” I said “I don't care how stressed out he gets, welcome
to my world, is it okay for me to be this stressed out then”
Andy
said, “you have been everything in your kids life so you're his
focal point for everything and I know that it's horrible for you, the
issue is what do you want to happen” I had just bloody told him. I
said “I want him out but it has to be in a safe place and not just
dumped on the streets by the Garda if I'm forced to call them. I love
him enough to help him but hate him enough now to want him out of my
house, I know one of us is going to end up dead” Andy said “you
cannot support him any more, coping strategies have broken down in
the family, this is what we need to word to the HSE, he needs a
service, a full package of services, he's a volcano all the time,
that is how these guys operate, you need to inform us formally that
you cannot cope any more” I said “I'm doing it now, I have the
letter in my hand now.” Andy said “the letter you want to give
him could either help him or send him up the pole, we need to
remove you so that supports can step in, would you be prepared to
leave” I said “that house is my first permanent home in 6
years, where would I go” Andy said “he needs to be apart from
you, for your own health, it always reaches this point with families,
we have to justify it to the HSE, it's your safety, his safety as
he's been writing to you about suicide, no way will he be able to
live with someone else, it will not be the most difficult package to
apply for, will provide three squares and support firstly at a
distance, email etc. will be done subtly till he wants to engage,
these guys are the hardest to live with on the planet, we will
get our heads together, I am talking days not months. I will
contact the HSE and tell them it’s crisis point, will make sure
something is put in place as an emergency, you are incredibly
stressed, I remember telling Martin when I last saw you, that
woman is under incredible stress. If we engineered something to
get you away for a couple of days would you go” I said “yes but
I would still be worried about him and I would have to take my
youngest because if they get in a row eldest will batter him” Andy
said “we will put a proposal in to take the pressure off you, will
be easy enough to send a Gheel support worker in just to check on
him”
Edel
– “Will talk to the Disability Manager, will draft the letter for
the HSE as I know it all. I will talk to Peter Byrne the CEO about
the best person to send into the house”
Andy
– “Be another go at engaging with him but a different way, will
contact the HSE and tell them this is coming to a crisis and we need
to make sure something is put in place as an emergency, will tell the
HSE we have a real problem here and you are reaching breaking point.
Eldest is classical Aspergers, withdrawn, won't connect with other
people, many sensory processing issues, we need to get him to
understand why he feels as he does, you need to look after yourself
and it's best not to respond to his emails, keep everything low key”
I
said to Andy “at our last meeting all I can remember from it was
was you telling me that you had to go to the high court to get a
child removed from a family to get them proper help and I read this
as a veiled threat to me and my family” He said “I remember that
it was a long meeting, a two hour meeting and perhaps I may have said
that I went to the high court to secure services for families” I
said “no you didn't because I write everything down and I know what
you said and I still remember it yet remember not much else from that
meeting and to tell you the truth you put the fear of god into me and
made me not want to engage with you again” He said “sorry if
that's what you heard” “we will have an in house meeting, get
our heads together, write to the HSE and see what can be done”
I
left the meeting.
A
lady from Crosscare rang me as I left Gheel. I tried to explain all
that had just been said but my head was spinning with it all. I told
her “I've been asked if I will leave my house but was offered no
option of where I would go, they asked me if I would go away for a
couple of days but no option of how I would fund it or where I would
go” I told the lady “I'm so confused and wish I had someone at
the meeting with me not emotionally involved” I told her “they
are writing to the HSE to inform them of the seriousness of the
situation” The lady said “that is good and something will have
to be done now”
10th
July
I
woke up to what I thought was the sound of sneezing, it wasn't, it
was my eldest being sick. I ran down to him and tried
to give him a bottle of water to rinse his mouth out but he told me
“go away, fuck off” I said okay. I got my youngest to tell eldest
to have a bath and I'll call an ambulance for him but one word of
abuse out of his mouth at me and I will leave him in the hospital.
Youngest did tell his brother for me and said he asked me to “get
me a Xanax” he took it and went into the bath.
I
took puppy out so I could talk on the phone in private to D Doc. The
woman I give the details to said “he has mental problems” I said
“it's not mental problems, it's a disability” she said “I want
to speak to him, I said “he will not speak to you or anyone else”
she said “well can he go to the doctor” I said “no, he's had
agoraphobia for years and is at this minute throwing up continually”
she said “well he went to the hospital recently” I said “yes,
it was an emergency situation and he was tanked up on Xanax to do so
because he thought he was going to die with pains in his chest”
She said “I'm putting him down as a routine visit which can take 4
or 5 hours before a doctor can come out” I said in my best
sarcastic voice “thank you so much for being so kind and so caring”
The Bitch.
After
30 minutes the door knocked, it was a doctor. Eldest was lying on the
couch, he had his blood pressure checked and his stomach, the doctor
said “it sounds like an irritable bowel” I said “it's not
because I have that and never have I had projectile constant
vomiting” the doctor said “go to your GP and get the same meds
the last D Doc prescribed for this” Eldest told youngest “I do
not need or want to go to the hospital because the Xanax has worked
and stopped me being sick”
11th
July
I
spent the day as a Massage
Therapist for a charities clients. I loved it but I'm knackered.
12th
July
One
of the bosses from the charity rang me at night asking if I would do
an extra slot for them. I said yes.
13th
July
Up
to doctor to get eldest a prescription.
S
the Advocate rang me. I told her about my meeting at Gheel “they
are writing to the HSE about the seriousness of the present situation
and my inability to cope any more” S said “they have to write
the letter in a specific way and it may make you angry but call me
about it so you do not fly off the handle” She knows me too well.
Letter
from court re full disclosure of all assets and accounts, bit of good
news for a change.
15th
July
My
friend rang, I filled her in then asked her if she could please call
Edel at Gheel for me because I have no idea what is happening with
the letter being sent to the HSE.
I
sent Edel of Gheel a text asking if we could have a chat. She said
“I'm drafting the letter to the HSE but there's no rush because the
Disability Manager is off sick” I said “there must be someone
standing in” she said “no” I said “I do not want people
coming in the house and dragging my eldest away because he will have
a full mental breakdown” Edel said “that's not going to happen,
we will arrange a support worker to come and build up to 4 hours a
week” I was confused about that, I thought that was going to
happen to just check on eldest once me and youngest were given a
break. I had no idea what was going on. They are coming up with
things they want to do and not what I was told at the meeting what
would happen. And what the fuck does she mean by “there's no rush”
so what the fuck was that meeting with Consultant Psych Andy McDonnell all about then, all that I told him and all that he told me
and I am now being told “there's no rush” With their attitude I
know they are never going to help. The shower of bastards.
T
came to visit, we and youngest went to the cinema to see The Guard
film. It was great to hear youngest laughing out loud. Eldest told
youngest when we got home “get me a Xanax now. I am sick” in his
normal grumpy and demanding manner.
I
feel like Humpty Dumpty.
I hope before this year is out that I get my divorce first and foremost. I realise some men are just plain evil and nothing on earth will make them change, nothing on earth will make them feel anything for their own flesh and blood, it was simply history repeating itself and I should have dug deeper before getting trapped but no matter I'm taking my own steps to ostracise myself from his very last connection to me. Feeling ill and the age I now am has brought up all kinds of thoughts, feelings and memories. I want to put myself first for a change, I know I will not stay where I am because I do not like it, I do not like the isolation of living in my area where people don't give you the time of day. I want peace and privacy. I want a life. I want off the hamster wheel I was forced to pedal for years. I want head space and quiet, peace to think, peace to feel. I want a good nights sleep without medication, without disturbance, a home that's my space and no one else's, where I can talk on the phone without anyone else listening in, to have company where I do not have to worry about how loud the conversation is or worry about what we're talking about being misconstrued. I want freedom to invite people into my home and into my life. I want to do nothing for anyone for a while, a time of no worrying, no fear, no fighting court cases or professionals. I want my home to be my sanctuary, I want to play the music I love and dance and sing along to, this is what I want. I want to be free.
I hope before this year is out that I get my divorce first and foremost. I realise some men are just plain evil and nothing on earth will make them change, nothing on earth will make them feel anything for their own flesh and blood, it was simply history repeating itself and I should have dug deeper before getting trapped but no matter I'm taking my own steps to ostracise myself from his very last connection to me. Feeling ill and the age I now am has brought up all kinds of thoughts, feelings and memories. I want to put myself first for a change, I know I will not stay where I am because I do not like it, I do not like the isolation of living in my area where people don't give you the time of day. I want peace and privacy. I want a life. I want off the hamster wheel I was forced to pedal for years. I want head space and quiet, peace to think, peace to feel. I want a good nights sleep without medication, without disturbance, a home that's my space and no one else's, where I can talk on the phone without anyone else listening in, to have company where I do not have to worry about how loud the conversation is or worry about what we're talking about being misconstrued. I want freedom to invite people into my home and into my life. I want to do nothing for anyone for a while, a time of no worrying, no fear, no fighting court cases or professionals. I want my home to be my sanctuary, I want to play the music I love and dance and sing along to, this is what I want. I want to be free.
18th
July
I
had to ring the charity and tell them I can't volunteer in their detox unit any more because my son is sick. I am gutted at having to quit
because I love it.
Took
puppy a walk to the local shop, flashing lights appeared in my right
eye, that's my warning I'm going to get a migraine. I've not had them
since I left the ex.
Sent
Edel of Gheel a text telling her that eldest was sick on Sunday, she
replied asking “has eldest ever suffered with motion sickness” I
said no. “I'm a bit confused about that because he's never on
anything that moves.
Had
to go to bed, have now gone blind in the flashing lights eye and have
a pounding headache. I didn't make the boys dinner till 9pm.
19th
July
My
head is still really bad but at least I can see again, thank god. I
wish I had someone to look after me when I'm not well.
20th
July
At
Tesco at 9am for shopping then back home. I have €20 left to
perform miracles with. I missed the bus home by seconds. I was
running for it with the shopping when I was stopped dead in my tracks
with a massive palpitation, it scared the bloody life out of me and
hurt like hell. I know it's just stress overload which is why I need
eldest into a place of his own as this is going to frigging kill me.
I was standing at the bus stop to wait half hour for the next bus and
my back started paining me with pins and needles running up and down
my spine and I got so angry. Here I am half killing myself and all I
have in the bags I'm lugging about is for my son's and where are
they, in their lazy ass beds whilst I run about for them, something
is very fucked up with that equation. I sent youngest a text telling
him I feel bad and I need him to come and meet me because the
rucksack I'm carrying is heavy with milk, tins of cat food and two
bottles of juice for them. I rang him and he said “okay I will meet
you” I got off the bus and he was no where to be seen. I was
furious with self pity and he rang me as I walked in the front door.
I wanted to scream right in his face but didn't because I knew once I
started I wouldn't have stopped. His excuse was “I couldn't find my
key” he didn't need a frigging key because I had mine and he found
it in his jacket pocket anyway. I
dumped the shopping on the kitchen floor and walked straight out
again with puppy to the park because I knew I was going to explode
and all the years of pent up anguish and frustration, anger, pain and
suffering was going to erupt from me and I hadn't a clue as to how it
would explode but I knew it would not be a pretty sight so it was
best I wasn't in the house because I'm really teetering on the edge
here.
21st
July
21
Years married and I still ain't got my divorce. I switched my phone
on and had a text from the ex's phone “Heya, just arrived, the
wake is tonight but I'v said I don't want to do that, maybe we can
meet early? Can I borrow hair slides/ clips, a tweezer and a little
make up? That too cheeky:) Cheers. Ooh and styling gel/spray?”
I
have no doubts at all in my mind that my ex's girlfriend knew what
today's date was and that she knew she was sending that text to me.
I
sent the ex a text “Tell your current girlfriend to never send any
texts to my phone again”
I
had two missed calls from S the Advocate. I rang her. She said “I
cannot believe there's still no letter been sent by Gheel to the HSE”
I said “the excuse is that the Disability Manager is off sick so
that means families like mine in dire straights can go fuck
ourselves” S said “ask Gheel again what was signed off by Carol
Doolan, the Disability Manager at the HSE because it's important that
we find out, you need to ask what was in it as support for you all
and what services for eldest and why are you now waiting for yet
another support package when you don't know what the one already in
place was all about because proper supports should have been put in
place after the assault and knife incident and not just two letters
offering your eldest a PA which he's ignored” She gave me the name
and address for the Minister for Disabilities Kathleen Lynch and
said I should let her know exactly what is going on and more to the
point what is not going on but should be.
Edel
from Gheel sent me a text saying “a letter will be sent to eldest
regards engaging with a support worker”
What
the hell is going on? This was only supposed to happen once they got
me and youngest away on a break for a couple of days and that break
has not even been mentioned at all by them.
25th
July
Meeting
at Gheel with Edel and a bloke called Darragh Byrne. I was told, I
was not asked, I was told that Darragh Byrne will be my eldests
support worker and he will engage with my eldest. I was told they
need me out of my house for an hour. I was utterly confused, what
happened to all the talk by Andy Mc Donnell, the Consultant Clinical
Psychologist about “Eldest needs to be apart from you, for your
own health, it always reaches this point with families, we have to
justify it to the HSE, it's your safety, his safety as he has been
writing to you about suicide, no way will he be able to live with
someone else, will not be the most difficult package to apply for,
will provide three squares and support firstly at a distance, email
etc. These guys are the hardest to live with on the planet, will get
our heads together, I am talking days not months. Will contact the
HSE and tell them it’s crisis point, will make sure something is
put in place as an emergency, you are incredibly stressed, I remember
telling Martin when I last saw you, that woman is under incredible
stress”
Edel
said “I'm going on holiday and you have to phone Deirdre as your
contact support” I said “no thank you, I wouldn't feel
comfortable talking to her” Darragh Byrne told me twice “I'm
eldests support and I will only be there for him” then minutes
later he said “you can ring me for support whilst Edel is off” I
told him “make up your bloody mind” Darragh said “you
have no choice in the matter” and I erupted. I wasn't taking
no kid talking to me and bullying me like that, who the fuck do these
people think they are, it just shows you what kind of professionals
they will be, their way or no way, well no fucker who went to school
a bit longer than me will bully me or have any power over me. I put
him straight and told him “I certainly do have a choice regards my
family situation and MY choice is I choose not to be abused any more
by ANYONE or live my life walking on eggshells, I have a choice in
every aspect of my life because it's my bloody life” He backed
down and became more human and friendly. I'm now convinced it's
because I have no family or relations in this country, I am now
convinced that because I'm completely alone that they are getting
away with doing damn all for us these past years and think they can
do and say what they please as and when they please, not with this
woman they won't and not with this family either, my days of asking
how high I should jump are well and truly over as far as they and all
other gobshites are concerned.
I
was told, not asked, I was told to let a complete stranger into my
house when I'm not there and any back lash from my eldest which is a
given as prior history has proven will only be directed at me, he
would never explode at a stranger, he will save it all up till I am
in front of him, this is a mental situation, where is the backup
emergency I was told would be put in place. They want to meet me at
a local cafe at 9.45am to hand over my house key and I've to stay out
of the house for an hour with Edel. This is all so wrong, I went to
see Andy McDonnel because I want my eldest out of the house and Andy
agreed that I'm extremely stressed and he'd write and tell the HSE
that he believed I was heading for a breakdown and it would take days
not months to sort out and he would engineer a couple of days away
for me and youngest so how in gods name has that all changed now. I
have to let a stranger into my house with no back up plan in sight.
Eldest will explode, he will say nothing to a stranger but will have
a lot to say and do to me, Christ this is all wrong and such a mess,
they haven't a clue what they are doing, the risk they are putting me
at and some twat I have never met told me I had “no choice”
28th
July
A
letter from Gheel arrived for eldest. I hid in the toilet and sent
Edel a message about my fears. This is NOT what I agreed to.
My
fear is eldest will get so strung out that I will be on the end of
his temper again, all professionals told me if he ever gets violent
again or I feel fear of threats of violence to just call the Garda,
easy enough for them to say because they do not love him. I always
put myself in his shoes and I freak out because how the hell would he
cope if the Garda just came to house and removed him and he would end
up in a holding cell then chucked out on the streets, he would feel
like an alien being captured, cornered and he'd react accordingly, I
do not want this for him and I do not want this way of life any more
for me.
I
am stuck between a rock and a hard place.
L,
my family court support rang me and I answered her in whispers and
told her what was going on. She said “it's crazy you have to do
this in your own home”
Eldest
read the Gheel letter and left it on the stairs, I know he's left it
for me to read but I'm not touching it.
I
emailed Edel about my fears.
“Hi
Edel, Please do not ring, every word I say can be heard. He
has just lifted the letter now, not heard a word from him as yet but
he has been angsty all night long and up and down stairs a lot”
I
ended up locking myself in my bedroom in case of any explosion from
him, what a bloody way to live a life”
29th
July
Another
email I sent to Edel at Gheel
“Hi
Edel, I am freaking out thinking about the plan that Gheel have come
up with to engage with eldest. I don’t know what I expected when I
told both you and Andy that eldest and I no longer had any
relationship and that it had irretrievably broken down and that I
wanted him out as there is only so much abuse a person, a mother can
take, I do not believe for one minute that any of you can comprehend
getting hit so hard that you are left black and blue, that what comes
out of his mouth can pierce your very soul when he previously decided
I was worth talking to and then continues with the same language by
email, I do not believe that we “hurt the one’s we love” this
is not hurting but downright abuse and he will carry on with it I
suppose because he has got away with it all these god damn years. I
think the latest plan will merely have him dig his heels in even
further, barricade himself in his room and I have explained to you
personally that he can hide himself away for up to 36 hours without
eating or even using the toilet. I am worried sick as I believe he
will see this as “punishment” from mum, he is not stupid in any
way, shape or form and will know that I have instigated this and so
my life and youngests will be in danger, he will never explode at
anyone else except us and we both have been on the end of his fist
before. I
am mortified that a young man who though very nice at the meeting, I
do not know from Adam, I don’t know what experience he has
previously had, I don’t know what his qualifications are and he
will be coming into my house when I am not here and where I am to go
for up to four hours a day god only knows, fretting about what will
be going on in my house, what he will be doing etc, even thinking
about it has my nerves jangled. This all may be a normal way of work
for you all but it is a complete intrusion on my personal space and I
have little enough of that left as it is. My poor youngest has not
even been thought of thru out this plan, it was suggested I take him
out with me, a grown man of 18 years!! I have to be perfectly honest
and say that once again with professionals this feels like a training
exercise, I do hope I am wrong but how this is going to work by
making both youngest and I feel fear for the next four weeks as to
how eldest copes with the intrusion in his so called home. I am sick
of me yapping non stop and no one actually listening. My relationship
with my son has broken down, I do not want to talk to someone who
despises me and he does not wish to talk to someone he despises so
where do I go from here? I
am also still thinking about Darragh telling me “you have no
choice” which made me angry, to reiterate: I do have a choice
regarding anything, this is my life and no one else can dictate to me
how I live it, who I have living with me etc. These are the thoughts
presently running around my head, I have been a bag of nerves since
our meeting and since eldest received your letter so I would
appreciate further clarification on my worries please”
Edel
Replied
“Hi
Anne, Your worries are very natural and valid, I sincerely hope I
can help with offering reassurance in relation to the plan we
established and clarification around the points that you raised.
-
In relation to the meeting you referred to with Andy previously the
current plan was established in order for eldest to engage and build
a relationship with a service. A more directive approach was deemed
necessary due to the fact that eldest did not choose to engage with
support when it was presented to him via correspondence and other
means of communication such as Skype and email previously. You
expressed the fact that it had a reached a stage that you wanted to
present to eldest an ultimatum because of the enormous stress you are
under in the family home and the breakdown in your relationship. This
involved either eldest engaging with a specialist support worker on a
regular basis (weekly) or else to live in a different living
environment to yourselves. We advised that it was best to work on the
two parts in conjunction (i.e.1. Eldest engaging with a service and
2. possibility of access to separate accommodation for him) with each
other rather than in an ultimatum form. The first part would also be
necessary to achieve the second part. The current plan was
established in order to help achieve the first part of eldest
engaging with a service and building a relationship with a support
worker. This is important so that he access the supports he requires
to help with issues such as the obvious stress and anxiety he
experiences. We agreed that in order to access accommodation for him
would be necessary to contact the HSE disability manager for your
area in order to express the need for increased funding for the
support package to incorporate accommodation This is on-going
presently due to fact that the disability manager for your area
Geraldine Murphy has been on sick leave since that meeting.
-
In relation to the fact that you think Eldest will not engage in the
periods of time that Darragh is in the house, this may be the case
but the hours need to be built up gradually and consistently over a
period of time in order to build trust and predictability for eldest.
As you said in the past there were inconsistencies with
implementation of packages so it is therefore important to gradually
build up the hours as it may take time for Eldest to build trust up
again with a service. We had agreed a short term goal would be for
the hours to be built up to a full day and night eventually where you
get to go away for a break and have a positive focus for yourself.
The establishment of this goal in terms of time frame will become
more apparent over the coming weeks and we can discuss over the
process
-
In terms of your fears that Eldest will see this as something which
was initiated by you, the purpose of presenting it in the letter from
Gheel/hse was that it is presented by an external person in order to
take this demand from yourself and give you an external body to refer
to if Eldest was to raise the issue with you i.e. this is something
which you had no control over, it is the hse which are responsible.
The letter was seen as the best option in which to present this. In
terms of support for you through the process, as I advised if a
crisis is to occur at home it is best to remove yourself and youngest
from the situation and access the supports outlined. I will be
available and with you next week as planned on the established times
and outside of those times for calls if you need support. D will be
available the following weeks to talk to you about any fears that
emerge or situations that occur at home during that time.
-
Your fears of finding it hard to have something for yourself to focus
on during those hours we can discuss more on Tuesday and establish a
positive focus for you during those hours. As we spoke about with
Darragh, youngest can stay in the house on occasions if the case may
be.
-
In respect of staff, all Gheel staff are Garda vetted and a high
standard of in-house training is required before working in the
out-reach team. Darragh who is a member of the out-reach team is
highly trained in areas such as Autism Awareness and low arousal
techniques. He has extensive knowledge and a broad range of
experience working with people with Aspergers Syndrome and is
extremely professional in practice.
I
really hope I have reassured you in relation to some of your fears
and worries which you raised. Please contact me if you need any more
clarification. Kind regards, Edel”
29th
July
My
reply to Edel:
“Edel,
he received two letters in 12 months which he ignored. The more
direct approach you now refer to is because everyone waited till I
fell apart and could no longer accept the situation. Andy telling me
that it always takes a crisis tells me that this is normal for
agencies which is a disgrace for people like me and families like
mine. I wanted eldest to receive the letter I brought to you both as
I know him inside and out, he would have realised that he had crossed
the line with me and would have had to accept, yes accept that it was
either one thing or the other and no other choice available, this
would have meant he decided to choose, he would have responded one
way or the other. Yet again a disgrace, that due to someone being off
sick no alternative plan is put in action that may be necessary for
the protection of both myself and youngest and so eldest might find
the visits so stressful he will retaliate and all that I am expected
to do is put up with anything he may throw our way or call the Guards
who will only drop him in the street and he will have a full mental
breakdown if this were to happen, I really do think that this should
have been thought out more, an alternative accommodation plan should
have been put in first and foremost just in case.
The HSE will not provide Darragh with a house key so he can walk in
my house at the appointed times so eldest will know exactly who
initiated this, hence my terror and fear as to the consequences, I am
no drama queen, I am giving you the facts based on my experiences and
my life with my son. My youngest does not need Darragh’s
permission to remain in his own home and if this is how Gheel hope to
proceed then it is not in the best interest of my family, you may
read this as me being antagonistic but it is far from the case as I
am at my wits end over all this, you have no idea at all as to how
close to the edge I am with fear. I
have no worries as to Darragh’s training etc; my worries are how he
approaches eldest, if at all, what he will be doing in my house, what
I will come home to, will I have the bottle to return home at all,
what about youngests safety when Darragh leaves, it is not good
enough to be told to get out and ring the Garda, Eldest will merely
be pulled out of the house and dropped god knows where, he does not
even know where he lives. This is just too crazy for words and I am
not sure I want to agree to something that has the potential to cause
huge anxiety to not just Eldest but also myself which is apparent
right now and youngest too.
31st
July
I
emailed my friend
“Hi
Friend, All quiet here. No reply from Edel so I need to really think
whether or not I go meet them on Tuesday or not. I am not so anxious
now after talking to you and getting my fears told to Gheel by email.
At present my mindset is I am not going to give a key to them, they
can come to the house, if I am indoors then that's where I shall
stay, if I have somewhere to be then I will leave but I am now at the
age and experience that no one and certainly not any professional
will dictate to me what I will or wont do. The plan I have in mind
is to write to the Minister for Disability and inform her that I feel
youngest, I and Eldest are going to be at risk re Gheel's plan and
that if anything does happen then I will sue the ass of them all and
let the whole world know and I really mean it too. I feel it's an
absolute disgrace that in 4 or 5 weeks since my Meeting with Edel and
Andy McDonnell that they could not go higher than the local
Disability Manager who must have some serious illness to be off so
long so that a safety net was put in place in case eldest kicked off
in a big way, I know my relationship with him has broken down but the
last thing I would want for him is to be carted away by the Gardai,
he would never recover and neither would I. I was chatting to
youngest about it and he rarely these days comes out with anything
other than "his stuff" he said "the only person who
knows and cares anything about us is Friend as she is a carer too"
I asked him what he meant and he said "she cares or else she
would not still be talking to you after all these years" which
is so true Friend and from the bottom of my heart thank you. I hope
you have a wonderful weekend.
1st
August
I
emailed
the Minister of Disabilities, Kathleen Lynch. My head is splitting.
I
would have expected at the very least even an acknowledgement from
the Minister of Disabilities, Kathleen Lynch but I didn't get a word
in reply out of her.
2nd
August
I
sent Edel of Gheel a text telling her “I'm not meeting you in the
cafe and I may be in full support of the plan you have for eldest
with Darragh but I will not agree to it until safe accommodation has
been put in place for him. I know it will not be eldests fault if he
freaks out but I ain't taking no chances of me being on the receiving
end of it. You can come to the house if you like because I have a
letter that Gheel may as well have a copy of as no doubt you will all
hear about it”
Edel
came to the house at 10am. I gave her a copy of the email I sent to
Kathleen Lynch, the Disability Minister.
I
told her “it's not personal against you” She said “I can tell
by just looking at you that you are very stressed and fearful and I
understand your fears, I will call the Disability Manager and I want
you to keep in touch with Deirdre whilst I'm off for three weeks”
even tho I previously told Edel “I do not feel comfortable talking
to Deirdre” I told her “keep the copy of my email to Kathleen
Lynch and give it to Gheel so they are not surprised if her office
gets in touch with you because I'm straight as a dye” she said “I
know that” She was still pushing me for Darragh to come into the
house as planned and wanted me to list 10 things I would like to do,
I said “I do not need to list anything, I want my son who I'm
scared of, who has been violent to me, who abuses me at will verbally
and by email and I never know if he's going to hit me as he often
threatens to, out of my house which is what I told Andy, which is why
I went to meet him, which is what I was told would be sent by letter
to the HSE and I am still waiting on a copy of that letter”
I
checked on line and my results were in from the Open University. I
passed my exams. I cannot believe it. I went on the open University
online forums to see if the rest of my group passed too and they had
and are all going out partying, the lucky buggers. All I have is
another night sat at home where I do not even feel safe.
My
eldest sent me couple of abusive emails telling what he
thinks of me “I hope you die a slow and painful death and hope I am
the one to do it” and more such shit. I replied “I don't care,
leave me alone”
3rd
August
Text
from Edel “a new letter will be sent out to eldest re new plan”
what fucking new plan. She said she has “spoken to the Disability
Managers secretary, the Disability Manager is still not back at work
but the General Manager, Sheila Marshal has been made aware of the
case”
I
went nuts at that text, it is nothing but bullshit on top of bullshit
from them. I sent her a reply text “ So this means that no
alternative accommodation plan has even been looked at re an
emergency basis which is my biggest worry, this means that nothing
has changed at all. I am still in the exact same position with the
exact same possible outcome that almost drove me demented with fear
over the weekend. Just goes to show that no one cares at all and I
don't mean you. I know your hands are tied but I repeat if anything
happens to eldest, youngest or me as a result of your plan I will go
straight to the news and my solicitor if I'm still actually alive
that is”
No
reply from Edel.
I
emailed S the Advocate
“Hi
S, Edel did not reply to the second email I sent to her so I lost the
head and after fretting all weekend I sent an email on Monday to the
Minister of Disabilities stating that I'm in full support of the plan
Gheel have but that it could and should have happened last year after
a serious crisis and I am not letting it go ahead until eldest has a
place of safety to go to if he kicks off again, I am not happy about
just letting him be carted away by the Garda, I would not be able to
live with myself. I sent Edel a text at 9am yesterday asking her to
come to house, that I was not going ahead with their plan of action
and I would give her a copy of the letter I emailed to the Minister
Kathleen Lynch, she was very good about it all, understands etc and
will immediately ring the (off sick) disability managers manager.
FFS, why oh why could they not have done this 4 weeks ago when
I first got told the person was off sick. I
have said that Darragh can come to the house for the 2 hours tomorrow
if they have made the phone call to the the HSE as I am not prepared
for eldest to have full mental breakdown and lash out and me and his
brother and him having no where to go. If someone has previously had
the Garda take 4 hours to diffuse a situation with a 20 inch bloody
carving knife then I'm taking no chances re the well being of me or
youngest. Edel was great but I suspect the shit will have hit the fan
with the higher up's, I know I need to stop fighting these people S
but I'm taking no chances of being attacked again. Gheel themselves
stated that eldest operates at very high anxiety level normally so
the alternative should have been sought in tandem with their plan. Oh
and I passed my Open Uni exams, I now have letters after my name,
think I will stick to P.R.A.T tho for the time being:) Thanks S
I
rang the lady at Cross care and told her “ I'm going insane due to
Gheel and all they promise and then they do the fucking opposite”
I asked her “can I send you all my correspondence so far with this
new situation” She said yes.
When she rang me back she told me “you have been very clear in all you say” She is going to “talk to a Child Protection Officer she knows to see what, if any advise" she can get for me.
When she rang me back she told me “you have been very clear in all you say” She is going to “talk to a Child Protection Officer she knows to see what, if any advise" she can get for me.
Text
from Edel of Gheel at 5.39pm : "Sorry
bout delayed reply. I had to travel to a meeting in the afternoon. In
relation to the plan we formulated, we can put back commencement date
until accommodation in case of an emergency for eldest is organised,
I will call tomorrow as planned at 1pm if that's ok with you as
support meeting and we will not commence with Darragh until I'v been
able to contact disability manager and we are sure of plan re
accommodation"
I
had no credit to reply to her so I sent her an email instead. I'm
still fuming about how she words thing “in relation to the plan we
formulated” I had no part in this whatsoever but a huge weight has
been lifted from me now but why, oh fucking why, didn't she listen to
me in the first place, it's my house. I'm the parent. I live with
this, they don't, so why the fuck are they over riding all I said
needs to happen. Useless bastards. I am so confused, what the hell do
I have to do to get this ended. They have all just ignored Dr Shah's
report and immediate recommendations, they got me to attend a meeting
because I was roaring that I'm not having eldest live with me any
more, they agreed, they said they would write to the HSE, they even
told me what they would write to the HSE, “these guys are the
hardest to live with on the planet” and they know I now have two
sons with Aspergers and Christ knows what else, they said they would
get me and youngest away on a break and that has not been mentioned
either, I have been told at least three times now that Edel will
speak to the Disability Manager then kept getting told she was off
work sick. I was told there was no stand in for her but the General
Manager had been “made aware of the case” This is my and my
fucking kids lives here, not some “case” so why the fuck is the
General Manager not doing some donkey work for a change. Who the hell
is helping families like mine North of the City. It looks like no
one is. THE BASTARDS.
4th
August
Was
in town for 9am. The lady from Cross care rang me. She said “well
done on holding out for what you want” I told her “I don't trust
Gheel any more at all, all I get is changing of goal posts and
changing of stories and now I know that the carer who is fucking
falling apart means nothing to them at all” She told me “to stay
strong” I love talking to that lady.
Edel
came to the house at 1pm. I told her “I no longer trust Gheel at
all after you all put me thru so much stress trying to force a
support worker into my house and not listening to a bloody word I
said until I contacted Kathleen Lynch the politician. I have
practically begged for help and supports since April 2009 in Dublin
and been left to cope solo with horrendous happenings and continual
abuse and not one thing has been done about Dr Shah report and
immediate recommendations, what was the point of possibly thousands
being spent on getting such a renowned expert over from the UK for
you all to just ignore her expertise, what was the point of me
meeting her and the Consultant Clinical Psychologist Andy McDonnell
then being told one thing then it all got changed to something
completely different, what part of I do not want my son living with
me do none of you get, it is me and me alone who gets the brunt of
his fury, angst, anxiety, his fist, a knife, his boot. All Gheel do
is stress me out even further and I do not need it. Why have you all
just sat back and waited till my relationship with my son has
completely broken down and made me a broken woman, is that why you
you all sat back and did fuck all because you knew this would happen
so you could all then step in and take over and get paid massive
bucks to do so because you lot don't actually care about my son at
all do you, you lot don't care about me at all and why was no plan
put in place during the small window of opportunity when my eldest
told the Garda he would meet with professionals in the house, why did
no one come to the house then”
Everything
I said to Edel from Gheel, every point I put to her, every question I
asked her was not answered by her at all, all was just skirted
around and deflected, in fact she asked me questions instead of
answering any of mine. How the fuck do any of these people get to
work with vulnerable people at all is beyond me. I told her “it's
as plain as the nose on my face, it's very simple. I want my eldest
out of my house and for him to have professional help and not just
try and replace me in my own home and telling me that I need to be
out of my house as does my youngest” I asked her twice “why
leave it to get this stage resulting in my relationship breaking down
with my son, why was no plan put in place last year when eldest
agreed to meet professionals after the knife incident” The answer
was a load of waffle and no real answer given. She said “I will get
Deirdre from Gheel to contact you” Why I have no fucking idea, nor
was it explained. Total fucking waste of my time.
I
will just have to carry on as best as I can. Once my health is back
on form I will deal with my kids, then my life and then with those
professional idiots. Every one of them.
5th
August
Eldest
is sick, he asked youngest to get him 2 Xanax because he has stomach
pains. There has been no communication with me or eldest for 7 weeks
now. It kills me not to be talking to him.
8th
August
Eldest
seems to be fine again, he's eaten cereal and is on his exercise
bike.
9th
August
Deirdre
at Gheel sent me a text asking if she could ring me. What followed
was the most uncomfortable conversation I ever had with anyone and
everyone who knows me knows I never lack conversation with anyone. I
am like a budgie, I chat to anyone and everyone. That one isn't a
talker at all. There was no flow of conversation, it was like a tick
box exercise, in fact I know it was because she asked me “how would
you rate your mood at present” is she taking the piss or what, when
did I become someone's patient. I've found that most psychologists
and psychiatrists I've met all have some kind of social problem
themselves which is bloody ironic. She asked me “how is youngest”
long pause from her then “how is eldest” long pause again before
she said “try and make sure you go out” what a total waste of
time. I'd already told Edel that I didn't want Deirdre as my support
but who the hell am I. Gheel do not listen. And she is to be my
“support” for the next 3 weeks. God give me strength. How is
asking scripted questions as if I am her “patient” followed by
long pauses construed as support.
10th
August
I'm
awake at 3.45am, my
eyes are crossed with tiredness.
I
went to the GP for tablets for eldests stomach pains. I got told
“they're discontinued” I said “they are not, my son had them
recently” the doctors receptionist had written them down wrong. I
got his Buscupan. Made lunch, then dinner. I am bored and lonely and
absolutely skint.
Youngest
said he was asking eldest if he could borrow money to buy himself a
new DS because it came with 20 free games. He got the money from
eldest. I asked him “how are you going to pay it back” he said
“I don't know” I said “that's not on” all youngest could
answer me with was “well I have no money of my own to buy it” I
felt like shouting at him go without then but my kids are so used to
getting all they ask for.
He
got €250 from eldest and eldest wanted money put onto his 3V card
whilst youngest was out which meant I had to go up to Tesco again to
withdraw his money from the Credit Union then go in to town with
youngest. Fuck it. I am so tired.
12th
August
Eldest
wanted more money put on his 3V card. He freaked me out this morning
by walking into my room when I was still in bed saying “youngest,
youngest” even tho he was looking straight at me, he didn't even
knock on my door. Youngest was in the bath. Very strange him doing
that.
13th
August
T
came to the house, she asked if I could baby sit her daughter and the child's dad will drop her off to me at 8.30pm. I had a lovely night with J,
it was great having child in the house. T collected her on Sunday.
16th
August
I
had headaches and flashing lights in both my eyes and dizziness that
almost made me keel over so I went to my doctor. My arthritis is also
back with a vengeance and I'm having neuralgia attacks weekly now, my
muscles are so painful and I'm worried that this is sign of
fibromyalgia returning again. I'm simply falling apart. I've had my
share of run ins with my doctor, scratch that, I've had run ins with
almost everyone I have come across the past few years, I sometimes
think this is only where I get my energy from to keep going.
I
saw the GP at 4pm. I gave him a list of what was wrong with me “I've
had 5 attacks of Neuralgia in my head and face and I've not had that
happen for years. All my muscles are hurting, I'm frightened this
means I'm having an attack of Fibromyalgia” the doctor said “you
don't have that” I said “the bloody Rheumatology
Hospital in Manor Hamilton told me I
have it and Osteoarthritis so yes I do bloody have it” He told me
“it's all stress related” and “I could never do what you have
to do or live how you have to live” “he asked “why don't just
walk away, just leave, even if it means the boys learn nothing else
except the realisation of all that you do for them, they are running
you into the ground” I said “no I can't and I do not play games
so just leaving to make them realise anything is not an option” He
said “just walk away then because you cannot continue like this”
He lifted my arm and started rocking it back and forth and told me
“look at a point on the ceiling, I'm going to hypnotise you to
relax you, I
want you to imagine your being rocked in your mother's arms” I
stopped him and asked him “are you taking the piss, my mother
abandoned me into care at 5 months old” he chuckled and said “well
imagine your in a rocking chair then” I told him “get off me I
don't have €50 to pay you for this and no matter what you do I
still have to return home and I'm fucked off about everything and I
know all my symptoms put together are physical and not just stress”
but he wrote me a prescription for anti depressants anyway. He
said “you need to leave for your sanity and health because you
cannot go on much longer”
he said “I know you don't like anti depressants but promise me that
you will at least try them to see if they can help” I told him
“I'm not depressed, there's no imbalance of any chemicals in my
brain, it's my living circumstances that need changing” He laughed
a lot at my speech, he said “give them a try even tho I know you
wont” I
got up to leave. I said “your wrong about possible depression but
you're right about my sanity and health but the difference is I am a
mammy and most mammy's do not leave” “He laughed and told me
“take care” “you too” I said. I
left feeling like shit and looking like a bag of rats. I feel so
ill.
I
went to bed early but kept waking up coughing with pains in every
muscle and joint of my body and a temperature that was going up and
down making my menopausal hot flushes worse.
17th
August
I've
woken up very grumpy. I want a break from all of this. I am seriously
pissed of at Gheel. Two months ago now since I told them I want
eldest out of my house and looked after, what do they do, fucking
ignore me and come up with a plan to get me and youngest out the
house and not for any break as I was told by them, it seems to be
okay to invade MY space and MY privacy but not to listen to me.
18th
August
Went
with youngest to the GP to have his medical report filled in regards
his diagnosis of Aspergers Syndrome, they had a chat about it, about
what medication could possibly help his social anxiety, the doctor
told him “you're very well read on medical matters” he then
looked at me and said “how are you coping” I told him “guess”
he laughed and said “you must look after you first” I laughed
then told him “I can't believe my youngest has this” and the most
painful of a hard lump formed in my throat and he could see I was
getting emotional and he asked me “do have someone you can talk it
over with” I said “not until I get it straight in my own head
first because I still cant grasp it and I don’t want to grasp it
either” he nodded his head. I told him “all I have in my life
are professionals and they are well used to giving out bad news then
not giving a toss about the person, I said you must do the same and
we'll walk out and the next patient will walk in and you won't
remember everyone you've seen in one day” He said “Anne, no one
could ever forget you” and he laughed. As I left I told him
childishly “it's not fair” then I did my usual of spinning it
around with humour, a rather dark humour. I told him “it's bad
enough having one child with this syndrome but it's bloody careless
of me to have two” the doctor laughed and said “take care of
yourself” and I walked out with youngest who now had his stamped
medical report that stated he has Aspergers Syndrome and the "severe"
box was ticked.
We
got out to street level and the birds were singing and people were
going about their business and my youngest was chatting away to me
about “all medications I've read about and I'm going to find one
that will cure me” even tho he knows I've been searching for years
now for a miracle cure for my eldest.
I
stopped and sat on a wall outside DID Electrical. I could physically
feel what was left of my heart shattering inside my chest wall, this
is not how it should be, he should have finished school by now, he
should have many friends both male and female because he's such a
nice young boy, no, that's wrong because he's now a man legally, he
shouldn't have to depend on his mam at this age to take him here and
there, to talk to, to confide in, he should be out in the big wide
world and having fun, living a life. He sat down next to me on the
wall and asked me “what's wrong” I said “nothing's wrong” but
then I cried and told him “everything is wrong” and I cursed like
a trooper, it all came out of me, fuck fuck, bollix bollix, bastards
bastards, bullshit fuckers, fat hairy fucking turds, on and on I
swore like a navvy. My youngest laughed and I laughed but I was still
crying. Youngest hugged me and then we went for food shopping.
On
my eldests medical report the "profound" box is ticked. My
heart is in shreds for them both.
Youngest
told me “I need to see the doctor again to get specific meds to
cope with my social anxiety” He's already had Lyrica and Xanax for
it. I got him an appointment for 3.50pm but he wasn't given what
he'd asked for, he was given beta blockers and told a referral letter
would be sent to the psych place where he could ask the Psychiatrist
there if they would prescribe what he was asking for. Off course
youngest said nothing to the doctor about what he'd been told,
instead he waited till we left then he started on me “what a cunt
that doctor is and he knows nothing about medication to help me” he
now believes he's an expert on all medications because he's
investigated and read all about them online. He makes my head hurt
and he never knows how to lower his volume or how boring he sounds
ranting and raving.
20th
August
Youngest
came to town with me. I bought him a mechanical pencil and an
expensive (to me) pen and a fancy notebook, he said “thanks” We
wandered round the shops but within ten minutes he was in a bad mood
and on his soap box about “cunts” in the town and our poverty. I
would love to knock him out.
23rd
August
Feeling
so ill with a flu type bug, I hurt all over worse than before. I've
never had the flu, only colds. I walked to the local chemist with
youngest and bought myself Night Nurse.
26th
August
Youngest
has the major hump with me after we were messing about, he was
throwing socks in my face whilst I was folding up the laundry, I
picked up the Febreze and sprayed him as he was running up the stairs
but he had no top on so it landed on his back, you would have thought
that I'd just stuck a knife in him, he went mental, screaming “you
are a cunt” he was chanting that word right into my face then told
me to “fuck off”
My
friend rang, hearing her kind voice had me crying down the phone to
her telling her “I don't give a shit who hears me but I want them
both out of my house now because they are both nuts and I will not be
called a cunt one more day in my own house or ever told to fuck off
ever again” I said “they can both go off and abuse someone else”
She calmed me down.
My
temperature has shot up, my head is splitting and pounding, my chest
is so bad, all muscles are killing me and I'm sweating like a pig. I
had to go to bed at 4pm then woke up at 9pm feeling like crap.
27th
August
I
believe it's now official, my children are rotten to the core, they
have their father running thru them like a stick of seaside rock.
They are a pair of abusive bastards, roaring and swearing in my face
like I'm a piece of shit on their shoe then go into a sulk for days
or weeks on end and lambaste me for not talking to them!! blame me
for their sulking, then cause a drama to bring me to heel then tell
any fucker who will listen, that all to do with them is my fault,
well fuck them, I'm only guilty of giving birth to them and rearing
them and keeping us all together when I was at my lowest point and
constantly fighting their father thru the courts to get my and our
legal rights but the courts system fucking failed me just
as much as the agencies I've had in our lives and the HSE fucking failed us and
my sons have the pure cheek to treat me as they like. I'm supposed
to put up with this crap from them, well no way, not any more, I
don't need this, want this, deserve this, imagine if it was me doing
and saying to them what they do and say to me, I would be had up in a
court of law, the spiteful, childish bastards that they are. I hope
they get a taste of their own medicine one day, I hope they hate it
as much as I do and I hope all their treatment of me slaps them in
the face one day and makes them realise all they did one day but I
doubt it because they are as mad and sad and bad as their mental
father, no one else matters to them but them, they would sell their
kith and kin to save their own sorry asses, they don't even look out
for one another, they do not feel any love for one another and they
have certainly proved they feel no love for me, they despise, hate
and lie, but can keep up such an act for the outside of the house
world, well fuck them from here on in. No one would believe the way they talk to me,
scream at me, call me names that sear my very soul, they hold me
hostage once they have self medicated, frequently in eldests case and
force me to listen to all his shit, his boring, his I could not give
a fuck shit. And some poor woman one day will be standing in my
shoes, if that day comes I will warn them fully what they are in for
because no one whilst I have breath in my body will walk into any
relationship with men like them and not have her eyes wide open as to
how they are, how they really are, they are all front till they think
they are safe and get away with it, ABUSERS. DOMESTIC ABUSERS. They
wouldn't have the balls to abuse anyone outside the home that is why
the word DOMESTIC is used. I will warn any girl they meet because no
one deserves this treatment. I am ashamed of them both. No more will
I fight their battles and get not an ounce of gratitude or thanks.
Sometimes
in life it can be the tiniest thing that can tip you right over the
edge.
I've
been ill for a week now, my
so called diagnosed depression turned out to be full blown flu. I
couldn't move. I couldn't eat or cook. I could do nothing. I thought
I was dying but being the martyr that I've become I still made sure
both lads were fed which fed the flames of inner fury in me. When
you are fragile and vulnerable and sorry for yourself everything
feels heightened. I
have the flu for the first time in my life and it has knocked me
sideways. I hurt all over and have a cough like a growling and
barking dog, my eyes and nose are running like a stream and not one
offer have I had of any help in the house or offer to go shopping,
not a cup of tea have I been asked if I would like, not once have I
been asked if I'm okay, if I need anything or if they can do anything
for me, not a dish has been washed or an offer made to wash them.
They could not even feed the cats or the dog nor give them water, the
selfish, self absorbed bastards, they would let you die in front of
their eyes and not lift a finger to help. I never in my life had to
take to my bed ill, yes I have taken to my bed for a couple of hours
but I always got up, cleaned the house, sorted my animals and done
all for them cooking food and shopping for them, even when ill or I
had a bad back I always got out and got their shopping in, I always
plodded along, more fool me. I have been so ill for 8 days now and
I've had enough of them.
I
got out of bed, still so very ill and
there wasn't a drop of milk in the house for my cup of tea, I don't
even speak till I've had my two cups of tea in the morning but when I
went to bed there were 4 pints of milk in the fridge and I cursed the
pair of them, the selfish bollix. So that is what tipped me over the
edge and I took myself off on the train to T's and
left them a note saying “I'm going out, I may or may not be back
tomorrow and there is €30 in an envelope on the mantle piece, the
fridge, the freezer and cupboards are full, if you need anything you
can go out and get it for yourselves and do not phone me because my
phone will be off”
Let
them get on with it, I no longer care and they certainly do not care
about me.
I
got the train to T's. I went thru two boxes of tissues on that long
journey due to my eyes and nose streaming so much. My
head was emptying all mucus from my body via my eyes and nose
constantly. A nice
lady asked me if I was okay and would I like one of her anti
histamines, I told her “I don't have an allergy, it was a head cold
that went onto my chest and now it's full blown flu but I am going to
my adopted daughters to be looked after”
T
met me at the train station She said “god mam I have never seen you
look so ill” she
said “you look deflated, defeated and all done in and I don't think
you have anything left to give,you need to start looking after
yourself” I knew she was right, I just didn't know how to do it any
more. She took me
straight to the chemist to buy Actifed and painkillers and took me to
her house, she made me to lie down and covered me with a blanket and
lit a fire, it was peace perfect peace. She chased the kids out to
play and I told her “I no longer care about my sons, they have
killed slowly over time all the love I gave them and felt for them,
I've been a total fool of a woman” T said “it's because you're
all done in now and you really need to start putting yourself first”
I told her “when I went to the doctor, even he told me to just
walk away and said he couldn't do what I do or live as I've had to
live without supports, services or a break, a shoulder to cry on”
T said “please don't go back, I will take you to the council here
for emergency housing and you can stay with me for as long as you
need”
I
told T “no one, not one person will ever know what it's like to
live with my sons, it's a daily non stop onslaught of abuse and
threats and can come out of the blue and floor me but they are
perfect gentlemen to anyone outside of the house and the old saying I
was once told about their father keeps coming into my head “street
angel, house devil” because it describes them so aptly, they have
made my life hellish, they control me, youngest tells me when to talk
and when not to talk, not to sing and not to even whistle when I'm
out of the house and he always acts and looks as miserable as sin and
embarrasses me in the street in front of people when he hasn't got a
testicle big enough to defend himself but expects me to defend him
at all times and when I'm out of the house it's the only time I can
be me, I get to talk to people but when youngest is with me he brings
me down, he constantly criticises me, he starts arguments just so he
can rant and rave, dictate to me and inform me of all I am and all I
should be doing and not doing” T said “I've noticed that a few
times with him” she said “he starts off by asking a question
about something but then very quickly turns it into an argument”
she said “he's a clever fucker twisting things around to his own
advantage and he knows what he's doing” “ She said “I've had to
walk away many times because I would have ripped into him but didn't
because I didn't want to upset you and I cannot stand people who play
the sick role, the I have a disability so be nice to me but I will
not be nice to you role” she said “I would love to ask him if he
would swap places with someone with an obvious disability who cannot
get out of a bed, who has to be washed, fed and shit where they lie,
now that is a real disability” she said “I'm sorry mam but I've
watched them ground you down so much and I cannot stand to see it,
you are so assertive with everyone else but not with them”
I
told T “I'm sick of professionals doing jack shit and forcing me,
making me accept their way of doing things despite me telling them 8
weeks ago that I'm not doing this any more and want eldest out of my
house so how the hell they have changed from going to send a letter
to HSE because “these guys hardest to live with on the planet” to
sending someone into my house and me and my youngest have to be out
of it, is beyond me, the lying uncaring bastards” I asked “why
the hell were they not in full support of getting eldest housed
elsewhere after the knife incident, I formally asked Edel from Gheel
this but she's well trained in the art of deflection, she never gives
a straight answer to a simple question yet I know they're getting
paid by the HSE on our behalf and Edel gave me some bullshit that
they all had to wait until I was ready, fall apart more like, which
is a fucking disgrace, I would not have fallen apart, I would not be
falling apart if I had support and had what Dr Shah recommended and
my boys had the services they deserve, it's cruel”
I
told her “youngest exploded at me after he was throwing socks in my
face and then I sprayed him with the Febreze I had in my hands and
you would have thought it was acid the roars out of him but to be
called cunt repeatedly then him shutting himself away in his bedroom
and ignoring me telling him his dinner was ready is blatant abuse and
pig ignorance, how would they like me to fucking explode at them
both” T said “that is what you should have done years ago and it
would have put manners on them”
The
Actifed began to work and the sleep I had and the peace and quiet in
her house did wonders for me as did getting to talk to T frankly with
no fear and no need to whisper. I do not want to go back to them but
I know I have to.
29th
August
T
drove me to the train station. She said “take no shit and put them
out if there is one wrong word out of them and tell Gheel to get
their fingers out if they are so adamant eldest stays at home, tell
them to take him home with one of them”
It
was a long journey going back, it always is. I had no idea what I
was walking back into but I do know it's my house and I will have
what I want in my own house which is peace, quiet, privacy and NO
MORE ABUSE OF ANY KIND FROM MY OWN CHILDREN. I need, want and deserve
better than this, they can go to hell.
The
Actifed and painkillers made me cross eyed with tiredness, all I
wanted was my bed. I switched my phone back on when I got to Connolly
station then my phone started ringing immediately, it was from my
house land line. I didn't answer it. I would only say things out of
all the anger I still felt so there was no point answering at all. I
knew it would be youngest. Eldest “doesn't do phones” or so he
says, it's a good excuse anyway. I don't know why youngest is ringing
me at all, he ignored me for 8 days of me being ill so why would he
want to talk to me now.
T
sent me a text “youngest has been on the phone telling me you have
been missing for 24 hours” I said “he's talking bullshit, people
who go missing do not leave notes explaining “I'm
going out, I may or may not be back tomorrow and there is €30 in an
envelope on the mantle piece, the fridge and the freezer and
cupboards are full, if you need anything you can go out and get it
for yourselves and do not phone me because my phone will be off”
so it sounds like drama seeking to me” she texted me again saying
“he sounded worried but I told him I hadn't seen you” I replied
“I wish you would have told him the truth” she texted “if he
calls me back I will do so, as long as I can give him a piece of my
mind due to the state I saw you in and all you told me and all I've
seen and heard with my own eyes for years”
I
then had a call from an unknown number. I ignored it.
I
got back to the house at 1pm. Just as I was coming thru the front
door, eldest was going into the kitchen but he didn't see me or hear
me. I sat in the living room with my coat on because if they said a
word to me in abuse I would leave immediately. I sat on the couch for
an hour, they didn't come near me but they must have heard me
coughing.
They
both came out of the kitchen and went upstairs. I put the kettle on
and noticed half the dishes had been washed and were still wet on the
drainer so someone must have been interrupted half way thru. I sat
on the back door step and someone walked into the kitchen. I knew I
was clearly seen but not a word to me was said. Five minutes later
youngest asked me “can I have my medical card” I got it from my
hand bag and not a word of thanks nor a word of sorry came out of his
mouth to me, he went out the front door with a ruck sack on his back.
T
then rang me and said “he did call me again and I gave it to him
straight, I told him how shocked I was when I saw you get off the
train and how ill you looked, I told him I nearly cried because never
in all these years have I seen you look so ill and down beaten. I
told him the pair of you are a disgrace, you do nothing for your
mother and how dare you both treat her like you do. He told me he's
suffering from depression and she disrespected me in front of a
social worker” (I have never spoken or seen a social worker about
him or in front of him) T said “him saying that got me roaring at
him “you don't know the meaning of depression, I've had it all my
life and all I know and have seen is you are nothing but a lazy
bollix, get out and get yourself a job and help your mother
financially instead of sitting watching her kill herself minding you
two 24 hours a day” He again said “she disrespected me” T
said to him “you screamed in her face that she was a cunt
repeatedly, that is your mother and you call her a cunt, she has
fought tooth and nail to keep you all together and raise you when she
would have been better off walking away and leaving you both, you are
adults, she is never out of the court to get justice for you all and
faces that lunatic each time she goes to the court, all the time, every
year since she had to come back to Ireland for eldest and this is how
she gets repaid by you both, you are disgraceful”
I
told T what just happened when I walked in and told her “youngest
walked out after getting his medical card” she said “that's been
done to get you worrying and it's emotional blackmail” I said “I
know, it happens all the time but I'm not fit for it and I'm going to
bed because I'm dog tired, I do feel a bit better but I'm still ill”
I
went up to bed and looked in youngests room, it was like a pig sty
but I did notice he had taken his netbook out with him. I seriously
struggled financially to buy him that because he wanted it so badly
even tho I'd already bought him a laptop.
I
quickly fell asleep, not a word from eldest was spoken to me. I woke
up to my front door and windows getting banged non stop. I was
confused. I only had a pyjama top on and knickers. Eldest is too
lazy to answer a phone never mind the door. I shouted from the
stairs “who is it” the reply was “who the fuck do you think it
is” If I had been fully awake and more alert I would have just left
him out there and called the Garda to take him away but all I did was
open the door, I saw youngests key was still on the key holder in the
hall. I assume I was supposed to have noticed this earlier and get
worried but I didn't so it didn't work as he probably wanted it to.
He probably thought I would be ringing him as I normally would do but
I didn't, I had gone to bed because I'm ill and needed sleep. I think
he expected me to believe he'd run away and expected me to act
accordingly, it obviously had not worked. I am well past all his
nonsense now due to his verbal abuse and disrespect of me as
according to him “all women are cunts and whores”
I
went back to bed and sent the lady at Cross care a text saying “I
seriously need help and I'm not getting it from Gheel and I cannot
cope any more and I want my sons out of my house. I want to live on
my own in peace and in quiet before I end up insane” The lady rang
me and I told her everything.
I
rang L, my family court support and asked her “what do I do to get
eviction forms to get my sons out of my house” She said she would
find out and call me tomorrow.
I
rang a Housing Welfare Officer and left a message that I needed to
talk to her about my sons and my home situation.
I
made them dinner and called them down for it. Not a word out of them
and the dinner was left to go to waste in the kitchen. No wonder I
cannot stand them any more. A saint would have become a sinner years
earlier.
30th
August
I
woke up in the night
god knows how many times so I ended up getting out of bed and going
down stairs.
I
had an email from youngest saying “I am seriously mentally ill,
depression is poisoning my brain and I walked around looking for a
Psychiatric Hospital for 5 hours but could not find one”
That
is nonsense because he was not gone for 5 hours and why would he have
taken his netbook with him. I went into his room and woke him up. I
told him “I will go to the doctor with you to find out what's wrong
with you” he gave me a hug and said “I'm sorry about everything”
Deep down I know what he emailed me is bollix, I know he could so
very easily have found a hospital online, I know this is a fishing
line to reel me in again to be his defence, his shield, his old
mammy, I know all his tricks but I will still take him to the doctor.
31st
August
Spent
all morning with youngest at the GP who took one look at me and wrote
me a prescription for antibiotics. I told him why youngest “wants
to see you and
I do not care if you prescribes him Smarties but you need to give him
something to help him because I'm hanging on by a thread with all he
does and says to me” and I showed him the email youngest had
written. I then left to let youngest talk in private to him and when
he came out he had a prescription of anti depressants called Lexapro.
I
was supposed to go and meet the solicitor today
because yet again I'm back in court thanks to the ex and his puerile
efforts to fight everything, fuck me, if he had put as much effort
into his marriage, things might have been different. No, they would
not because I still would have left him, abusers never change
but due to taking youngest to the doctor I had to cancel my
appointment. I rang her and she said “there never seems to be any
let up for you at all” I said “you are right about that”
Got
home from the doctor with youngest and eldest was throwing up and
said he had been sick for almost 12 hours. I knew he would have to go
to the hospital. I asked him if I could help him, he told me “fuck
off” I
said “I will leave you alone in the hospital if I get one more word
of abuse out of you”
I
didn't feel guilty saying that to him. I felt proud of myself for
taking back the parent role, in hindsight it was a cruel thing to say
to him because it would have caused his already high anxiety to go
higher but at the time I was on a slippery slope going hell for
leather downwards but didn't know it at the time. I was juggling too
much and something was going to give.
Edel
from Gheel rang me, when I told her about eldest, she said “call
him an ambulance, I will talk to Peter, (the CEO of Gheel) and meet
you at the hospital because I think all that's recently happened will
just cause you a total breakdown”
How
I would pull this off I had no idea, I didn't want to be alone with
eldest in public after no communication for so long. I was still
recovering myself, still feeling weak and fragile and was worried and
horrified at the thought of eldest telling me what he thought about
me in a public arena so I told Edel “if one word comes out of his
mouth in abuse to me I will walk out of the hospital and wash my
hands off him” and I truly meant it. He
and I had not spoken in 12 weeks now, it's a power struggle with him
and self protection mode with me and it's bloody awful especially
when someone like me can talk all day long about everything and
anything. I had so much to tell him, to say to him, to share with him
but I didn't, he crossed the line, he used up his last life as the
old saying about cats goes.
I
rang for an ambulance and they turned up quickly, eldest was still
throwing up and it's extremely difficult to reach out and sympathise
with someone when their first instinct is to tell you “fuck off”
so I simply sat and said nothing at all.
We
were sitting in the middle of chaos in accident and emergency,
trolleys were everywhere yet they were still managing to fit more
trolleys in. Eldest sat on a chair under very bright fluorescent
lights with his head down vomiting into a bag. I quickly went to
find a doctor to explain the situation because he would not be able
to handle all this and I would not be able to handle him. I was
basically told in polite language tough, we're too busy and have
nowhere quiet for him to go that would ease his sensory issues.
A
little old lady on one of the trolleys constantly shouted out for a
“nurse” she was ignored but she caught my eye because I was the
closest person near her and she let rip and gave me the biggest belly
laugh I had in years "Nine fucking kids I have and not one of
them comes near or by me" She proceeded to lambaste her kids to
me peppered with swearing. That'll be me one day I thought. I went
to get her water and told her “you're a real tonic and if you need
anything just give me a shout if you see me”
Edel
of Gheel came to the hospital and got pro active, she talked to the
nurses and eldest was seen and given an injection, we were encouraged
by them to wait in the reception area that was also jam packed with
people but wasn't as busy as accident and emergency. I was encouraged
by Edel to go off and get a cup of tea, to have a break, but in my
hurry to get to the hospital I had no money but I wandered outside
anyway and realised I was scared and scared for eldest having now had
serious agoraphobia for 5 plus years was bad enough, having Aspergers
in severe form and all that entailed with sensory issues of light,
sound etc, his phobia of needles, of people, his non stop sickness,
the awful pain he's been in and is in now, having to leave the
sanctuary of his room, his home, I was scared he would be abusive or
aggressive to Edel or to me, I was scared that I will lose it myself.
I for once in my whole life did not feel strong enough for this. I'm
sick of fighting for everything, sick of fighting everyone, sick of
explaining to everyone, sick of fighting for him, I am just sick full
stop.
Having
arrived by ambulance at 1.30pm he was eventually seen at 6pm, he had
blood tests, he had x-rays and had a drip put in his arm.
A
nurse who came on shift was making herself busy and told me and Edel
“only one family member is allowed” and I bit my lip because I
now had no working off switch when dealing with twats. Edel took the
nurse aside and explained why she was there, the nurse then
apologised, Edel told her “everyone is different and it's not good
to just make assumptions and upset people who are already in such a
stressful situation” The nurse said sorry again.
Why
anyone would think people just want to spend a day in casualty for
the hell of it is beyond me. The nurse was then acting like our new
best friend and told us “some blood results are now back and aren't
good, his liver levels are very high” Eldest returned from the
toilet and the nurse walked away and my head felt like it was about
to explode, this was serious, oh my god, he doesn't touch alcohol, he
was in this very hospital as an emergency in June and was told he was
a mystery yet he had all the same symptoms, what the hell was going
on.
The
nurse returned and said “he's going to be admitted but I've no idea
when because there is no bed on a ward as yet” Eldest said “no”
I said “no, it's now midnight, I have my youngest at home, you
were not concerned about him in June, you showed no concern about him
for the past 11 hours, you have done nothing about his special needs”
and my eldest got agitated at my agitation and stood up and demanded
“remove the needle from my arm now” a different nurse explained
why he needed to stay. I said “stay where, in this chaos, how is
that going to help, I'm taking him home and will bring him back in
the morning” they at last got the picture and we were put in a
quiet area, eldest was on a trolley bed and all the lights were
switched off, my head was pounding. Edel went off to find a garage
open that would sell cups of tea but she returned empty handed
because everywhere was closed.
I
was amazed and very grateful at Edel staying with us all that time,
she went over and beyond the call of duty and I know for a fact that
things as bad as they were would have been so much worse if she did
not get pro active on our behalf with the over worked staff and with
an over emotional mammy.
At
2.30am, a consultant arrived, he apologised “there is no bed on a
ward but he should have peace and quiet where he now is, we need more
tests done in the morning, so he's in the best place for now”
Eldest was then given a strong pain killing injection and Edel said
she would drive me home so I could collect all needed for him for
however long he would remain in hospital.
I
was distraught leaving him there in an alien environment, the past 3
months of silent war with him no longer mattered, he's my son. I
walked up to his head and held him and kissed his forehead, I have
not touched him in so long, I still recognise his smell, from his
skin, from his hair, from my womb, he's my son and I love him, that
love may have been dormant, it may have been ground down and not what
I suspected, killed, it's still there, he assured me “I'll be okay,
I can go to sleep now that the pain has gone” I promised him “I
will return as quickly as I can”
The
nurse in charge touched me on the arm as I was leaving and told me
not to “worry too much” because she saw me crying, she said “we
will take good care of him until you get back”
Edel
dropped me home at nearly 3am.
Youngest
was still awake. I quickly packed a bag with all I thought eldest
would need and top of that list was his studio head phones that
drowns out external noise and his kindle. I lay fully clothed on top
of my bed and listened to my Crystal Angels CD and before I knew it,
it was 5am so I jumped up thinking I'd had the strangest dream before
I realised it wasn't a dream at all and got myself into a bath and
back up to the hospital hoping and praying eldest was okay and still
asleep and not in pain.
I
heard him before I seen him. He was roaring like a bull and retching
audibly and violently, he was roaring for help but because he was in
an isolated area away from the main accident and emergency no one
went near him except, as he told me, “to hand me a sick bag and put
a drip into me” I was on my own and despite very little sleep my
anger on his behalf gave me back some well needed energy. He verbally
purged himself of all his anger in no uncertain terms towards me. I
went to get a nurse, I was as mad as hell but that wouldn't get me
anywhere, his pain needed to be controlled so he was given an
injection. The consultant came surrounded by his eager to learn
team and my eldest let rip at them, he had so much anger in him. I
took the consultant aside and explained why eldest was like he was
and why he must be treated differently and asked why did no one seems
to know or care about his special needs. I was assured by the
consultant that “firstly his pain control will be given top
priority”
The
medical problem I was told “it seems to be gall stones which are
blocking his bile duct and this is causing the extreme sickness and
the very bad pain but we are very worried about his raised liver
levels, it means the blockage is dangerous and he needs to have a MRI
scan and a scope down his throat but this can't be done until a bed
is available because sedation is required, it's now just a matter of
waiting”
We
had been put in a day clinic that opens from 9am to 5pm so the staff
moved eldest to the end of unit, the staff there were lovely and told
me to just ask if I or eldest needed anything.
He
had more injections for pain and at last looked peaceful with no pain
and the sickness had now stopped. He hadn't slept since Tuesday and
it's now Thursday.
A
tea lady came round and apologised that no one told her we'd been
here for the past 24 hours and she gave me tea and biscuits.
We
were told at 4pm that they had a bed for him and it's in a room on
it's own so I could stay with him and we could go once the room was
ready. At 9pm we were still waiting and the staff nurse told me “I
have gone ballistic to the ward staff”
We
were at last on the move. The staff on the ward were wonderful and so
kind. It was 10pm. I had to sleep on the floor but they got me a
pillow and a blanket but it was a tiled floor and within 10 minutes
the cold had seeped into my bones so there was no point in me even
trying to sleep. Eldest did tho, thank god. I was so tired it felt
like I was drunk.
The
next day eldest got his MRI early and he coped with it fine, we were
back on the ward and he was given another injection and I went home
to check on youngest and to have a bath and change my clothes and
then went straight back to the hospital again.
A
doctor came into the room and explained all about the scope he was
about to have, his throat would be sprayed, sedation would be given
and they would take a biopsy of his stomach. Eldest had to sign a
consent form and off we went.
I
entered the theatre with him and took the chap who was going to do
the procedure to one side and explained the situation and told him
eldest had a high threshold for anything so would need more than the
average patient, he said he understood, sedation was given and I left
the room.
After
five minutes a nurse came to get me quickly followed by the doctor
who took me into a side room. I was told “the procedure did not go
as expected, the sedation did not work” The doctor apologised, he
said “He struggled non stop and I do not blame him, it must have
been an awful experience for him” but did that stop them shoving
the damn tube down his throat, no, did that stop them going ahead and
taking the biopsy from his stomach, no, what kind of frigging world
do we live in when the caring profession do not care at all, three
people held him down in an attempt to just frigging carry on doing
the biopsy.
When
I went into eldest he was silently weeping on the bed. I reached out
my arm in an attempt to comfort him but got told “fuck off” and
then got called “a bastard” A porter took us back to the room in
the ward and I went to find a nurse, I told her “he will need
sedation because he's about to erupt” she said “the doctor will
be round in minutes so you need to ask him”
I
went back into eldests room and he was openly crying, he said “it
was the most traumatic experience of my life, I was being sick as the
tube went down and the staff didn't care, I was struggling to get
them to stop but because I had a fucking mouth guard in and a tube
down my throat I couldn't talk, all I could do was thrash about but
they still carried on”
A
female doctor then came in his room. Eldest told her what had just
happened to him and told her what he thought of them all, then a male
doctor came in and again eldest repeated all and told him what he
thought of them all too. The male doctor said “the MRI is clear and
it's definitely gall stones and the gall bladder needs to come out,
his liver levels have decreased slightly but we need to keep a close
eye on him and you will have to come back to the hospital as an out
patient in the next two weeks for more bloods and the results of the
biopsy” Eldest said “I'm going home” and the doctor said
“okay. I gave the ward staff chocolates and hugged two of the very
lovely nurses on the ward and we got home at 5pm.
7th
September
I'm
working non stop on my court file. I had to go to the solicitors new
office on Monday to have a meeting about the bank statements she'd
received from the ex, all she did was flick thru some of his file and
then gave the file to me to take home. I told her I am not happy with
F as my legal representative.
It
took me 10 hours to go thru all his bank account statements. I sent
an email to the solicitor re what should be investigated and all that
is missing. He now has 8 bank accounts that I know of.
Transaction
from ex's bank account
Card Transaction An Post €699.57
Card Transaction An Post €139.05
Card Transaction An Post €242.38
Transfer non ref €5,432
Chaps International Cheque €2,502.45
Lodged €127,748.75 withdrew €120,000 wrote next to it “savings”
Lodged from UBFM International Payment €47,194.48
Transfer to current account €8,750
Transfer to current account €4,500
Transfer to current account €92,421.92
Balance
€84,946.36
Withdrew
€42,247.31
Balance
left €42,705.25
Urgent transfer €5,027
22nd
October €75,000 from London Solicitors
20th
October to 20th
November withdrew €4,944 in 4 weeks
20th
November to 19th
December withdrew €13,873.74 in 4 weeks
(on
16th
November the ex packed in his job and sent me a woe is him email that
he was living on noodles and summoned me to court to stop paying
maintenance he wasn't paying)
19th
December 08 to 19th
January he withdrew £6,249.42 in 4 weeks
20th
January 09 to 19th
February he withdrew £2,918 in 4 weeks
20th
February 09 to 19th
March he withdrew £1,301.64
20th
March 09 to 19th
April he withdrew £6,821.24
20th
April 09 to 19th
May he withdrew £932
20th
May 09 to 19th
June withdrew £3,649.42
20th
June 09 to 19th
July he withdrew £3,160.72
20th
July 09 to 19th
August he withdrew £4,864.34
20th
August 09 to 19th
September he withdrew £5,175.22
20th
September to 19th
October he withdrew £1,835.29
All
cash withdrawals are from his English Account
Cheque paid out £7,934.61
Cheque paid out £2,500
Cheque paid out £3,484.31
Urgent
transfer for £5,027
No
bank statement for where the £49,950 went to for sale of the English
house that was in joint names and I got nothing.
Wicked,
evil, mad, bastard to have all these accounts and have all this money
and I was legally entitled to half of all money within the marriage
and he gives not one fucking cent to me and so our kids and he has
the cheek to be on the dole and got away with not declaring a cent of
almost three quarters of a million euro to the state.
8th
September Court.
The
place was packed out as usual. I sat with L and my youngest and in
walked F even tho I've repeatedly told the solicitor that I chose her
from a long list given to me by the court because she's female and I
told her again yesterday that I'm not happy with F and still she
didn't turn up to represent me.
F
sat beside me and started talking to me about my case in full hearing
of all other members of the public, letting everyone know my personal
business. I told him “I will not be answering any of your questions
in a public arena” He started snapping at me verbally “I can't
go into court until you give me the answers I need” I ignored him.
L said “I've noticed he's very short tempered and keeps biting the
head of you”
The
ex walked in with a ruck sack as long as his body, L said “he looks
like he's just walked in from the Electric Picnic festival”
The
ex didn't go up to the court for the call over, his solicitor did.
F
came back down to me and told me that we had to go into court now.
The
ex was “looking to have over €10,000 I owe struck out” and
admitted “I have been stupid to fritter away so much money” his
back account statements large file was handed to the judge.
F
told the judge “this man spent €69,000 in a mere 24 weeks” the
judge said “I am not wiping the arrears because the amount is far
too large an amount” F said “previous judges have asked him to
provide all assets in Ireland and England for a reason” and the
judge said “that still stands too and he has until 5th
December to comply”
I
asked for a copy of the valuation re the ex selling his share of the
London property and got handed something in his brother name dated
2005 which made me say out loud “I don't believe it” F said “you either believe
it or are saying we are lying” which was completely out of context
and nothing to do with what I'd been reading. F was being short with
me saying it in a way meaning that solicitors do not lie. I walked
out in disgust.
I
met J the previous stand in solicitor on the stairs. I told her “I'm
sickened by the law in this country and I'm sick of F” and asked
her “will you be free on December 5th”
she
said “ask your solicitor if that will be okay and I'll be glad to
help”
I
left and went to the cafe with L and youngest. I told L “the ex is
just doing all he is doing out of pure spite and revenge and all
because I left him” L said “he looks a wreck and doesn't look
like a man with peace of mind” She asked youngest “what do you
think of your Dad” youngest said “I don't think anything of him
at all, I have no connection with him and never will because he's
never been a father to me and I only ever had my mum” “And she
is such a good mum” said L. “I know that” said youngest and I
felt chuffed to bits at that compliment because they are few and very
far between. I thanked L and we left to go into town.
I
bought paint in town and sent the solicitor a text about court today,
She rang me at 6.29pm. I told her “I do not want F any more, even
L who always accompanies me to court said he was always short
tempered and taking the head of me and I will not have anyone talk
down to me or discuss matters after I had told him to stop” The
solicitor said “I will kill him, he is nothing but nice when I'm
there, okay, he's now binned” I told her “I want and need a
divorce, I need to get shot of this man once and for all” She told
me “ put it in writing to me and send your permission to get copies
of all court orders made in the other County court and in Dublin”
I asked “why” she said “I want to prove how ridiculous that
man has been bringing you to court so many times and still not
provided all he's been asked to”
I
spent Friday and Saturday painting. youngest told me “the colour
reminds me of hospitals and I hate hospitals so you're doing it on
purpose” I told him “bugger off and find someone else to annoy”
At
11.50pm I got woken up by my phone ringing, it was the ex's number.
I didn't answer it and no voice mail was left.
T
came to visit on Saturday night and left Sunday afternoon.
12th
September
Met
S the advocate in the local cafe, I knew she had something to tell
me. She did, she's leaving and wanted to tell me in person. I am
gutted and will miss her greatly, she has been a tower of strength to
me.
Youngest
rang me from school, he said he was okay but he didn't sound okay. He
said “I'm sitting in the reception area for my break” the poor
lad, it's not fair that he's ostracised by them all like this and has
to sit there for his own safety.
Youngest
rang me again from school as I was making eldests lunch, again he did
not sound right but I couldn't push the issue because he would clam
up even tighter so I knew whatever was going on he would tell me when
he was ready. I asked him “can you cope for the hour lunch break
alone or do you want to come home” he said “come home” so I
went out to meet him.
When
I met him he said “I have agreed to meet Michael McCreadie at the
end of the month” but he was very quiet after telling me that.
When
we got home, he lay down on the couch. I wish he would tell me what
was wrong because something obviously is wrong but he wasn't sharing
it. He only said “I have no energy and not had any for ages and I
always feel tired” I said “it might be the Lexapro meds” he
said “you know nothing” I don't know why I even bother with him
sometimes.
14th
September
Met
youngest from school. He told me “a teacher had a chat with me
about getting a form signed by you to be returned ASAP, it's for
extra teaching support” I was confused because youngest is a grade
A student so I'd no idea why he would be needing “extra teaching
support” youngest said “I don't know either and I do not need
extra teaching and I told the teacher that but she told me “get it
signed anyway” youngest asked her “about the SNA I'm supposed to
have so I can feel safe walking about the school from A to B as it
was supposed to be set up as soon as the school had the assessment
from Gheel but the teacher told me “I don't think you need that as
look at you now sitting there so composed and anyway SNA's are
usually only for the badly behaved in the school”
I
was furious, I sent Edel from Gheel a text about it, she rang me and
said “it's appalling that the woman is so ignorant judging youngest
on his appearance and over riding his official assessment” she
said “I will give the school a call on Friday because I believe the
school needs to be fully educated on Asperger's” I told her
“youngest has two school trips coming up and I'm worried sick about
him being out and about with all the other pupils who just make his
life hell and ignore his very existence” she told me “you cannot
be worrying about things that have not happened or you will drive
yourself insane” I told her “I'm going by the history and I will
go insane if anything happens to youngest when he's miles away and I
would rather have things put in place for his safety before hand than
sit in casualty for hours afterwards” She is getting on my fucking
nerves big time with her idiotic comments, She does not live my or
youngests life.
15th
September
Youngest
sent me a text “I forgot to take MY meds and don't know what to do”
I rang him and asked “what do you want to do” he said “come
home in case I get in a panic without taking my meds because I don't
think I'll be able to cope” I rang the school and told them he
wouldn't be in.
L
rang, she got the okay from her boss to attend court with me on 5th
December, we had a long chat.
16th
September
Youngests
school trip to RDS, it was lashing down with rain. I sent him a text
asking if he was okay, he replied “yes but I'm on my own as usual,
I found three college stalls that do Journalism Degree's”
I
was on my land line to Disability for him about his application when
my mobile rang non stop, one call after the other, it was youngest so
I had to hang up the land line because I knew this would be an
emergency.
Youngest
told me “I saw the other pupils leave the RDS so I followed them
and they all jumped on a bus and I didn't know what bus to get to
come home and couldn't find the dart station” I told him to ask
anyone he saw for directions but he told me “no, I will not ask
anyone for directions”
I
rang up the school from my land line keeping my youngest on my mobile
and told the school “I'm not in the least bit happy with any of you
because I wrote on the bottom of the consent form that I wanted
reassurance for my youngests safety and welfare on this trip whilst
out in public with all the pupils who hate the sight of him” A
woman told me “I will get someone to call you back.
Youngest
said “I can see another college” I said “go into their front
desk and ask for directions to the dart station” I went on google
maps at home in an attempt to help him but I couldn't work it out at
all. I have never been good with maps.
Youngest
said he would go and ask at the college and then he would text me
when he came out so I could ring him back.
The
Principal then rang me on my land line and asked me for youngests
number, I said “he won't answer you because he will not recognise
your number and he's in a flap at being lost” the Principal said
“I will get a teacher to stand outside the RDS if youngest goes
back” I told him “he saw pupils leave so he followed thinking it
was over” The principal said “ the ones who left must have just
been fed up as the teacher is still in the RDS with the rest of the
pupils” Youngest then sent me a text so I told the Principal I had
to ring youngest and hung up.
Youngest
said “I had a call from number I don't know” I said “it was the
Principal” he said “why would I want to talk to him” He then
told me he got directions and I stayed on the phone with him till he
got to the dart station.
The
Principal rang me again. I told him “panic over now, he's at the
dart station and coming home but I want to know why no one paid any
attention to my words about his safety and welfare on the consent
form I signed” he said “I don't know but I will find out and I
hope he's is okay”
Youngest
sent me another text to call him, I did. He said “I don't know what
train I should be on or what direction I should be taking” I
stayed on phone with him till he got on the correct dart.
He
arrived home one hour after his first call to me and the sheer effort
of his experience had totally drained him, he told me briefly about
his day then went to his room and slept.
I
looked in on him, at his sleeping face, it's perfect, no wonder he was
signed up as a model, he is gorgeous, not a line or a mark on him,
not a frown on his skin, you would never know by looking at him that
he has these unique needs and there lies the bloody problem!!
I'm
disgusted about what happened because I had to sign a consent form,
which I did, but I also added that I wanted reassurance for his well
being whilst out with all the class mates who have him completely
ostracised for there own puerile reasons. Youngest is very
intelligent, very well mannered, very polite, well spoken, gorgeous
but doesn't realise it, so what the hell he has done to be shunned by
his peers is beyond me except he had the gonads, albeit rather late,
to report some twat smacking him in the balls for no reason, just for
standing awaiting entry to a class room, apparently you do not
"grass" on anyone, thankfully the pure evil crap he went
thru at his last school which was swept under the carpet as accidents
that landed him in accident and emergency for many hours which
he did not "grass" about until he almost had a nervous
breakdown made him wake up and know that "grassing" about
bullying made him perhaps save others the same pain physically and
mentally yet he continues to suffer by his peers ignoring him. I hope
their parents are proud of them.
I
had texted youngest earlier whilst he was at the RDS to asked how his
day was going and he had rang me to tell me that he was wandering
around a huge building that has many careers options and giving
advice, talks etc. Youngest has many plans, dreams, talents, so going
to the RDS was good for him but when he was home he told me “as I
joined one group of pupils they fucked off and left me so I joined
another and they fucked off and left me” and as he told me this I
could feel my blood pressure rising and I did fear for him and wished
to god I had been there with him, but wait a minute is he not an
adult? yes he is, but he has not just special needs but unique
needs and my blood's boiling on his behalf.
The
poor soul, when he's not at school he's home and doesn't leave the
house until school comes round again unless he comes out with me to
help me carry the shopping, what kind of bloody life is this for an
18 year old, who is so gorgeous, not a friend nor a social life of
his own in sight.
He
told me “I saw the pupils from the class all leave the RDS and walk
to the bus stop so I followed but by the time I got there they had
all hopped on a bus and I didn't recognise any of the bus numbers and
I freaked” nothing else mattered to him, no problem solving for
him, he didn't know how to problem solve so rang Mammy.
This
is where the flight or fight scenario comes in to play for him, he
doesn't know where he is, how to get back, how to find out where to
go etc, for the rest of us it is very simple, we have a problem (we
are lost) we figure out a solution (we stop someone and ask where the
nearest transport back to where we want to go is) we walk to where
that transport is and we get home.
Youngest
does not ask someone because it means having social interaction and
his heightened state halts any straight thinking or problem solving.
The
Principal did tho get to work in positive way, he contacted the
escort teachers, he asked for youngests phone number (but youngest
never answers if he doesn't recognise the number) he kept in touch
with me to make sure youngest was safely on his way home and at last
I thought the Principal is now appreciating that youngest does indeed
have unique needs (tho he insisted thru prior meetings that youngest
was okay and only had Aspergers a little!!! and needed no real
external help)
Edel
from Gheel came to house. She said “I'm glad all is okay with
youngest now” I told her “I spoke to you about my worries about
him prior to going on the school trip and all I got out of you was
“you can't be worrying about something that hasn't happened yet”
Not answering what I'd just said to her, Edel said “it proves the
school need to be educated and trained on all to do with Aspergers,
not just for youngest but for others too and I rang the school today
and the Principals is claiming that youngest is fine and coping well
and I told him youngest might appear to be coping but it's actually
due to him holding it all together until he is out of the school”
She said “I still haven't got hold of the Disability Manager as yet
and Geraldine Murphy needs to talk to the old one Carol Doolan,
firstly about the case. I asked Edel “why” and no straight answer
was given to me, all I heard was “it's all about being in a new
area” I said “it's still the same post code so what's new about
it and we have been here for 9 months now” No answer was given to
me. Instead she asked me for “all details of eldests next hospital
appointment” and said “I will call the hospital the day before so
it will be as stress free as possible and will collect you and take
you there” which is really kind of her. She said “youngest is to
meet with Michael McCreadie next Friday at 2.30pm”
My
phone rang, it was my youngests career guidance teacher, she meets
youngest once per week, she said “I was on the RDS trip and I am so
sorry about youngest getting lost and getting so distressed” I
told her “it wasn't your fault at all but I'd written on the
consent form that I wanted reassurance for his safety whilst out in
public” she said “I didn't see any form because they go to the
class teacher” She said “youngest is a lovely person and a proper
gentleman and I'm horrified about what has happened today and if you
ever want to talk to me I will be more than happy to meet you to do
so” She is a very nice lady.
17th
September
Had
a bad nights sleep. I keep waking up again. I switched on my phone
and there was a voice mail left at 2.21am from a private number. I
could hear a woman talking and laughing but it was inaudible, other
people were in the background talking too but I couldn't make out a
word of it.
Missed
a call again from the ex at 10.30am, no voice mail was left. I am
pissed off with his nonsense. I sent a text “why are you ringing
me” No reply.
I'm
feeling rough again, I must be coming down with something, I watched
the Ireland against Australia game, Ireland won, a brilliant game it
was.
20th
September
Meeting
at Cross care. The Open University person was there to congratulate
us on doing so well with our exams. Conner the Director, a lovely,
funny man asked us for our details to put us on the relief panel for
their homeless houses they run, he told me “our volunteers get paid
and it would be a pleasure to have you and I could listen to you talk
all day” he said “you are a comedienne” I said “you should
see me at home, I'm apparently the devil incarnate” He laughed
21st
September
Eldests
hospital appointment. He took 4 Xanax at home then asked for another
2 at the hospital, he was chatting away like a budgie to Edel from
Gheel. I had forewarned her he would be like this when full of
medication. Edel dealt with the receptionist for us then we went in
to the Consultant, he said the stomach biopsy was fine, I told him
about the awful experience eldest had with that procedure and that it
must never happen again because the sedation did not work on him. We
were told he needs to get his gall bladder out and he would write to
the surgeon today about it. I said he needs to have a room on his own
because the Aspergers makes him have unique needs. Edel explained it
to the Consultant in more detail. I got told that setting this up so
I could stay in the hospital with him might take longer. I was told
that if his pain flared up, I have to just bring him back to
casualty. Edel drove us home. Eldest was as high as a kite and in the
mood for talking, talking at me, not with me.
23rd
September
Youngest
met Michael McCreadie in Gheels office, he said “I won't go unless
you go down with me” I sat with Deirdre and Paul in the office.
When youngest was finished and we were walking home he said “the
bloke is nice enough but I and only I know what I need to feel
normal, less anxious and no one is getting it or listening to me”
Youngest
told me he's going to town to meet up with 30 others in St Stephen's
Green and I internally panicked. This from my son who always said he
hates people, he hates society, that he cannot socialise, no wonder
I'm confused at this turnaround. This is so out of the blue for him
and yes I'm worried but he's an adult so there is nothing I can do or
say so I just hope he will be okay.
24th
September
Youngest
left at 1pm. I gave him €50 and told him to take care and be
careful. I'm confused about this sudden interest at going out and
meeting up with strangers. I am tho happy for him but he is
vulnerable and cannot stick up for himself so Christ knows what's
going to happen. I wish I could take a step back but I'm so used to
him calling me no matter where he is with some drama or another that
my nerves are shattered. I imagine him being dragged off by a pervert
or getting a beating.
Youngest
sent me a text when he was coming home by dart. I met him with puppy
at the dart station, he gave me a kiss on the cheek. He told me “I
was shaking and couldn't find the place to meet up but I'm glad I
stayed because I had fun” I am so happy and delighted for him.
Youngest
has been refused Disability Allowance so I have a lot of work on my
hands to put in an appeal for him
27th
September
Rang
Edel from Gheel and told her about youngest going out to meet up with
a crowd of strangers but that he had fun. I asked “can I have a
letter about youngest having Aspergers so I can take it to the school
because I have a parent, teacher meeting coming up” she said “I
will give you some leaflets”
Went
out to meet L in town and when I got home youngest had left his key
on the outside of the door. Anyone could have just walked in the
house.
29th
September
More
documents from the solicitor re the ex. He's refusing to comply with
the full disclosure as per the court order, he's objecting to
schedule this, that and the other. I sent an email to the solicitor,
I'm getting nothing explained to me. I told her “I'm doing it all
myself as you obviously now have a big client load” she replied
saying “you can get your file but you will end up as crazy as your
ex is in an attempt to pin him down” she said “go for divorce,
you will get nothing and yes I do believe he has hidden the money but
it could be anywhere” And there was me thinking that
solicitors take their clients instructions and not the other way
round and I have got no where after all this time due to shitty don't
give a crap about you attitudes like that.
Me
and youngest were at the doctor, he told me I have bronchitis, he
didn't even examine my chest, he just gave me anti biotics. He gave
youngest another prescription of Lexapro.
We
just walked in the door at home and eldest was as sick as a dog and
in dreadful pain, he took an anti sickness pill and two Tramadol. I
rang casualty just in case we needed to go in, they told me to ring D
Doc if he got any worse because it was packed out up at the hospital.
4th
October
I
am feeling very low as the ex is getting away with everything and I
have a solicitor who is explaining nothing, she just keeps telling me
to go for a divorce despite knowing all about the ex and all about
the hidden funds I am legally entitled to half of. If I do what
she's telling me to do then I will have fuck all. A 21 year marriage,
three quarters of a million gone thru his numerous bank accounts and
I will get nothing for me and my kids. I don't fucking think so.
I
called up to eldest that the living room was free if he wanted to
come down and read his book. He wasn't in the living room for five
minutes when I heard him come out and slam the door. I asked him
what was wrong and he said “I have the hump because the dog got
stuck behind the door to the toilet and is chewing the skirting board
so I can't concentrate on my book” At least he is telling me
instead of the usual exploding at me and sulking for days and weeks
on end.
5th
October
I
told
eldest I'm not banking his money this week as he needs everything for
the hospital when he goes in for his operation. I got him a new
dressing gown, pyjamas, socks, boxers, trousers, slippers,
toiletries, t shirts and gave him his change.
6th
October
Youngest
is coming home from school at lunchtimes all the time now. He walked
out today because the class were all sent to listen to a talk from
the school Psychologist, he said “I'm not going to sit with a bunch
of retards or listen to bullshit from the psych”
I'm
ill with another head cold. My immune system is shot to shreds. I
was in my pyjamas when a bloke in a suit knocked my door, I didn't
answer it and watched him walk down my path talking on his mobile
phone, he didn't go to anyone else’s door.
Rang
the doctor for a repeat prescription for eldest for anti sickness
tablets and Tramadol, the receptionist told me “I can't be giving
out meds willy nilly” I asked her “have you ever had gall stones
that gives you pain like you're in labour and causes you to have
projectile vomiting non stop” she said “no” I said “neither
have I but I'm not going to sit and watch my son howl in pain and
suffer with sickness for 24 hours solid, I need his prescription
today and I want the doctor to call me back”
I
sent Edel from Gheel a text about the GP. She replied “I've rang
the surgery and left them a voice mail” which is a complete lie
because my GP doesn't have any voice mail set up.
I
rang the surgery myself again at 3,30pm and got told the doctor will
call you at 5pm, he didn't call me. I rang again, the receptionist
told me “you can pick up the prescription tomorrow in the chemist”
8th
October
Got
up really early to watch the Rugby match, Ireland got beat by Wales.
I'm gutted.
Youngest
went to a meet up in town, he picked up my wool for me after telling
me earlier that he wouldn't get it for me. I was not happy with him
this morning and reminded him about all the running around I do for
him and he is going out socialising with money I'm giving him, money
that is for one person to live on as he has no income and I get no
money from anyone for him.
10th
October
My
back is killing me with severe muscle spasms. Eldest gave me one of
his Tramadol to take, never again, I felt awful, it made my head
float and felt like I was going to faint and I had a terrible sick
feeling with them.
Call
from youngest from school. “D. S in biology class asked me if I
have a brother and is he normal or is he like you” The teacher in
the class asked youngest “is he a friend of yours” youngest said
“no” I was furious. I told youngest “get to reception and tell
them I've ordered you home and the reason why and your mother has
said you are not to put up with any more of this shit”
He
sent me a “call me” text. When I rang him he said “the
reception of the school is shut” I said “just write a note and
give it to the first teacher in your year that you see”
I
rang the school and left a voice mail. Mrs S rang me, she said “I'm
youngests Year Head and I will deal with D.S” she asked me “does
youngest want an apology” (WTF) she said “youngest is getting on
better now and interacting more” I said “you must be talking
about a different pupil because my son interacts with no one and no
one interacts with him, he is totally isolated and ignored and if
what you're telling me is true then why is he having to sit every
break in the reception area alone to feel safe and not be picked on
and why is he coming home from school every lunchtime and why is he
calling me every day with yet another problem that he's having
difficulties with” She said “I'm sorry that this is his
experience” I told her what youngest had told me on the phone, that
another pupil D, who was only last week telling him he should be head
boy decided to sit next to him in Biology and ask him if he had a
brother (not do you have brothers or sisters) then began quizzing him
about his brother before ending the conversation with " Is he
like you or is he normal" The biology teacher must have over
heard the conversation as she asked youngest if D was a friend of
his, he answered no. I told her I was like a bull over this remark to
my youngests face and I'm worried that this D had overheard someone
talking about my family, she assured me that was unlikely. She said
they will all keep a close eye on him. My fear is any back lash when
this D is told I have been on to the school about what he said, Ms S
said the school would ensure youngests safety. I told her “youngest
is fine but unhappy and believes an adult in the school has spoken
about him and his brother and it's been over heard by pupils”
I
told youngest about the phone call I had with his Year Head, he said
“I am not interested, I'm tired and going to bed”
When
he got up he came to me to
educate me on his new diagnosis of Bi-Polar Disorder, and I almost
hit the roof. He's taken two online tests so to him it must be true,
no amount of me telling him he's not was getting thru to him so I
told him go find an expert and sort himself out. I swear I will
drown his laptop if he keeps putting new labels on himself then
hounding me with all his new found disorders and then his verbal
abuse when I do not agree with him about what he comes up with.
17th
October
Youngest
told me this morning that he has a date on Saturday. I am thrilled
for him, he said “I'm going to the cinema” I only realised later
that it would be me who was paying for it. He met her on the Meet Ups
he's been going to the past three Saturday's.
I
got my Open University certificate in the post.
I
had it in my head all day to call the divorce court for an update. I
did and they told me “no movement at all re your case” I had
asked my solicitor months ago to chase them up and get me a date. I
need to sort this out once and for all.
22nd
October
Walked
to the local shop with youngest and puppy. On the way back he stayed
at the bus stop to go to town for his date. I gave him €60. I
couldn't believe it when he returned after 5 minutes, he said the
girl “changed the time from 2pm to 4.10pm as she has to clean the
house or her mother will not let her out” I didn't say anything
but I did think it doesn't bode well at all only letting him know as
he was about to jump on the bus. I kept my mouth shut. He got the
next bus to town because his I pod stopped working and he's taking it
back to the Apple store. I sent him a text at 10pm telling him the
time of the last dart home. He got home at 11pm, he didn't have much
to say at all except “had fun” I was so looking forward to
having a chat with him, even about the film.
24th
October
More
drama with youngest and school. He said “S. D was shouting out in
front of the whole class “you like dick and he wouldn't stop
tapping me” I told him “you need to start retaliating, you have a
big enough mouth towards your mother, just punch the fucker and be
done with it and it will never happen to you again” youngest said
“I went to the Principal who said S.D probably did not mean any
harm” youngest said I replied to the Principal “off course not
because humiliating me in front of the whole class and insinuating
that I'm gay would not mean he is causing me harm” That Principal
is a complete idiot. Youngest then said “me having Aspergers must
be round the whole school as S. D. asked me if I'd ever been tested
for Autism” I told him “don't waste any breath on these people,
just deck him and be done with it and I guarantee if you do, you will
never be bullied again because all bullies are actually sad cowards”
I would never normally condone violence but enough is enough, he's
had this shit in every school he's been in. You can either be a
victim or a survivor.
25th
October
Up
at 6am because eldest has his appointment at the hospital today to
meet his surgeon. I gave him 2 Xanax, he said that was not enough and
wanted another two.
I
told youngest three times “if you don't get out the door you will
miss the bus to get to school on time” he didn't leave the house
till 8.10pm. He sent me a text at 8.30am “I'm going to walk, no bus
turned up” I texted him “I told you, you would miss the bus”
He sent me a “call me” text and I rang him. All I heard was him
shouting down the phone at me “I am sick of you criticising me and
making me feel like an idiot” I couldn't believe my ears. I said
“you have the brass neck to send me a call me text so you could
scream abuse down the phone to me just because I told you three times
at home if you didn't get a move on you would miss the bus and I was
right because you have missed the bloody bus, grow up” He hung up
on me.
Eldest
full of Xanax said “you're far too soft on youngest and always have
been and because of you, you've turned him into a pussy, he needs a
slap, do you want me to give him a slap, because I will” I said
“for a very intelligent man you are very stupid and I must have
told you a billion times over the years that violence is never the
answer and if you lay a finger on youngest you will be out the door
so fast your feet will not touch the ground” I asked him “have
you learnt nothing after all we all went thru with your dad” he
went quiet then said “well just fucking ignore him then as all he
ever wants is your attention and you fall for it every time”
I
know I'm a hypocrite after me telling youngest “punch the fucker
and be done with it” but that was in response to someone bullying
him and consistently tapping him in school.
Edel
from Gheel collected us at 9am. I had sent her a text telling her
eldest was “as high as a kite and chatting non stop but he won't
remember a word of it so don't take anything he says as gospel for
example if he promises to meet you at a future date” As expected
he was chatting away to Edel like they were old friends. At the
hospital we were seen within ten minutes. He was given an explanation
of the operation and his stomach was then checked. Edel drove us home
at 11am.
Me
and eldest went for a lie down, he was wrecked with the Xanax and I
was wrecked because I'm never getting a good nights sleep these days.
Just as my head hit the pillow youngest started texting me “I
think I'm having a panic attack” I rang him and he told me “Mrs
B made me and the rest of the class take a cognitive test, I refused
because I already did one for the Aspergers and the school has it, I
told the teacher I had to leave the class but she told me I couldn't
and I was shaking so much and cannot bare feeling this way” I said
“I'll get Edel to deal with the school” but when I contacted her
about it she said she would get Deirdre to deal with them.
26th
October
Youngests
class teacher Mrs B rang me. She said “I'm sorry I didn't let
youngest leave the class when he asked to, I realised almost
immediately that I should have said yes because he was a bit panicky”
She said “when I said no to him he looked composed and not at all
anxious” I said “and therein lies the problem, how he looks is
not how he feels and only I get to see and hear it” She said “I
will read up on the Aspergers leaflet you brought in”
27th
October
Had
to buy youngest new head phones as his are broken. He asked for money
for his date tomorrow. I told him “I'm really struggling on only
one income to cover the two of us” he said “that's not my fault,
I will sort you out properly when I get my Disability that you've
appealed” I told him “I only want what eldest gives me and
nothing more and I want it back dated too because you're an adult and
should be paying your way” I gave him €40 and he asked me “is
that all” I could not believe it. I told him “I'm going without
so you can have this” he said “sorry”
Call
from the charity asking if I will do a reading for them at the
Memorial Service they have every year next Tuesday.
I
am fed, fed, fed, fed up. Fed up with coping with everything alone,
fed up with having no real friends, fed up with having so little
money, fed up with every day a drama with youngest, fed up that fuck
all has changed via Gheel or the HSE, fed up at not having any
relationship myself with a man. Fed up that I want a job and to
further my education but cannot as I cannot go any further except via
college degree and that is full time which I cannot do as the rules
state as a carer I can only be out of the house 15 hours per week. I
am fucking fed up. I am fed up at feeling guilty because my boys are
now the way they are, I am fed up feeling guilty because they have an
evil bastard for a dad who does not give a shit if they are even
eating or have a roof over their head. I am fed up being the only
parent coping with everything, I am fed up that I have no one to talk
to, no one to hug me, no one to hold me, that I have not had sex in 6
years and I have no one to show or give me any affection at all. I
had to be the good parent, the one who stuck around but where has
this got me, I get no respect nor conversation from my kids at all, I
am nothing to them, I am nothing to no one. I am so lonely that I may
well not exist at all and no one would notice if I did not exist.
Feeling
sorry for yourself are you girl? Yes I bloody well am.
31st
October
Cleaned
the house from top to bottom, feeling a little better spirit wise.
1st
November
Memorial
Service. My youngest came with me after I told him how nervous I
was. I did the reading from the pulpit, youngest said “you sound
like Mrs Doubtfire” I do not think that was a compliment.
3st
November
Hospital
for me for an MRI scan on my back, I got told “we do not do them
any more and if you lose the feeling in your leg again you have to go
to casualty” what a total waste of time and it took me two buses
to get there and two buses back again.
I
asked eldest if he could lend me €300 for Xmas, he said “take
more than that” but I said “no because €300 I can pay back but
more than that and I would not be able to as I am still paying off
the loan for when we moved in here on carpet and laminate and
curtains etc” he said “I had forgot that” then he erupted
shouting at me “you should know by now what a bad memory I have”
I
was thinking I wish he would forget about his dad because that's when
his agoraphobia started but I didn't say anything. I asked him “what
do you want for Xmas” he said “what, the one that I'm paying
for” and that is why I hate asking him for anything, he always
throws it back in my face. I said “I always repay my debts and
where else would you get full bed and board, 24 hour access to the
internet and a slave running after your every whim” He said “just
get me books then”
14th
November
Youngest
is meeting a girl after school today, he said “I need money” I
could only give him €25 plus €13 in change for school. I cannot
keep this up. He's been going on for months about a band he loves
that's playing in London and he wants to go see them and he wants to
take the girl with him. I said “I want to speak to her parents
first so I can be sure she has their permission and you need to sort
out photo ID for travelling and how will I pay for accommodation on
top” He started a row with me telling me “you're making problems
for me” He doesn't have an ounce of sense in his head if that's
his attitude.
21st
November
T
was here for the weekend, she is great company and it's always
fantastic to have her here. She was shocked at the mouth on youngest
towards me, all because I asked him “how did you get on at the meet
up” For no reason at all he began roaring at me “I have been out
6 times in 3 years and you're treating me like a cunt, like a retard”
T told him “you need a kick up the hole talking to your mother like
that and she gives you the money to go out you cheeky bollix so what
the hell are you talking about” He said “sorry” and left the
living room. She said “he's mental, nothing was in context at what
you asked him for him to erupt like that”
When
T left youngest said he wanted to talk to me. He said “I have many
other disorders that I just found out online so you'd better get used
to it” I said “I will get used to nothing so you better watch
your mouth and you can get to a psychiatrist to find out what else is
wrong with you and not bloody do it yourself on line” He stormed
off. I called him later to put the bin out for me and he just ignored
me, Eldest called him to tell him “mum wants you” youngest said
“I don't care” I had to put the bin out myself. I'm sickened
after all the money he's had out of me for his schooling, his daily
diet coke and sweets, his dates, his meet up's and his school trip
money. He's suffering with something alright and it's
lazyfuckingitis. He is a pure manipulator, he always uses emotional
blackmail to get his own way. I fear for his future. Not a lot of
people would put up with him.
22nd
November
Youngest
told me “I'm not going to school because if I do I will tell all
the teachers to fuck off then I will jump out of a window” I said
“that's very grown up talk for an adult, if that's how you really
feel then you need to go and speak to the doctor” The door
slammed.
25th
November
Eldest
met Michael McCreadie today. He had 7 Xanax in him but didn't speak
much at all but I was glad that someone got to see him after all this
time.
When
it came to youngests turn Edel from Gheel and I went out for a walk.
I told her how youngests behaviour is affecting me and I'm one lone
person coping with both him and eldest and I just cannot bloody do it
any more and I'm sick of saying it and I'm sick of no one listening
to me and if my youngest is correct and he has Bi Polar as he keeps
telling me he has then I'm not prepared to live with anyone with a
mental illness because he is impossible to live with right now. I
will be driven insane. I feel insane already and I know my sons
having suffered professional failure and neglect will see me in an
early grave” I told her “I only have about 5%
energy left in me, I'm getting cold sore after cold sore, I'm so
tired, drained, sad and fearful” She just listened.
We
went back into the house. Youngest was still talking to Michael McCreadie who said when I walked in “he doesn't have Bi Polar and he
has to start looking at all he thinks thru an Autistic lens because
it's Autism he has” The relief in me to be told he doesn't have Bi
Polar had me run from the living room in tears to the kitchen, Edel
came after me, I couldn't breathe, I was panting trying to breathe,
Edel said “you're having a panic attack” and she talked me back
to normal, all this is going to kill me, I just know it is. I never
had a panic attack in my life.
When
they left youngest told me continually, over and over and over and
over again “I know Michael McCreadie is wrong because only I know
myself what's really wrong with me. I screamed at him “fuck off
and leave me alone or find somewhere else to live, this is my house
and if you have anything to say about anyone then save it for them
because I will not listen to you rant or rave any more and you better
think before you speak to me again because I'm not taking any abuse
and I hope you're happy because I never had a panic attack until
today so you can keep your, I'm right and everyone else is wrong
and tell it to someone who will give a shit because you and this shit
is killing me” He called me a “fucking, cunting drama queen” I
went to my room and I stayed there. I am going to go criminally
insane.
28th
November
Rang
the divorce court and asked them if I could come down and have a chat
with them. I got told yes. Got the bus then the Luas. The place was
packed and I felt very sad for all the people there and hoped I did
not feel sad when I got my divorce because I really am an emotional
person. I have been on such a roller coaster for the past 6 years
that I've had no time at all to do what most normal people do, grieve
for all they lost and by Christ I lost a lot, I really did love my
husband, I was still in love with him when I left him but knew I had
to leave for my sanity, no sane person can live with such an insane
person and expect to still be sane themselves but none of that
changes the fact that I did really love him and will one day soon be
one of the sad people sitting here in this divorce court .
I
went up to the desk to be told I was in the wrong building. I had to
go two doors down and there was no privacy at all in such a tiny room
for the public to discuss such private matters. I gave my name and
the man behind the counter told me “you're not on our system” I
said “off course I am” and told him my solicitors name, again he
said “you are not in our system” and I left utterly confused.
Once
home I rang the court again and told a woman about “the farce I
just experienced and I'm putting a complaint in writing” and she
said “we don't work by names, only by case numbers” I said
“that's strange because the man asked me my name and I gave it to
him so why would he ask for my name if you do not go by names. I said
no one else in Dublin has my name as I checked with the house reg
people so it's a fact” she said “the man must have looked it up
wrong then” The woman must have felt sorry for me because she
checked my file, she told me “no contact by your ex at all and you
cannot do a DIY divorce because the solicitor has to “come off
record” by contacting the court herself” What a bloody mess.
29th
November
Everything
is getting too much for me. I'm hardly sleeping at all any more. I
woke up at 3am, 4.50am and gave up at 5.15am and got up.
I
went on a cleaning buzz doing the inside of my cupboards. Eldest came
down and told me he'd had a nightmare, he said “youngest was
throwing petrol around my room and trying to set my room alight, it
felt so real I wanted to go and batter him this morning”
Youngests
school attended an open day so he came home at lunchtime. I asked him
“will you come to the shop with me” and he said “yes” so
whilst out walking I gave him two tickets for the band he loves that
had arrived today. It was worth it just to see him so happy because
he really was over the moon, he said the girl “cannot go to the
concert any more” I didn't question him about it, he will tell me
when he wants to. He said “I'm more relaxed about school now and
I'm not going to stress about exams because I can always do a PLC
course instead” My heart sank at that news.
Xmas
presents I ordered from Amazon arrived, I gave them to eldest to hide
in his bedroom for me.
A
third cold sore has popped up, I've not had them for years, now they
are non stop and I cannot afford to buy the cream to get rid of them
so I'm using ice cubes instead to kill the virus but it's not
working. I hate cold sores.
30th
November
Youngest
wanted his hair cut at the barbers. We went into town so he could get
passport photo's done to get ID. I almost screamed at him in the
street due to his awful racist talk, he is an embarrassment and I
detest how he talks.
We
went looking for a college miles away, it was waste of time and shoe
leather because we couldn't find the place then my left knee cap
popped out leaving me in agony. We got home at 3pm. Youngest went on
a rant about Ryanair only accepting passports as ID. I could never
afford to pay for flights there and back for him and have told him so
but will he listen, no and it's all my fault according to him.
When
youngest goes on “a rant” I don't mean he just tells me
something. I mean he can go on and on and on and on for hours about
the same subject where he gets angrier and angrier and he wants me to
communicate back, to say anything at all to him so he can have a full
scale argument with me then he will feel some kind of warped
justification that he is right and fool that I am I listen to him and
I will nod in agreement then my ears will feel battered by his loud
voice levels and my brain will feel squashed by his machine gun
rattle of verbal spewings and inside my head I will be silently
begging for peace, for space, for him to go away. It might appear
that I “verbally retaliate” all the time immediately but I don't.
I do so when I have had enough of hour upon hour of it.
I
put up the Xmas tree alone. Youngest always helped me to do this
every year but he's preferring to sulk in his room instead. My family
has fallen apart.
1st
December
Youngest
was in a right old panic about missing the concert, he told “I can
get an emergency passport for €130” I asked “what about the
cost of accommodation, of food and travel and spending money, it will
cost a fortune and I do not have a fortune” he said “it will not
come to more than €300” I said “that is more than my weekly
income for gods sake” He said “I will ask eldest for the money”
I reminded him “you owe him enough already and you haven't given
him a cent back yet” I said “you can get the ferry there and
back and it won't cost as much and I might just about manage that”
he said “no, that's not how I'm getting there and back because it
will take too long” He went off in a huge strop the selfish little
bollix that he is. I created a monster with spoiling him so much, all
he asks for he gets but I do not have the money to pay for flights
and I have no machine to print my own money to give him.
I
am tired and drained and I look bloody awful.
I
read online that youngest can get an adult ID card at the bus office
in town for €2.50. I told him to go and get it today because he was
home at lunch time from school but he went to bed and did nothing.
I
asked eldest what he wanted for dinner, he said “don't know” I
asked “do you want chicken, his was answer was “no” I asked
“well what do you want” he yelled “I don't fucking know” I
ended up like a mad woman and sounded like Dick Dastardly dog Mutley
as I argued with him in my head, I cannot to his face because Christ
knows what the consequences for me would be. I realise when I'm
around either of them my breathing goes funny, like I hold my breathe
till I can't any more.
5th
December Court
I
have woken up in a rotten angry and tense mood. I left the house to
get the 8.30am bus with youngest. We met L at 9.30am. I saw his
girlfriend alone wandering around the place, there was no sign of
him. He then walked in looking like the tramp he always does for
court. I knew today I was going to lose my temper and I didn't know
why, it's like I've had a belly full of all crap, it takes an awful
lot for me to lose my temper, I am quick tempered with my mouth but I
calm down as fast as I rear up but I have never lost my temper in
court. I normally only lose it for those who cannot defend
themselves. I have roared the street down on seeing a man beat his
dog up when the dog was on a lead and couldn't escape him. I have
lost it with mothers in supermarkets who smacked the heads of their
small toddlers. once lost it in a dole queue in London when a skin
head pushed an old man so he could get in the queue before him, I
shoved that bastard so hard he almost fell over, how I had the balls
to do that when I was only 7 and a half stone I will never know
except that I hate to see bullies getting away with anything. The
person who was with me was mortified and thought we would both get a
beating but I stood my ground and took that old man's arm and stayed
with him and kept staring at the ugly skin head daring him to try
anything. That is how I felt today when I woke up. I knew I was
going to lose it.
Youngest
insisted on coming up to the court floor lobby with me at the call
over, it is so embarrassing to be there, it's just like a cattle
market. His solicitor came over to me and said “Hi,where is your
solicitor today” I said “I'm representing myself” she told me
“I'm asking for an adjournment, will you be objecting” I said
“he has had enough time, over 12 weeks now to provide all required
documents” she said “he is ill” I said “no he's not he's
mental and me and my kids have the scars to prove it, he almost
destroyed us all” At the call over the judge said he would take
our case first and everyone shuffled out. Twice a Garda tried to get
me to leave the court, I said “what part of, it is my case, do you not
understand man” he went bright red and left.
The
judge had no idea why we were there at all despite having a file in
front of him. The ex's solicitor said “maintenance” I shot my
hand up because that was not why we were there at all, it was for a
full disclosure, but the judge shot me down by roaring “you will
get your chance to talk soon enough”
His solicitor went on to say “my client is ill, is suicidal, he has a doctors letter re all his depression and stress about all these court cases” I almost started screaming the place down, the fucking brass neck of him, he's the fucking reason I'm in and out of court all these fucking years. The judge asked to see the doctors letter and then asked me to “read it” he asked me “can you see where it says suicidal or depression because it says no such thing” I looked over at the ex and couldn't believe my eyes, he was rocking back and forth like the nut job he is, a fucking Oscar he deserved for that act, there was no sign of him doing that downstairs at all, what a bastard.
His solicitor went on to say “my client is ill, is suicidal, he has a doctors letter re all his depression and stress about all these court cases” I almost started screaming the place down, the fucking brass neck of him, he's the fucking reason I'm in and out of court all these fucking years. The judge asked to see the doctors letter and then asked me to “read it” he asked me “can you see where it says suicidal or depression because it says no such thing” I looked over at the ex and couldn't believe my eyes, he was rocking back and forth like the nut job he is, a fucking Oscar he deserved for that act, there was no sign of him doing that downstairs at all, what a bastard.
The
judge then told me “you can speak” but instead of letting me
speak he started asking me questions about maintenance, he told me
“go to the divorce court and start your divorce even if he refuses
to lodge a defence” I told the judge twice “my divorce has been
lodged since April 2010 and you're confusing me because I'm here
about a full disclosure of all assets both in England and in Ireland”
His solicitor told me “I will explain it to you outside” I said
“no thanks, you're my husbands legal representative, not mine”
The judge said “the arrears still stand, the maintenance payments
(that are not being fucking paid at all) still stand and the full
disclosure” that I waited 6 whole fucking years for was struck out,
despite this being the very same judge who ordered it in the first
place. His solicitor asked for “legal aid for him” the judge
said “no” and I hoped the evil bastard would be hit with a huge
legal bill for these non stop court appearances of his.
I
met youngest outside and told him “I am going to explode”
His
solicitor came up to talk to me and the ex came walking past us at
the same time and I let rip at him “ignoring your son, your own
flesh and blood you tosser” he said not one word in reply.
I told his solicitor “you're a disgrace lying in court that this was all about maintenance” she said “I'm only doing my job” I said “I didn't know lying was part of family law” she said “sorry, I feel for you I really do and I know what you've had to put up with from him all these years, don't think I don't know” I had no idea how she knew anything except that she talks to other solicitors. I didn't answer her, I walked away.
I told his solicitor “you're a disgrace lying in court that this was all about maintenance” she said “I'm only doing my job” I said “I didn't know lying was part of family law” she said “sorry, I feel for you I really do and I know what you've had to put up with from him all these years, don't think I don't know” I had no idea how she knew anything except that she talks to other solicitors. I didn't answer her, I walked away.
I
met L downstairs and told her “I am going to fucking blow, I am going to fucking explode and I no longer care about anything” All I
felt was a bubbling fury, at that bastard and all he did to us and
all he got away with and the state he left us in, homeless, my sons
genetics, all the crap I had to put up with solo from them, the money
he was court ordered to pay but doesn't, the money he stole from us
that was half mine and he got away with it.
I
saw him standing outside smoking, directly outside the exit door of
the court and I flipped. I walked up to him and started rocking back
and forth myself like he had done in the court. I was like a mad
woman screaming at him “ not fucking rocking now are you, you
fucking scum bag tosser” he just walked away not saying a word. L
took my arm and took me down an alley way. I was roaring and crying,
something I never do outside because I've become so used to hiding my
true feelings about everything, so used to keeping it all in. I just
couldn't believe what just happened and all because I had no
solicitor with me and that judge should have known why we were there.
I was cursing and shouting and a man walked past us. I called out to
him “I'm having a really bad day” he laughed and said “work
away”
L
said “I don't blame you at all, I've only ever seen how composed
you have been and how you have put up with non stop shit for years
now and thinking you were at last getting somewhere via the courts
and yet again it is all taken away from you” she asked me if I
wanted to go to a cafe, I said “no I just want to go home” She
said “Anne please now go live your life for you and you alone, he
has proved he is clever enough all these years to fool the courts and
the judges, he will get his one day, one way or another” I said “I
know but I didn't get mine for me and my kids and I will never give
up trying to because it's unfair and unjust and illegal all that he
has done” I said thank you to her for her support and we left to
go home but youngest told me he had to change his head phones in HMV,
it was the last thing that I wanted to do, walk thru the town, walk
into shops but I did, he asked me in the shop if I was okay, I said
no, still fighting back tears. No bus came so I flagged down a cab.
Once home youngest gave me a hug, he told me “don't think you have
failed even though you have because I'm still proud of you” that
opened the flood gates and I cried my eyes out.
I
wrote L an email thanking her for all her accompanying me to court
and apologised for letting rip then I went to bed.
I
rang the district court in the afternoon and asked how I make a
complaint about a judge. I was given a circuit court number to ring.
They told me to write to the President of the Circuit Court, the man
on the phone told me “you are right to complain because all judges
should know why a person is in front of them and you should have had
the right to talk and not be talked at or talked over and if you want
to go ahead with divorce then just come in and see us and we will
help you all we can. What a lovely, lovely man.
7th
December
Got
9am bus to town, then the Luas to Smithfield to go to the Divorce
Court, a woman gave me a form to fill in. I said I was told on the
phone yesterday that someone would help me fill in all forms, I got
told they can't because I still have a solicitor on record for me who
needs to “come of record” by informing the court before I can do
my own divorce. What a shagging mess.
Walked
to the Four Courts to hand deliver my complaint about the judge. I
asked for a receipt “we don't do receipts” some snooty cow told
me.
Went
into town and bought wool and an I pod nano for eldests Xmas then got
a bus to Tesco.
Once
home there was a letter for youngest, I rang him and he asked me to
open it, another refusal from Disability. I need to appeal yet again
and this time I only have 21 days to do it but as it's coming up to
Xmas I have only one week to get it done so it's posted on time. I
rang Gheel and spoke to a lovely bloke called John to tell him I need
help with the appeal, he said he would email Andy Mc Donnell, Michael
Mc Creadie, Deirdre and Edel for me.
Deirdre
from Gheel rang me, she sent me a tick box form specifically for
Aspergers and she said she will do a letter of support for me too.
That was nice of her and I'm grateful.
Edel
from Gheel sent me a text “I will contact the Disability Manager,
Geraldine Murphy and get a letter of support from her because I think
that would carry some weight too” I did not remind her that she
also said this months ago and nothing materialised.
Sent
the solicitor an email re “coming off record” in court and asked
for a breakdown of costs and my file, I reminded her that I had legal
aid and have been paying her money separately for a divorce. She
replied with her costings which were as clear as mud. She will make
the application to the court and let me know when it's been done.
Rang
legal Aid, got told 6 months waiting list, bollix.
Lots
and lots of work on youngests appeal. Had to buy more ink and paper
and not a word of thanks or gratitude out of him, men his age should
be doing this themselves.
8th
December
100
mile an hour winds outside kept me awake all night.
Youngest
asked me to ring him, he's coming home at lunchtime from school and
wants to go to town, he told me that he needs money. I said I cannot
keep doing this on my income alone. The money I give him for school
is €25 a week then he needs €30 or €40 for his next meet up
trips.
Went
to town myself for an interview with a charity re a Start Your Own
Business Course, they think the idea is fantastic and will do well.
They said they may have work for me that I will get paid for. God I
do hope so.
Missed
the bus so walked back and was bursting for the toilet, the gales are
terrible, it took me almost an hour to walk home. I am wrecked.
Youngest
went to town at 3pm, I gave him €50 and told him I wanted change
back from it. He said “I'm going to a concert in town tonight as a
girl I know won tickets so I'm going to Trinity College first to get
photo ID” I asked him if he would be okay going to a concert, no
reply, the door slammed shut. He has a one track mind, he got what he
wanted so nothing else matters.
Youngest
rang me sounding as high as a kite, he was talking non stop and nine
to the dozen, he said “I couldn't cope with the concert, it was in
a night club, I felt like all my senses were being raped” I kept
him on the phone because he sounded agitated but high, he did some
ranting about the clothes or lack of clothes people were wearing, he
said “the noise was so loud my chest was pounding and the lights
hurt my eyes so I had to get out of there”
He
sent me a text when he was on the dart. I was just glad he was safe.
I wanted to go to Tesco at 8.30pm for our shopping but couldn't
because I was waiting on my change from youngest.
Youngest
said when he came home “I'm not putting myself thru any more stress
with studying” my heart sank, he said “I will fall back on my
interview or my portfolio or do a PLC Course and if none of that
works I will go to college as a mature student” I told him “that
can't happen until you're 23 year old” then told him “I would
swap your stress for mine any day of the week” he mouthed off at me
but I switched off and put my ear phones in and turned my relaxation
music up loud.
12th
December
Edel
from Gheel at the house, we went thru the tick box appeal for
youngests disability application. She said “John had emailed us all
to support youngest with this” she said “I will chase up
Geraldine Murphy for the letter of support” (again). I told her my
conversation with youngest because I know he's just going to drop out
of school yet again and be stuck at home 24 hours a day. She again
told me “you cannot be worrying about things that have not
happened” if she tells me that one more time I will go mad at her,
instead I said “you appear to have forgotten I had him at home for
2 years not leaving the house so yes I am worrying because I know
it's going to happen because I can tell by the way he's talking, it
means he's already made up his mind, he thinks he's going to own
various businesses with all his genius ideas but he does sod all to
make anything happen” I told her about his first concert visit and
all he told me about how it affected his senses.
13th
December
At
8.20am eldest came looking for me “where are you, I want two Xanax
so I can exercise because I've not been able to for as long as I need
to” Once the Xanax had kicked in he told me “get to the Credit
Union and get €300 out to give youngest for Xmas shopping” I
reminded him “youngest already owes you money and has no way of
paying it back because he's been refused disability twice now”
Eldest said “I don't care I've no use for the money just now” We
then had a long chat about his teeth and college as he wants to be a
Space Engineer and design aircraft’s. We chatted for ages about UK
politics.
Youngest
rang me “I'm leaving school and coming home, I had an English exam
that I knew nothing about so I couldn't do it, I almost had a panic
attack and they allowed me to leave” He gives up far too easily.
15th
December
Michael
McCreadie was at the house at 3pm. Eldest had 9 x .25 mgs of Xanax
in him, a terrible amount of tablets to take within a few hours.
Me
and youngest were practically held captive by him, talking at us and
advising us, all the usual shit that comes out when he's in stoned on
meds mode. He was telling youngest “you have chosen the wrong
career” he asked us “do you even know what's going on in the
world today”
Me
and youngest were communicating with our eyes, a lot of rolling of
them from him to me and me to him. We both knew we would not get a
minutes peace when he was like this, as high as this, he talked more
than he had all year in this house.
My
nerves were frazzled because he was following me around the house. I
went to the toilet and sent Edel from Gheel a text asking “could
you get out to us ASAP he's driving us nuts” Eldest said “I do
not want Edel at the meeting today” I asked him why, he said “I
don't really know her” I said “you have been in her company more
than any other outsider the past 6 years” he said “I just don't
feel comfortable” I said “okay so me and Edel will go out a walk”
he told me “no I need you and youngest here to talk for me when I'm
unable to” he then proceeded to tell youngest to “start writing
and make a list of things I want to discuss and you have to write
down everything whilst the meeting is going on”
Michael
McCreadie is a lovely man and Scottish which tickled eldest for some
reason. A lot of talk about Mindfulness took place with Michael
telling eldest how it helped him with his flying phobia. Michael said
“it would be best to do a full 8 week course” I said “great,
where can he do it, when can he do it, how does he get there”
because I assumed that Gheel would set it all up for him, I was
merely told “some places in Dublin do them and you just need to
google them” I had a professional in my house because my eldest
doesn't leave it unless absolutely necessary and he is medicated out
of his box to do so and they hadn't one word of how eldest gets to
such a course or back again and who would be with him, what a
complete waste of my time and I had to cope the rest of the day with
my eldest out of his head on 9 fucking .25mg of Xanax.
Eldest
told Michael “I don't have agoraphobia and mum explained it best
“the less you go out, the less you want to go out” he said “it
all started when dad beat the shit out of me” and how “I tried
going to school but had a panic attack” and “I have gone out a
couple of times with mum but I need my hood up and my ear phones in
because that's my comfort”
Edel
and Michael left at 4pm. Edel told me “try and get your head down
as you look so stressed and tired”
Me
and youngest took my dog out to the park. I needed fresh air, my
nerves were strung out and I needed space from eldest and now my head
was splitting.
More
talk I remember from the meeting: Eldest talked about his teeth,
doing his leaving cert from home, he needs a plan and I have got to
sort it all out for him. Cardio exercise for his weight and height,
sustain for 20 minutes then come down slowly. It all seems crazy to
me, just talk and no action. Gheel should be actively helping eldest
achieve all this with their contacts. I asked Michael whilst he was
here if he “would kindly fill in youngests appeal” he did but
said he thought it should be in PDF format, Edel explained that it
has to be done by youngest but mum is having to do it for him and it
needs a professional to give their input too. So he filled it in for
me which I was really grateful about.
16th
December
Email
from the solicitor, my file will arrive by bike at 3pm. She has
applied to the court and will let me know when it's done re coming of
record so I can go it alone.
Posted
youngests appeal by recorded delivery minus any letter of support
from Gheel or from the Disability Manager because no such letter was
sent from either of them.
I
had a reply re my complaint about the judge, it was from a female
judge, she acknowledged my letter but said she cannot get involved
because it was not her case (I was told by the Circuit Court to write
to her) she went on that I can appeal to the Circuit Court (the last
place I want to do is go back to court) and she has sent my complaint
to the judge involved as is the norm (inward groan) Oh well as least
I was respectful about him in my letter of complaint, which he was
lucky about.
19th
December
Eldest
woke me up at 4.15am because he thought he heard me cough so he
thought I was awake. He wanted to tell me that some leader in Korea
had died. Then he told me “I had a nightmare about a corpse and dad
was there too and it was fucking horrifying and I'm going back to
bed”
Youngest
came home early from school, he said he has a sinus infection. He
never had a problem with sinuses in his life.
20th
December
My
back went into severe muscle spasms when I was emptying the washing
machine, I rang the doctor because I didn't want to be up in casualty
for hours. The receptionist told me the doctor said “take extra
Xanax because that's a muscle relaxant”
Still
no letter of support from Gheel for youngests second disability
appeal. I emailed Deirdre about it.
21st
December
My
back is still killing me and Xanax did not relax any muscle of mine.
I had to go bank two weeks money for eldest and collected youngests
prescription.
23rd
December
Got
maintenance at long last. I gave youngest €100, nothing was sent
from the ex for the boys Xmas as per usual.
24th
December
8.30am
bus into town for last minute shopping. Got boys a Mc Donald's
breakfast as I have done so every Xmas eve except 2006 when we had
nothing. When I got home youngest whispered to me “brother has the
hump because I heard him ignore you when you asked him if he wanted
anything before you left the house this morning” I said “he's
fine, he was just reading and there's nothing worse than someone
interrupting you when you are reading”
I
told youngest at 7.30pm “my back is killing me and there's nothing
on TV and I'm fed up being alone” he said “I'm fed up being
alone too” I asked him “stay in the living room with me then”
he said “No” I asked him “why are you always shut away alone in
your room” No reply.
At
8.30pm youngest walked into my room and said “I'm going out for a
long walk” which meant no sleep for me until I knew he was back
safely but I fell asleep.
25th
December Xmas Day
I
woke up at 5.24am and realised straight away that I'd fallen asleep
without hearing youngest come home after his late night walk last
night. I shot out the bed into his room to make sure he was home
safe. He was. My heart was pounding and the palpitations started. I
keep telling him how dangerous it is to be walking about the streets
alone at night but he just will not listen to me.
I
lit the fire then lit all my candles. I put the Xmas tree lights on
and waited for the boys to come down to open their presents.
I
heard eldest get up and come down the stairs, he was in the toilet
for ages. I called him when I heard him come out of the kitchen door,
no reply and he walked back up the stairs. I called him again
thinking he must not have heard me, again no reply from him and I
knew he must have heard me. All I could say to myself was please god,
not today of all days, do not let him start today because I'm not fit
for it or him and his awful moods and threats. I was praying aloud,
one day is all I ask for, for my life to be free from all drama and
all crap. I could already feel the cloying, heavy, drained atmosphere
descend around the walls of the house wrapping it up like a bloody
Xmas parcel.
I
put my dogs lead on and walked her for half hour and back again. I
was back home at 8.30am. Youngest was on the couch when I got in, he
said Happy Xmas and gave me a hug. We gave each other presents, he
had got me a large bottle of Beautiful and Loverdose perfume, two
Lush soaps and bath bombs, The Guard DVD and a box set of Only Fools
and Horses. I got youngest games for his 3 DS, a game for his
Nintendo Wii, a ukulele, a Finepix camera and expensive head phones.
I then told him about his brother. He said “I told you yesterday he
had the hump” I went up to eldests room and said “Happy Xmas
son, are you coming down to open your presents” no reply, he was
pretending to be asleep. Youngest went off to play on his games in
his room, I sat in the living room crocheting. My life is a very
lonely life and I hate it. It is Christmas day for Christ’s sake,
they could at least help make one day good for us.
I
put the dinner on at 1pm to be ready for 3pm. Xmas dinner is my
eldests favourite meal. I called youngest down when it was ready and
asked him not to eat it in his bedroom for one day for me, I took
eldests dinner up to his room, he was still pretending to be asleep
but he has his head phones on now, I told him dinner was on his
computer desk and to eat it before it got cold, no reply. Youngest
stayed in the living room with me for only five minutes, he was non
stop texting on his phone, he didn't speak a word to me, he just
upped and left the room. I called him down at 5pm and asked him to
take eldest up some water and coke, eldest told him to go away.
Youngest came and told me, “do not go anywhere near him or else you
will be goading him” I reminded youngest who the parent is and
never to use those particular words again to me ever because you know
that is what your dad would say to me and I'm not happy about that.
It
is now night time and eldests presents are still under the tree not
touched, he has destroyed the past 6 years of my life but even that's
not good enough for him, he wants Xmas day ruined too, so well done
son you ruined it for your own selfish, obscure reason and I detest
you for that. This has got to end. He is going to end up in a mental
hospital or I will.
I
am sitting alone on Xmas day. I have no one to talk to, no call from
anyone, no text from anyone except my friend who has faithfully
helped me and supported me all these years now. But what kind of life
is this for anyone to lead. Someone up there must really hate me. It
is unbelievable that this loneliness and no real professional help
and support can leave me in this position.
So
how was your Xmas this year Anne? Fucking shit, thanks for asking.
I
called youngest asking him if he wanted chocolate cake and cream, his
answer was no because he's tired, he said he was awake till 3am so
was having a nap. I hope to god that doesn't mean he was out
wandering the streets till 3am. I didn't even get a drink in the
house this year because youngest used up so much of my money on going
to his meet ups and his dates and on his concert tickets, I wish I
hadn't bothered.
Youngest
came down at 7pm, he said “I'm going on a walk to St Ann's park”
to some lagoon he found last night. I said “it's raining and
blowing a gale out there” he said “I have a jacket and a hat”
I bet a thousand Euro if I'd asked him to go to the shop in this
weather for me he would have told me no. I told him “it's not safe
son” he said “it's not safe anywhere” and put a bottle of
water in his bag, I asked him “why do you need water” he said “I
was thirsty last night” He was putting the fear of god into me. He
said “I'm going to take a lot of photo's with my new camera” It
was pitch black outside and he had no super dooper flash so he was
talking bollix, but what could I do, nothing. As he was going out I
told him “be careful” he just said “bye” no kiss on my
cheek which he would normally do before going out. Something is going
on and I don't know what it is but my antenna is on high.
I
heard eldest get up then come down stairs and I stood behind the door
hiding because I wasn't fit in any shape or form to deal with him
tonight. He didn't come near me thank god, my nerves were shattered
in case he decided to batter me due to whatever was going on in his
head. I have no idea why he's like this today, no idea at all. I
believe he's mentally ill as none of what he does is normal and I
know that youngest is going down the same path. Where the fuck are
the children I gave birth to and raised, where have they gone, I want
them back.
Youngest
was gone for three hours. When he got back I tried to get him into
conversation but he was not interested, he is not my youngest any
more. I do not know who this person is. I asked to see his photo's,
he just ignored me and went to the toilet then up to his room. I
turned everything off and went to bed and wept and couldn't sleep.
Happy Xmas Anne.
I
sent an email to my friend and Edel from Gheel. I want them to know
what is going on in this house and that none of it's normal and
people better start paying attention as I'm living with two grown men
who are not only abusive, aggressive but very obviously mentally ill
and I'm going to be driven insane.
27th
December
Eldest
is still not conversing nor communicating with either youngest or me,
his Xmas presents are still under the tree.
Youngest
has been up all night after his usual out in the dark walk to god
knows where, so he will be in bed all day until late afternoon and
only appear to feed himself and return to his bedroom for the rest of
the day.
I
was told by Gheel “It’s still youngest” after the diagnosis. No
it is not and I should know as I gave birth to him and raised him for
18 plus years, I do not know this person, flashes of the old him do
still appear but he is no longer as he used to be.
Eldest
has simply morphed into his father, a sullen, aggressive, abusive,
manipulator who punishes by with holding of communication when the
victim has not a clue what they have done to upset the apple cart.
Thinking
about my sons and what they are doing to me and how they are making
me feel after all I have done for them on my own has made me feel
angry. How dare they. Eldest withdraws all communication for no
reason that I can see. How can he not open his presents on Xmas day
and why the fuck not. Youngest takes off alone for hours without
prior warning, all woe is him when he's writing online and talking of
suicide and depression. But they are not like that in front of any
professional or at school, it's all saved for mum, he cannot cope,
get mum to sort it out, get mum to fight for him, get mum to defend
him, get mum to protect him, run after him, fund him, feed him,
clothe him. Well no more, I am not taking this any more.
I
wonder how they would like to wake up every morning full of dread and
fear in case they found my dead body lying in the house because
that's how I wake up every morning due to my eldests constant talk of
suicide. Asking me “get me tablets and alcohol so I can kill myself”
and youngest writing on his blog “Just one more tablet. I am
burning up now” And I am left a quivering wreck in case they
succeed, it is mental torture. I am terrified of living in this house
with them in case they carry out their threats and I am terrified to
leave them in case they carry out their threats. I wish I was
stronger and less of a mum, I wish I could leave them and not give
them a backward glance because I know they would not give me a
backward glance, a second glance or any thought about me. But I
cannot change who I am.
I
rang T hoping she would answer her phone. She did, I was so pleased
to get to talk to her. I told her about eldest and his presents still
unopened and not a word said to me or youngest and no reason why, she
said “it's psychiatric help he needs and needs it soon before it's
you that needs it” I told her about youngest and his late night
walk abouts and strange behaviour and my emails to my friend and Edel
from Gheel. T offered to come and get me out of the house but she
had been drinking from last night till 3am and she felt ill. I told
her “I did not have one drink in the house” I told her “don't
come and get me because I would be worried about you driving and not
feeling well” She said she would phone me later.
My
friend rang me, she said “you should phone Women's Aid and if you
are abused at all go into a refuge away from there”
Made
dinner and called youngest, no answer, I'm not wasting my breathe, I
just covered their dinners with plates, they can get it when they are
hungry enough. I am not going near my eldest.
Youngest
is acting very strange. He came and thanked me for his dinner, he
said “I was asleep and didn't hear you call me” I hadn't
mentioned to him that I'd called him so I know he wasn't asleep at
all but I said nothing. He lay on my bed next to me but he didn't talk at all, after 15
minutes he got up and left my room. I feel like I've had the colour
stripped from my life. Men their age are fighting for their country
for god's sake.
29th
December Email to my friend
“Hi
friend, I called Gheel both in Kildare and Fairview and no reply, nor
Woman's Aid. I doubt anything will be back to normal till Tuesday 2nd
now. I will be in bed and hopefully asleep by 7pm as I had a very
disturbed night last night. Youngest has just told me he went walk
about at midnight till 2am, he said there is no people about and he
likes it, one of these days he will be in the wrong place at the
wrong time. He won't listen”
30th
December Email
to my friend:
“Hi
friend, I had a reply from Edel on my mobile, she is out till next
Tuesday and Deirdre is out till next Wednesday, she asked if
everything was okay, but I had no credit left to reply. She said the
day centre in Fairview is open but not many staff are on. No change
here. Youngest is in bed most of day, says he's depressed. T is
coming tomorrow with her niece for two days”
31st
December
T
came to my rescue to spend New Year with me. She asked if she could
bring her niece with her as she's looking after her to give her
sister a break. She is only 7 and such a lovely child. T took me up
to Tesco to get sweets, juice and a naggin of whisky and shortbread
for the bells at midnight. Youngest said “I want to try whisky”
so he had two small ones and said “I feel great” I said “any
more and you will regret it and have a sore head” As soon as the
bells went I cried like I always do, T held my right hand and
youngest held my left hand. We then opened the front door to let the
old year out and the new year in, neighbours across the road shouted
Happy New Year. Me and T were up into the early hours of the morning
talking.
That’s
another year over, another desperately hard year over. I don't make
lists any more of all my hopes and dreams for a new year because I'm
not in charge of my own life. I don't live my life for me. I have
been forgotten about in the great scheme of things. I don't seem to
matter to anyone, not to my kids and not to any professional
specifically Gheel who don't actually do what I assume they are paid
to do and certainly don't listen to a bloody word I say.
I
am glad to see the back of this year.
I
had forgotten that earlier this year T and her best friend who lives
abroad but is back in the country for a holiday took me to a small
town two hours away to see a psychic tarot card reader. I have to
admit I am a spiritual person but extremely cynical towards those who
charge for their "gift" but off me and R went by train and
we chatted like budgies and the journey went by in a flash and T
arranged to meet us there. The chap we were booked in to see is very
popular and it apparently can take many months to get an appointment
with him and I was amazed to find out we had to see him in a pub, we
waited two hours and in I went first and was blown away with all he
said to me just from being in my company and from his deck of cards.
I did not say a word to him:
"You're
a practical, no airs and graces woman who is very structured and
organised, a strong, very strong woman who has a very emotional side,
soft side, you have gone thru a horrific time yet do not go around
moaning. (I don't stop moaning in these journals)
“You
have had to be strong, there is a lot of death and loss in your life,
you have seen a lot of alcohol, aggression and abuse thru out life
and you have fantastic memories even tho they are of a negative
nature which is weird as you're a very happy person, a take it in
your stride person. Your feisty but have calmed down over the years”
“You
have only 2 or 3 very close friends, you had so many more but learnt
the hard way who was genuine or not, these friends you have will
never let you down and you will never let them down”
“You
will never go back to your past, it took you too much hard work to
escape it so do not be afraid to move forward”
“I
see 3 perhaps 4 children, no it's 3 living children, how old is your
youngest, this child is gentle, soft, family orientated, creative,
has gone thru a tough time, has seen abuse and aggression, is very
close to you”
“You
will not spend your life on your own but you will never again marry
in the future, you have been badly burnt and will not allow yourself
to be again, you will have a different type of relationship as you
will want to remain independent, you will have your place, he will
have his and you will get together when it suits you both, lets put
it this way, you will not hang around to make him breakfast in the
mornings”
“One
of your kids is very bad, is going to need minding, looking after for
a very long time, don't try doing it all on your own, ask for help. I
can see aggression here. Only you can cut the cord and you need to do
it soon” (I was dying to tell the man everything at this stage but
did not)
“Your
social life is crap, when are you going to realise that you need a
life too, your not a girl who likes pubs but you do have a love of
people, music and dancing, you need to get out there, meet people,
socialise even if it's a cup of tea somewhere, you will meet and fall
in love with a man you have never met before and he will want to
settle down but you want your freedom, you will meet somewhere in the
middle over this”
“Do
you have a question?”
“Yes,
when will I get my divorce?”
“Around
October all will be finished or all paperwork will be done, he is
being awkward (no shit Sherlock) is a controller, it's not that he
does not want a divorce, he does, but he wants to be the one to make
all the decisions, it's coming to the point where he has no choice in
the matter, someone else will do it and legally, you have entitlement
to money and property”
“Your
finances are a mess but will become more stable”
“Whether
you believe or not in the spirit world, I can see you are surrounded
by men and an unborn child, they are all very proud of you, you could
have become hard and bitter after all you went thru but you haven't
and you wont"
And
I walked out and waited for the girls to have their turn but they
were not as amazed as I was, how can someone say all that man did
without knowing me nor having a conversation with me, I truly was
amazed.
When
we tried to leave this small town we were in for a shock, the whole
place had shut down for some bike ride, it had not been done when we
entered the pub so someone must have ran around like the devil to put
up the barricades, we could not get in the car and leave and I was
ready for panicking about the boys but I rang them and they were
fine, they “would make a sandwich and be okay” they said till I
got home.
We
did not get out of that place till 9pm and it took two hours to get
back but I had such a good time just getting out for a while and
being in adult company.
I
have no idea what next year will bring, I no longer have any
expectations, all I can do is take it one day at a time but I know
for certain that with the status quo of professionals and agencies
doing sweet fuck all that nothing will change and I can only hope my
boys will change or I do. I will not hold my breath waiting for any
miracles.
Goodbye
to this year.
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